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  • #16
    I was closer than I thought then.
    Nick

    Embryonal Carcinoma; Seminoma. Marker negative.
    August 2001: Right I/O .
    August - December 2001: Surveillance .
    December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
    December 2001 - March 2002: 3xBEP .
    Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.

    March 2012 - Ten years since finishing chemo.

    Survivorship Blog is here

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    • #17
      when do you start feeling side effects?

      Hey there,

      I was just curious,I've been doing SO much research on the drugs my husband will be taking in the next few weeks. He's schedule to do 4X(BEP)but lately he's been more anxious about the side effects and when they'll start.
      I've mostly been reading that they don't start until the 2 cycle and that's when usually hair loss starts, but as far as the nausea....what would best describe it? A horribe hangover? I'm expecting it to be pretty bad, but I know everyone's different. And I've also been told that as long as he takes the anti nausea meds that they prescribe after each treatments, it won't be as bad...
      Taking it day by day, may take time... but you'll get there


      mass found R-test.(Ultrasound) Right orchiectomy
      Husband diagnosed TC 07/21/09
      2 lymphnodes found in abdomen (4.3x2.8 and 2.4x2.0)
      Small lymphnode lower chest (1.4x.1.1)
      brain scan clear
      staging: T1 NX MX
      4XBEP started 08/17/09 HCG-57,162 / LDH-1167
      ~~~~~~
      Tumor markers normal 11/25/09
      Scans show 3 lymphs in ab. about 1.8mm
      RPLND 01/15/10

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      • #18
        sickness

        the nasua's not that bad at least in my case. the week during treatment i just have a small urge to vomit, but i've still been eating what i want. i'd say that feeling after you take your first shot of jack daniels of the night is what it feels like on the first day, just a mild urge to vomit. as the week goes on during treatment it gets worse, just like when you take more shots, but you get more your body adjusts to it and i eventually forget about it.

        once the treatment week is over i usually feel 100% back to normal within 2 days, except feeling a little weak and short of breath now and then.
        Philip J.

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        • #19
          Originally posted by Birdbean View Post
          Hey there,

          I was just curious,I've been doing SO much research on the drugs my husband will be taking in the next few weeks. He's schedule to do 4X(BEP)but lately he's been more anxious about the side effects and when they'll start.
          I've mostly been reading that they don't start until the 2 cycle and that's when usually hair loss starts, but as far as the nausea....what would best describe it? A horribe hangover? I'm expecting it to be pretty bad, but I know everyone's different. And I've also been told that as long as he takes the anti nausea meds that they prescribe after each treatments, it won't be as bad...
          well just finishing up 3xbep, the nausea gets worse after each long week, and takes longer to recover. for example: after the 1st 5day treatment, i was ok after about 2-3days. and really never got sick just gave me hiccups real bad. but u have to take your nausea meds...if u forget u might get sick. the closer u get to the end the longer it takes.

          yeah i started losing my hair in my 2nd 5 day treatment...and the taste in my mouth about the same time...thats the side effect i hate the most. not being able to taste. but mostly i was just weak and couldnt do any activity for long. by the 3rd week i was really feelin it...just weak and sluggish, not able to eat, mouth just kept watering, and couldnt hardly keep anything down for a few days and had to get extra fluids after treatment.

          all in all the treatment wasn't as bad as i was thinking it was gonna be. i did vomit a few times toward the end, but mostly dry heaves, cause i couldnt eat. get some ensure it helps immensely. if your the caregiver, give the patient some leeway cause it does make you kinda miserable sometimes, and caused me to snap a few times at the wifey...but she understood and i did apologize afterwards. good luck hope that helps.

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          • #20
            I recently did my adjuvent single dose carboplatin and had some questions regarding protecting others, specifically my sexual partner. From what I understand it's recommended to use condoms for atleast 48 hours after chemo because some of the drug may be present in the semen (not a question about conceiving as other forms of contraception are being used) but some sources suggest longer. Does anyone know what the best duration to wait before engaging in sex without a condom. My doctor really didn't have any information regarding this.

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            • #21
              I waited atleast a few days after finishing chemo. I still used protection, better to play it safe.

              Drinking plenty of fluids will help flush your system of any residual chemo, but the length the chemo remains in the glands that produce semen varies. I would think after a few weeks you should be clear for no protection.
              sigpic
              Diagnosed 4/17/08
              Right orchiectomy 4/18/08
              Pure choriocarcinoma; HCG 715,000; lungs, lymphnodes, liver, and random other places
              4X VIP chemo at IU with Dr. Einhorn 4/25/08-7/4/08
              HCG down to 7.2 10/28/08
              HCG back up to 198 12/29/08
              1 X PVB 1/2/09-1/6/09
              2 X HDC w/ stem cell rescue 2/4/09-3/14/09
              Follow-up with Dr. Einhorn 4/22/09
              HCG 1.2
              3 rounds, 21 days, twice daily, VP-16 50mg 4/24/09-7/10/09

              http://www.caringbridge.org/visit/johncovell

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              • #22
                Does chemo cause hair loss no matter how many cycles you pass or is different?I need to do two cycles,will hair start to grow faster or is it same thing?
                Pre/o markers - HCG 1332, AFP 30, LDH 235
                pT1 (60% teratoma, 39% embyrional, 1% chorio)
                Post-op markers - HCG 1.2, AFP 2.3, LDH 379
                2XBEP

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                • #23
                  1 cycle of Carbo may not cause hair loss, but all other cycles will do at some point. There may be very very very rare cases where for 1 cycle of BEP it doesn't entirely fall out, but it will most likely do.
                  24 year old diagnosed 6/11/16
                  Pre/o markers 9/11/16 - HCG 15, AFP 210, LDH 539
                  Pre/o CT Clear
                  Non-seminoma (80% embryonal carcinoma, 10% yolk sac tumour, 5% chorea carcinoma, 5% seminoma)
                  Post-op markers - 14/12/16 - HCG 35, AFP 1050, LDH 430
                  Post-op CT with one enlarged lymph node - 1.5x1cm
                  Borderline stage 2B/3B
                  BEPx3 started 15/12/16 (Borderline BEPx4 - Advise of Dr. E to only do 3 rounds)
                  CT and markers clear - in remission - 28/2/16

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