Announcement

Announcement Module
Collapse
No announcement yet.

Embryonal Carcinoma

Page Title Module
Move Remove Collapse
X
Conversation Detail Module
Collapse
  • Filter
  • Time
  • Show
Clear All
new posts

  • #16
    Every guy who does chemo, banks some sperm. So make sure you are able to do that.
    100% classical seminoma (I-A, RTI). Surveillance (no adjuvant therapy). 4 years all-clear and hoping for many more.

    Comment


    • #17
      Originally posted by ukboyuk View Post
      Every guy who does chemo, banks some sperm. So make sure you are able to do that.
      Well I didn't bank any, but I have no intention of having children nor does my wife. So we are the odd balls I know.. just saying some people don't :-P
      11/21 Diagnosis
      - EC 45%, Yolk Sac 40%, Teratoma 14%, Sematoma 1% w/ LVI
      - CT no remote mets, RPLNs largest 4.2cm, few <1cm, Liver/Kidneys/Lungs/Brain CLEAR!

      11/25 - Left I/O AFP:2715,HCG:503,LDH:289
      12/8 - Post I/O AFP:855,HCG:304,LDH:NORMAL!
      2/20 - 3xBEP DONE! AFP:5.8 HCG:<1
      4/15 - RPLND Residual Necrosis/Teratoma removed
      http://takingcancerdownoneballatatime.blogspot.com/

      Comment


      • #18
        Hallo rjw! Welcome on the forum with regrets but this is great place with lots of informations

        I just want to respond to your question regarding BEP x 2. My husband had this chemo regimen last year. As Tracy and SPM said this chemo is full 6 weeks (one week daily in the hospital outpatient - one day abou 4-5 hours for my husband, second week Bleo shot and third weed again shot, and it all again for three weeks). About your question "guarantee that I lose the hair" - yes, I think it is 99% guarantee that you lose your hair about 10 day of chemo (end of second week for my husband - he shave it all in this time). I don ´t know what about having child after chemo but I thought that it is possible to have one. Doctors says that is needed to wait two years conceiving because of possible harm to the fetus. In any case sperm banking is wise to do... What about side effects, from experiences of my husbands treatment, it was very very similar as SPM says. My husband had some fatigue, the worst side effect was the metallic taste in mouth (it took about 3-5 weeks after chemo yet). He had a reaction to the Bleo too - severe fever for few hours, next day he was OK. He had almost no nausea (he got medicine for it: Zofran). He vomited only once, just after end of treatment. He was quite well about month after treatmnet possibly sooner, but full recovery with hair regrowth took about 3 months. He had full hair in 5 months (curly and darker than before, but today it is already a pre-treatment). So, my husband´s father was diagnosed with tumor on his testicle, but it was benign issue. Hope it helps...

        Keep us posted and feel free to ask if you need.
        Marketa
        Hubby Fany (born 1961):
        TC1: 2005, pure seminoma, stage 1, left I/0, radiation
        TC2: 2010, seminoma, frozen biopsy, right I/0 2xBEP (finished 25.7.2010), HRT Nebido


        HRT Nebido (long term injectable) form 15th of June).
        9-10-2010: blood test: clear
        10-29-2010: PET CT - clear
        11-29-2010: blood test: one marker slightly elevated
        02-25-2011: blood test: all clear!!!!!!!!!!!!
        05-02-2011: PET CT - clear
        07-28-2011 blood test - clear
        09-22-2011CT scan - clear

        Comment


        • #19
          About having a baby after BEP treatment...we are expecting a baby next month
          My wife became pregnant 2 years after 3X BEP. Odds are very high after 2 years.
          Last edited by MeMo; 01-09-12, 10:35 AM.
          Mass confirmed by ultra sound 4/12/2008
          HCG 2 - AFP < 2 - LDH 225
          CT Scan 5/15/2008 (Abdomen All Clear)
          Right orchiectomy 5/20/2008
          Patalogy = 1,5 cm tumour found, nonseminoma 100% Embyronal Carcinoma
          Started surveillance mode
          03/16/2009 toumor found..!!!
          CT Scan and Pet-CT found lymph nodes in abdomen, biggest one 2.3 cm
          Blood tests all normal (never been high)
          03/19/2009 started 3X BEP
          All Clear.

          Comment


          • #20
            wesmom

            There is nothing wrong with your preference. Some people have kids and treat them horribly. There is no commandment that says "Thou shalt have children". I have one son and there have been bumpy roads. I love him with all my heart.

            Originally posted by MIKEBRWADE View Post
            Well I didn't bank any, but I have no intention of having children nor does my wife. So we are the odd balls I know.. just saying some people don't :-P
            Son Diagnosed 6/24/10
            Right I/O 6/28/10
            (65% Teratoma, 10% EC, 10% Yolk Sac, 10% Seminoma, 5% Choriocarcinoma)
            3XBEP 8/10-10/10
            RPLND 11/2/11 (cyst in right pelvic area was mature teratoma and lymph nodes were clear)

            Comment


            • #21
              Originally posted by ukboyuk View Post
              Every guy who does chemo, banks some sperm. So make sure you are able to do that.
              No banking done here either. We already have two kids, and my wife was very adamant about not doing any unnatural conception methods if that's what it came down to if we both wanted a third. Not something she believes in. She'd rather adopt.
              StevePake.com | Please follow me on Gab
              (Social Media with actual privacy, cancer support groups, encrypted secure chat & more)

              Feb 2011, Stage IIB, 4xEP, RPLND, PTSD
              My Survivorship Thread | All of my Blogs
              C
              ONTACT ME ANYTIME! http://www.tc-cancer.com/forum/core/...lies/smile.png

              Comment


              • #22
                Oncology APPT Tomorrow

                Well tomorrow is the day with the oncologist, so we will see what happens.. After reading everything on here and looking at other sites I think I am leaning toward doing the 2 X BEP. But, we will see what the onco guy says.. more to follow

                Comment


                • #23
                  Ok well I am gonna go with the 2 X BEP should start on tuesday... it all depends if they can get me a PICC line in by then... if not they will start the following monday.. I guess they want it to start at the beginning of a week instead of the middle of it.. Did the sperm banking thing today just in case.. 250 bucks a year to keep that stuff cold.,. I guess that's not bad.. Well anyways.. just updating on here..

                  Comment


                  • #24
                    wesmom

                    I wish my son's was 250 a year. I'm paying 480 a year in Virginia. Drink lots of fluid during Chemo and take your nausea medicine on time. Keep us posted.


                    Originally posted by rjw0283 View Post
                    Ok well I am gonna go with the 2 X BEP should start on tuesday... it all depends if they can get me a PICC line in by then... if not they will start the following monday.. I guess they want it to start at the beginning of a week instead of the middle of it.. Did the sperm banking thing today just in case.. 250 bucks a year to keep that stuff cold.,. I guess that's not bad.. Well anyways.. just updating on here..
                    Son Diagnosed 6/24/10
                    Right I/O 6/28/10
                    (65% Teratoma, 10% EC, 10% Yolk Sac, 10% Seminoma, 5% Choriocarcinoma)
                    3XBEP 8/10-10/10
                    RPLND 11/2/11 (cyst in right pelvic area was mature teratoma and lymph nodes were clear)

                    Comment


                    • #25
                      450 a year in New Jersey. Good luck with your chemo, it will be over befor you know it.

                      Comment


                      • #26
                        Originally posted by rjw0283 View Post
                        Ok well I am gonna go with the 2 X BEP should start on tuesday... it all depends if they can get me a PICC line in by then... if not they will start the following monday.. I guess they want it to start at the beginning of a week instead of the middle of it.. Did the sperm banking thing today just in case.. 250 bucks a year to keep that stuff cold.,. I guess that's not bad.. Well anyways.. just updating on here..
                        Time should fly right by. Strange that they're doing a PICC for 2X but I wouldn't fight it. The stuff burned my veins right up so I'd have considered it a luxury.

                        Comment


                        • #27
                          this hospital only gives chemo thru either ports or piccs .. that's just the way they do it here...

                          Comment


                          • #28
                            Good luck with your treatment. Hopefully all goes smoothly.
                            Tina, wife to Gene
                            Right I/O 2/21/11
                            60% embryonal carcinoma- 40% seminoma with L/V invasion, Stage 1B, Cat Scan- clear
                            HCG- 1.2, AFP-1.5, LDH-normal
                            BEP X 2 started 3-7-11
                            Bleo canceled for 2nd round, lung issues
                            EP 3-28-11 X 5 days, finished chemo 4-1-11
                            F/U cat scan 4/14/11 - Stable
                            3rd round EP as precaution because Bleo was cancelled, start 4-25, finished chemo 4-29-11, pneumonia 5-6-11
                            6-1-11, 8-3-11, 9-7-11, 10-19-11, 11-16-11, 12-18-11, 1-18-12, 5-8-12 Clear

                            Comment


                            • #29
                              1st round done..

                              Hello everyone.. thanks for the support on here... Sorry I havn't posted so long I just havn't really been in the "mood" to get in here.. So far I have noticed that the worst part of chemo for me is about Day 3- day 9 well according to my expeirence with the first round... after about day 9 I felt great.. And that was about the time I was taken off the steroids... The steroids SUCK for me.. make me moody and just grouchy asshole... so the first day I was off them I felt WONDERFULL! back to my normal calm self.. Seemed like I had more patience than ever before... I felt great up until I started to get sick at the beginning of day 14 or so.. just a little cold nothing major.. I went in for my BLEO and about 3-4 hours I left hospital I felt like CRAP checked my temperature and sure enough I had a temp of 101.6 this was the first time I had a reaction to BLEO and this was my 3rd shot... so I called my nurse and asked her if they wanted me to go ER... and that was a BIG YES for the ER... good thing was is that they called ahead to ER so they were waiting for me... so no normal long wait to get admitted.. Well I got admitted tuesday night and wasn't released from the hospital till Friday night around 7 PM, it was all precaution because my white blood cell count and antripenic or however you spell it count was so low.. so they had a magic number before they would let me go... and shot me up with antibiotics every few hours.. FUN times... well good news was I was let out before super bowl and I felt pretty good most of the time i was in the hospital... but they didn't care haha.. they were still gonna keep me no matter how I felt.. well I guess its better safe than sorry... tomorrow i go in for day 4 of 2nd and final round.. starting to get the metal taste and everything tastes like crap again.. back to peanut butter toast again for almost every meal.. its the only thing I feel like eating.. I don't really have any nausea its just that I dont FEEL like eating anything and it all tastes bad... hopefully its like my last round and I'm back to normal by next week... well we will see... thanks everyone....

                              ryan

                              Comment

                              Working...
                              X