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  • Mature (Differentiated) Teratoma

    I got some initial pathology back on disected testes with the surgeon saying it was a mature (differentiated) Teratoma.

    1. If the CT scan is clear will this be the end of it?

    2. Will I require surveilance?

    3. Is this Teratoma a cancer and if so is it malignant and likely to spread?

    4. Why do I read some web descriptions as a benign tumor and others as a malignancy?

    Thanks for your support on here folks.
    Jan 2012 - Pain and swelling
    March 2012 - return to Doc
    March 2012 - Ultra sound detects 4 cm mass
    April 2012 - I/O
    April 2012 - Mature (differentiated) teratoma
    April 2012 - CT Scan no abnormalities found

  • #2
    Originally posted by Jules View Post
    1. If the CT scan is clear will this be the end of it?
    A clear scan is good news, but (sadly) no it's not the end of it! A clear scan means that there are on mets visible to the scan - and that is very good news. However it is possible for there to be "micro-mets" that are too small to be picked up by the scan (that's were you see some people opting for adjunctive chemo - to mop up any micro-mets that might be in their bodies).

    Originally posted by Jules View Post
    2. Will I require surveilance?
    Yes - a significant portion of the success of TC cancer treatment is based around its surveilence protocol. Speaking from personal experience - it picked up my relapse, so surveilence is a good thing!

    Feb 2009: RHS (Seminoma) & RT
    Mar 2010: LHS (Embryonal Carcinoma)
    Sep 2010: Relapse & 3 x BEP
    Mar 2014: Four years a eunuch!
    http://doublezeroami.blogspot.com

    Comment


    • #3
      Hey Jules,

      Been following your story. I will try and answer 3 and 4.

      3.) Teratoma is generally a slow growing cancer type. But it has some drawbacks by the fact that chemotherapy does not really work on it so you must stick closely to your surveillance schedule if you go down that path. If relapse is detected later down the line then you may find you need to take a surgical approach to removing it. You are not alone tho as Teratoma is present in a lot of our pathologies and does not impact on survival rate from what I have read.

      The "differentiated" and "undifferentiated" are two different beasts even tho they sound the same. Your kind, "differentiated" is actually the better kind as it is not composed of immature cells that could transform into more deadly cancer types. So be happy about that part.

      4.) Probably relates to the comments above. I believe some teratoma differentiated are so slow growing and do not spread/invade into other areas of the body but not 100% sure on that.
      Dave Hanson
      Found lump 18/02/2011
      Ultrasound confirmed mass 23/02/2011
      CT Abdomen, pelvis, chest (clear) 24/02/2011
      Left I/O 1/03/2011
      99% Seminoma <1% Unknown germ cell 10/03/2011
      Staging T1 - 1A 10/03/2011

      2 month - 27/04/2011 - All clear!
      5 month - 16/07/2011 - All clear!
      9 month - 22/12/2011 - All clear!
      14 month - 22/12/2011 - All clear!


      Yesterday was history, tommorrow a mystery, but today is a gift. That's why it's called the "present"

      Comment


      • #4
        Dave,

        Thanks for following my case and your answers. It tends to be the waiting for all the results that causes the highs and lows.

        I'll keep you all posted, best wishes to everyone.
        Jan 2012 - Pain and swelling
        March 2012 - return to Doc
        March 2012 - Ultra sound detects 4 cm mass
        April 2012 - I/O
        April 2012 - Mature (differentiated) teratoma
        April 2012 - CT Scan no abnormalities found

        Comment


        • #5
          I'm going to add one thought. I see you are in the UK, & they use the term "teratoma" a bit differently than in the US. Here is a page in the Testicular Cancer Research Center dictionary scroll down to teratoma:

          http://tcrc.acor.org/dictionary.html#GlossT
          Jan, 1975: Right I/O, followed by RPLND
          Dec, 2009: Left I/O, followed by 3xBEP

          Comment


          • #6
            Thanks Davepet.
            Jan 2012 - Pain and swelling
            March 2012 - return to Doc
            March 2012 - Ultra sound detects 4 cm mass
            April 2012 - I/O
            April 2012 - Mature (differentiated) teratoma
            April 2012 - CT Scan no abnormalities found

            Comment


            • #7
              It starts to look promising until you read stuff like this:
              http://www.medscape.com/viewarticle/458851_2

              Scroll back and forth through the pages.

              A bit like the Hotel California is TC, you can check out but never leave.

              Thinking of you all.
              Jan 2012 - Pain and swelling
              March 2012 - return to Doc
              March 2012 - Ultra sound detects 4 cm mass
              April 2012 - I/O
              April 2012 - Mature (differentiated) teratoma
              April 2012 - CT Scan no abnormalities found

              Comment


              • #8
                I was given the unoffical results of the CT scan over the telephone, unofficial in that my surgeon is on annual leave, they said that no abnormalities were found.

                It still makes you wonder if the secretary reads this right or am I getting paranoid now, lol.

                So I need to wait to see the full report when my surgeon returns and then see the oncologist at Christies, fingers crossed, thanks for all the support you have all given me, this is a very helpful website I'm glad I found it, thank you America for this resource.
                Jan 2012 - Pain and swelling
                March 2012 - return to Doc
                March 2012 - Ultra sound detects 4 cm mass
                April 2012 - I/O
                April 2012 - Mature (differentiated) teratoma
                April 2012 - CT Scan no abnormalities found

                Comment


                • #9
                  Hi Jules,
                  I would not worry about the secretary making a mistake in reading the report. If anything showed up, the report would read much differently. Also, they would most likely have the Doctor see you and make it a priority to inform you. If you are worried, and even if your not, it's always a good idea to request copies of reports and tests so you can have a copy on file for future reference.

                  Wishing you the best,
                  Diane
                  Cook/Maid/Chauffeur/ATM Machine/Personal Asst. to Austin

                  12/07/11 I/O AFP: 291 hCG: 151
                  12/08/11 CT Scan, Xrays - clear
                  12/15/11 Non Seminoma Stage1-B
                  EC, Teratoma, Yolk Sac, Intratubular
                  4/21/12 Relapse- Start 3XBEP
                  6/25/12 Finished BEP
                  7/02/12 Markers and CT Scan normal
                  10/3/12 3 month post-chemo check-up - All Clear!
                  2/28/13 8 month post-chemo check-up - All Clear!
                  6/30/13 ONE YEAR- ALL CLEAR!!
                  2/14/14 20 month post-chemo check-up - All Clear!

                  Comment


                  • #10
                    Thanks for your support Dianne.
                    Jan 2012 - Pain and swelling
                    March 2012 - return to Doc
                    March 2012 - Ultra sound detects 4 cm mass
                    April 2012 - I/O
                    April 2012 - Mature (differentiated) teratoma
                    April 2012 - CT Scan no abnormalities found

                    Comment


                    • #11
                      Jules chances are it is not that difficult to read and consultants secretary is often pretty knowledgeable, apart from details of what they had actually scanned mine was a whole four words long!
                      Feb 12 - Ultrasound confirms suspicious swelling, AFP 2, HGC 3, LDH 644, CT Scan - clear. Urologist says probably tumour
                      28 Feb 12 - Left I/O Classic Seminoma (Alveolar) 3.9cm max, no LVI or RTI, encapsulated and excised. pT1. AFP 2, HGC <1
                      Apr / May / Aug 12 / Dec 12 / Mar 13 (notionally 1 Year) - Oncologist - All clear inc CT / CXR
                      ~Aug - next planned surveillance

                      Grumpy is just a 20 year old nickname not an instruction Okay

                      Comment

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