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That IS awesome news Kanga. Congratulations! Jack-were you able to get the scans today? Not sure how much, if any, snow you guys got up there yesterday.
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Yup got the scans this morning... Have my follow up in 15 mins!Comment
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Wow, that's cool that you get the follow up right after the scan. I usually have to wait a few days at least. Post a pic of your clean scan. I know that you beat it and now you get to start the next stage of this journey....surveillance.
I love the pic you put up the other day of your diploma and victory sign.
I'll have to add a few pics of mine shortly.
- Matt
Did you do a share photo or upload it as an attachment ?....never mind, I just figured it out.Last edited by JeskiM69; 03-06-15, 02:43 PM.March 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
March 13th: Left IO 100% Classic Seminoma
6.3 x 5.1 x 3.8 cm, no invasion of anything
LDH never fully normalized
Stage: IS
Watchful Waiting
May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
May 12th: started 3xBEP
Neupogen during Cycle 2 and 3
July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
August 4th: Post Chemo CT/PET scan
September 4th: Port removed
Jan 9th 2019: 4.5 YEARS ALL CLEAR !Comment
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Here's my pic from the 4 Week Post Chemo PET Scan.
- MattMarch 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
March 13th: Left IO 100% Classic Seminoma
6.3 x 5.1 x 3.8 cm, no invasion of anything
LDH never fully normalized
Stage: IS
Watchful Waiting
May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
May 12th: started 3xBEP
Neupogen during Cycle 2 and 3
July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
August 4th: Post Chemo CT/PET scan
September 4th: Port removed
Jan 9th 2019: 4.5 YEARS ALL CLEAR !Comment
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Here's why I started chemo:
Anywhere from 2 to 4 nodes....too hard to tell.
and of course loosing the hair:
- MattMarch 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
March 13th: Left IO 100% Classic Seminoma
6.3 x 5.1 x 3.8 cm, no invasion of anything
LDH never fully normalized
Stage: IS
Watchful Waiting
May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
May 12th: started 3xBEP
Neupogen during Cycle 2 and 3
July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
August 4th: Post Chemo CT/PET scan
September 4th: Port removed
Jan 9th 2019: 4.5 YEARS ALL CLEAR !Comment
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and last but not least ....me being a dork moments after getting my port accessed for the first time.
Enjoy.
- MattMarch 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
March 13th: Left IO 100% Classic Seminoma
6.3 x 5.1 x 3.8 cm, no invasion of anything
LDH never fully normalized
Stage: IS
Watchful Waiting
May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
May 12th: started 3xBEP
Neupogen during Cycle 2 and 3
July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
August 4th: Post Chemo CT/PET scan
September 4th: Port removed
Jan 9th 2019: 4.5 YEARS ALL CLEAR !Comment
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Thanks for posting the pics! Jack, I'm sure we're all anxiously awaiting your report!Comment
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Javan, you got that right; I am sitting here at work and keep refreshing this thread to see how Jack did....
C'mon Jack....I can't wait to hear that you are clear !!!
- MattMarch 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
March 13th: Left IO 100% Classic Seminoma
6.3 x 5.1 x 3.8 cm, no invasion of anything
LDH never fully normalized
Stage: IS
Watchful Waiting
May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
May 12th: started 3xBEP
Neupogen during Cycle 2 and 3
July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
August 4th: Post Chemo CT/PET scan
September 4th: Port removed
Jan 9th 2019: 4.5 YEARS ALL CLEAR !Comment
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Me too. But I have to leave in a minute!Comment
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Well I didn't get the news I wanted. My nodes shrunk to about 1.5 cm so I need the rplnd surgery. Also the 5 mm density in my lung shrunk, which makes my onc think it was cAncer. He talked about having a surgery to have that removed too.
I was referred to john Hopkins as they are one of the best in the nation for both of these surgeries. I have appts on March 24 and 27, one with an urological oncologist and one with the lung specialist.
Pretty bummed out right nowComment
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Jack,
I am so sorry....I don't know what to say. Looking for some good words to say and all I can think of is this: I am pretty bummed myself right now.
I sent you a PM.
I do know this: You will still get cured !!!
- MattMarch 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
March 13th: Left IO 100% Classic Seminoma
6.3 x 5.1 x 3.8 cm, no invasion of anything
LDH never fully normalized
Stage: IS
Watchful Waiting
May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
May 12th: started 3xBEP
Neupogen during Cycle 2 and 3
July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
August 4th: Post Chemo CT/PET scan
September 4th: Port removed
Jan 9th 2019: 4.5 YEARS ALL CLEAR !Comment
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Jack, I have also sent you a pm. Sorry for the news you received. You will still kick this things ass though.Comment
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Did they talk about another round of BEP?Comment
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No, they never said anything about a 4th round.Comment
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Did you check your inbox?Comment
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