Hey everyone!
Been lurking in the shadows of this forum for a little while... Now that I have more info, I figured it was time to fully get into all this.
Anyway, all started on February 26, 2016- Noticed a lump after having a little pain down there, coupled with watching a video online where "Deadpool" tells you to check yourself down there, because "the alternative is NOT an option". Went into an urgent care expecting an ultrasound, but instead got antibiotics to clear up an "infection". Close, but not really. Wasn't until March 21 that I got into an actual urologist and had the ultrasound the next day. Of course, found a solid mass, and left orchiectomy scheduled.
The surgery was April 14, 2016, and everything went well. Recovery hasn't been that bad, but a couple days ago I got my results.
My first blood work was on March 22, and was as follows...
LDH- 233 U/L (RR: 135-225)
AFP- 2.7 (RR: 0-15.0)
HCG- 0.7 (RR: 0.0-3.0)
The U/S showed a solid mass on my left testicle, and nothing unusual on the right.
The CT I had taken showed no metastasis anywhere, all clear.
The pathology report:
Embryonal carcinoma- 3.2 CM in greatest dimension
Univocal
Confined to testis
Extensive Lymphovascular Invasion
Margins Uninvolved, <0.1cm from tunica vaginalis margin
Intratubular germ cell neoplasia
Epididymis and spermatic cord negative for malignancy
Pathologic stage: pT2, pNX
Tumor mass: 3.2 x 1.9 x 1.8 cm
Anyway, after all that, now I have the big decision. I haven't met with my oncologist yet, but he mentioned my three options over a phone conversation, which were RPLND, surveillance, or some chemo. I've been going over it all in my head, but obviously, not having dealt with this before I have no idea.. I think I'm leaning towards more of the chemo option, even though maybe I could just wait and see. I just don't feel comfortable waiting around for something else to pop up, when potentially I could just knock this beast out once and for all.
Anyone who could help me would be very much appreciated! I think this forum is awesome, it actually so far has really helped me keep my nerves under control! Sorry for sort of the long post, just figured I'd get the full story out!
Thanks in advance! Hope to speak with some of you soon.
Jared
Been lurking in the shadows of this forum for a little while... Now that I have more info, I figured it was time to fully get into all this.
Anyway, all started on February 26, 2016- Noticed a lump after having a little pain down there, coupled with watching a video online where "Deadpool" tells you to check yourself down there, because "the alternative is NOT an option". Went into an urgent care expecting an ultrasound, but instead got antibiotics to clear up an "infection". Close, but not really. Wasn't until March 21 that I got into an actual urologist and had the ultrasound the next day. Of course, found a solid mass, and left orchiectomy scheduled.
The surgery was April 14, 2016, and everything went well. Recovery hasn't been that bad, but a couple days ago I got my results.
My first blood work was on March 22, and was as follows...
LDH- 233 U/L (RR: 135-225)
AFP- 2.7 (RR: 0-15.0)
HCG- 0.7 (RR: 0.0-3.0)
The U/S showed a solid mass on my left testicle, and nothing unusual on the right.
The CT I had taken showed no metastasis anywhere, all clear.
The pathology report:
Embryonal carcinoma- 3.2 CM in greatest dimension
Univocal
Confined to testis
Extensive Lymphovascular Invasion
Margins Uninvolved, <0.1cm from tunica vaginalis margin
Intratubular germ cell neoplasia
Epididymis and spermatic cord negative for malignancy
Pathologic stage: pT2, pNX
Tumor mass: 3.2 x 1.9 x 1.8 cm
Anyway, after all that, now I have the big decision. I haven't met with my oncologist yet, but he mentioned my three options over a phone conversation, which were RPLND, surveillance, or some chemo. I've been going over it all in my head, but obviously, not having dealt with this before I have no idea.. I think I'm leaning towards more of the chemo option, even though maybe I could just wait and see. I just don't feel comfortable waiting around for something else to pop up, when potentially I could just knock this beast out once and for all.
Anyone who could help me would be very much appreciated! I think this forum is awesome, it actually so far has really helped me keep my nerves under control! Sorry for sort of the long post, just figured I'd get the full story out!
Thanks in advance! Hope to speak with some of you soon.
Jared
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