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  • Brief Story

    Hi All,

    I got to join the club on September 1, with a removal of the left testicle and a diagnosis of pure seminoma, pT1 w/rete testis invasion, tunica albuginea invasion, but that's it. Tumor markers we negative before surgery. I feel fortunate that's the current diagnosis, and I am now on surveillance, with my first CT scan and tumor markers negative as of September 6.

    The current issue - I paranoid I'm feeling lymph nodes everywhere. I've enormous respect for everyone who's story I've read here, and have appreciated seeing them.

    Thanks.
    08/25/2016: Ultrasound
    08/26/2016: Tumor markers negative
    09/01/2016: Left Orch. - 100% Seminoma, Rete Testes invastion, nothing else
    09/06/2016: CT Scan (Abd/Pelvis), Chest X-ray negative
    01/25/2017: CT Scan (Abd/Pelvis), Chest X-ray and markers negative
    05/27/2017: CT Scan (Abd/Pelvis), Chest X-ray and markers negative
    09/27/2017: CT Scan(Abd) and markers negative

  • #2
    You are extra.Better than that noone can.Remove that crap before markers!Don't worry.Paranoia is different type of illines
    On left testicle.It was removed.Diagnose: malignant Sertoli–Leydig cell tumour in stage 3.I had mets in lymph,liver and lungs.I had 4xBEP.All cleared after that.Third month in remission.

    Comment


    • #3
      Hi weapau,

      Sad to welcome you to the club, but here you are and this is a great forum to be on. Congratulations on the your first negative scan!

      A negative scan to lymph node that is tangible within a months time would be unlikely with seminoma, it is the slower growing of the TC cancers. Try to find ways that help you manage with the worry of recurrence. Meditation worked well for me! The more negative scans you get, the easier it will become!

      How are you feeling after your I/O? Recovered well?
      9/27/2011 - Mass detected
      10/4/2011 - Left I/O; Seminoma; Stage I
      11-12/8/2011 - Radiation therapy
      2012 - 2013 - Surveillance
      2/6/2014 - bHCG 7.3, then 9.2
      2/10/2014 - Recurrence confirmed, CT scan detected a chest tumor: 7.1 x 5.6 x 8.7 cm in diameter. Also a lymph node 1.4 x 1.0.
      2/17/2014 - 3xBEP
      5/12/2014 - Tumor completely resolved
      9/12/2014 - New nodule on CT scan
      11/11/2014 - Nodule increased from 1.2 x 0.7 cm to 2.9 x 0.9 cm.
      12/8/2014 - HDC Autologous Stem Cell Transpant in Indianapolis
      1/16/2015 - Tumor completely resolve!
      3-6/2016 - started having severe and worsening headaches
      6/28/2016 - 9.8cm brain tumor detected; emergency brain surgery
      8/10/2016 - Radiation (6 weeks) to entire brain and spine to treat brain tumor (suspected leptomeningeal disease)

      Comment


      • #4
        Originally posted by weapau View Post
        The current issue - I paranoid I'm feeling lymph nodes everywhere.
        Well, you need to stop doing that, you will just make yourself crazy. Your surveillance will catch ANY recurrence long before you can feel it.... Trust your surveillance.

        Dave

        Jan, 1975: Right I/O, followed by RPLND
        Dec, 2009: Left I/O, followed by 3xBEP

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        • #5
          Aleksandr Isayevich Solzhenitsyn had seminoma in far 1952 when survival rate was 10%.He cured.

          On left testicle.It was removed.Diagnose: malignant Sertoli–Leydig cell tumour in stage 3.I had mets in lymph,liver and lungs.I had 4xBEP.All cleared after that.Third month in remission.

          Comment


          • #6
            We're basically twins! Has my orchie on September 2nd 2016. I had hellish scan anxiety in the two weeks prior to orchie and 4 weeks following. On surveillance now. Ultimately Dave is right. But damn last week was the first week it wasn't always looming in my thoughts.
            8-17-16 Sonogram reveals mass. 28 y/o.
            8-22-16 AFP = 176, hCG = 50
            9-1-16 CT and chest x-ray clear
            9-2-16 Right R/O
            9-19-16 Mixed germ cell (64% teratoma, 20% seminoma, 10% yolk sac, 5% EC, 1% choriocarcinoma.)
            Stage 1a. Observation.

            10-21-16 Blood & chest x-ray normal
            12-20-16 Blood & CT normal

            Comment


            • #7
              CT and bloodwork all clear today!
              08/25/2016: Ultrasound
              08/26/2016: Tumor markers negative
              09/01/2016: Left Orch. - 100% Seminoma, Rete Testes invastion, nothing else
              09/06/2016: CT Scan (Abd/Pelvis), Chest X-ray negative
              01/25/2017: CT Scan (Abd/Pelvis), Chest X-ray and markers negative
              05/27/2017: CT Scan (Abd/Pelvis), Chest X-ray and markers negative
              09/27/2017: CT Scan(Abd) and markers negative

              Comment


              • #8
                CT and blood work all clear 9/27/2017!
                08/25/2016: Ultrasound
                08/26/2016: Tumor markers negative
                09/01/2016: Left Orch. - 100% Seminoma, Rete Testes invastion, nothing else
                09/06/2016: CT Scan (Abd/Pelvis), Chest X-ray negative
                01/25/2017: CT Scan (Abd/Pelvis), Chest X-ray and markers negative
                05/27/2017: CT Scan (Abd/Pelvis), Chest X-ray and markers negative
                09/27/2017: CT Scan(Abd) and markers negative

                Comment


                • #9
                  excellent. update your signature!
                  6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
                  6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
                  7/7/15: bHCG 56, AFP 42, LDH 322
                  7/13/15 - 9/18/15: 4xEP
                  10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
                  10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
                  4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
                  4/20/16: RPLND @ IU - teratoma only!
                  9/18/2017 all clears up to this date!

                  Comment

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