17 year old son will need BEP due to rising markers

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  • Trekga
    Registered User
    • Jan 2017
    • 882
    #1

    17 year old son will need BEP due to rising markers

    Blood Work
    Pre- surgery
    12/21/16
    B-HCG 1065.15
    AFP-298.8
    LDH-1119

    1 week post surgery
    12/29/16
    B-HCG 642.37
    AFP- 149.8
    LDH- 540.6

    3 weeks post surgery
    1/12/17
    B-HCG 453.63
    AFP- 80.1
    LDH-440.3

    4 weeks post surgery
    1/19/17 over phone
    B-HCG over 712
    AFP- still waiting
    LDH-509


    Meet with Oncologist on Tuesday, 1/24/17. His pre-surgery scan was clear, will they order another scan before BEP or after?
    Any other teens here or parents of teens still high school here? My son is still not interested in sperm banking, but I suppose in your Junior year of HS it is not top priority.
    Son Grant
    dx 12/21/16 at age 17
    BEP x3
    Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
    2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
    Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.
    Tags: None
  • RJKD
    Registered User
    • Jul 2015
    • 740
    #2
    There's no need for another scan before chemo. He should definitely do sperm banking. There is a relatively high chance he will lose his fertility.
    Diagnosed at age 31. Treated in NYC. Now living in Ottawa, ON, Canada.

    7/1/2015: felt tiny lump on side of R testicle
    7/30/2015: Ultrasound shows 2 intra-testicular masses.
    7/31/2015: tumor markers normal, CXR clear
    8/5/2015: R orchiectomy
    8/11/2015: Pathology: 1.2 x 1.0 x 1.0 cm, embryonal 80%, seminoma 20%, with LVI and rete testis invasion
    8/14/2015: CT abdomen/pelvis clear, Stage 1b
    8/24/2015: started 1 x BEP

    Comment

    • Trekga
      Registered User
      • Jan 2017
      • 882
      #3
      Thanks for answering. I will try to sway him, and so will his dad, but he has no interest probably due to his Autism.
      How do I add a signature?
      Son Grant
      dx 12/21/16 at age 17
      BEP x3
      Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
      2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
      Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

      Comment

      • Chemin
        Registered User
        • Feb 2014
        • 137
        #4
        Go into your account and scroll down to Detail Options Visible Post Elements. Check the box show signature and avatar. Click on EDIT post signature. A box to write in will appear and then you need to save it.
        My son was 18, just graduated high school when he got TC. He wasn't interested in banking but we convinced him it will matter in his future.
        9/6/13 Left I/O. 18 year old son diagnosed 9/13/13 Stage 2C. Path report: embryonal and yolk sac with spermatic cord involvement and lymphatic invasion BEP x 3 finished 11/25/13. PC-RPLND with Dr. Foster at IU on 1/21/14. Found only dead cancer! Surveillance as of 1/23/14. All clear as of 5/2018.

        Comment

        • Nish115
          Registered User
          • Nov 2016
          • 270
          #5
          As the others have said the sperm banking should be a high priority, but no idea how you can convince him. Maybe get someone out of the family to help?

          I had a scan a day before I started BEP but I wouldn't say it's required. Down to your oncologist I guess.
          24 year old diagnosed 6/11/16
          Pre/o markers 9/11/16 - HCG 15, AFP 210, LDH 539
          Pre/o CT Clear
          Non-seminoma (80% embryonal carcinoma, 10% yolk sac tumour, 5% chorea carcinoma, 5% seminoma)
          Post-op markers - 14/12/16 - HCG 35, AFP 1050, LDH 430
          Post-op CT with one enlarged lymph node - 1.5x1cm
          Borderline stage 2B/3B
          BEPx3 started 15/12/16 (Borderline BEPx4 - Advise of Dr. E to only do 3 rounds)
          CT and markers clear - in remission - 28/2/16

          Comment

          • Trekga
            Registered User
            • Jan 2017
            • 882
            #6
            Thank you for replying, and for telling how to make a signature. Still not what I intended, but at least some info when I post.
            Son Grant
            dx 12/21/16 at age 17
            BEP x3
            Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
            2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
            Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

            Comment

            • Nish115
              Registered User
              • Nov 2016
              • 270
              #7
              Just a note on the sperm banking, whilst I highly encourage it, my oncologist said that if you went to the sperm bank after your I/O and before you start chemo and you are able to produce a decent sample, the chances are after BEPx3 you will still be fertile. So just because your son is doing BEPx3 doesn't mean he is likely to become infertile, but it is probably one of the most likely long term effects so sperm banking should always be done. Also, without sperm banking you'll never know how fertile he is in the first place.
              24 year old diagnosed 6/11/16
              Pre/o markers 9/11/16 - HCG 15, AFP 210, LDH 539
              Pre/o CT Clear
              Non-seminoma (80% embryonal carcinoma, 10% yolk sac tumour, 5% chorea carcinoma, 5% seminoma)
              Post-op markers - 14/12/16 - HCG 35, AFP 1050, LDH 430
              Post-op CT with one enlarged lymph node - 1.5x1cm
              Borderline stage 2B/3B
              BEPx3 started 15/12/16 (Borderline BEPx4 - Advise of Dr. E to only do 3 rounds)
              CT and markers clear - in remission - 28/2/16

              Comment

              • RJKD
                Registered User
                • Jul 2015
                • 740
                #8
                I significant percentage of men who have TC are either infertile or subfertile to start with. I would, without question, sperm bank at this time. The priorities of a 17 year old are very different than when one is 27 or 37. He may very well want children.
                Diagnosed at age 31. Treated in NYC. Now living in Ottawa, ON, Canada.

                7/1/2015: felt tiny lump on side of R testicle
                7/30/2015: Ultrasound shows 2 intra-testicular masses.
                7/31/2015: tumor markers normal, CXR clear
                8/5/2015: R orchiectomy
                8/11/2015: Pathology: 1.2 x 1.0 x 1.0 cm, embryonal 80%, seminoma 20%, with LVI and rete testis invasion
                8/14/2015: CT abdomen/pelvis clear, Stage 1b
                8/24/2015: started 1 x BEP

                Comment

                • TC Mom
                  Registered User
                  • May 2017
                  • 56
                  #9
                  Trekga - did you get him to bank? How is he doing now? I have a 15 year old, newly diagnosed, still in the staging process. He insists on banking though, as he wants so badly to be a daddy one day.
                  Mom to Zachary - dx. at the age of 15 - Stage IIIC mixed germ cell
                  5.10.17 - Initial diagnosis
                  Baseline markers: BhCG: 43,882 AFP: 138 LDH: 328
                  5.16.17 - Left Radical orchiectomy (total tumor size 7x5x4cm)
                  5.31.17 - CT Scan showed mets to retroperitoneal LNs (5.7x6.4x9.4cm, 1.7x2.6x3.5cm, 3.1x4.5x6.1cm)
                  PATH: Mixed germ cell (75% teratoma, 15% embryonal ca, 8% yolk sac tumor, & 2% trophoblastic tumor) Spermatic cord margin, neg. Germ cell neoplasia in situ present.

                  Post-op markers: BhCG: 73,837 AFP: 38 LDH: 412

                  BEP#1 6.9.17 BhCG:77,721, AFP 34
                  BEP#2 7.3.17 BhCG: 210, AFP: 6
                  BEP#3 7.24.17 BhCG: 19 AFP: 3
                  BEP#4 8.14.17 BhCG: 4.59 AFP: 5

                  8.28.17 BhCG 2.46, AFP 6
                  9.7.17 BhCG 1.78, AFP 3

                  RPLND 9.14.17 - path report showed 100% teratoma in nodes removed! ALL CLEAR!

                  Comment

                  • Trekga
                    Registered User
                    • Jan 2017
                    • 882
                    #10
                    TC MOM~ Yes, if your son is interested than pursue NOW before your apptointments on the 31st.
                    No my son did not bank. He has Autism, and he says he has never masturbated, so the idea of doing so in a room, with magazines/movies in a cup, several times in one week stressed him out. His right spermatic cord was removed during RNPLD since it could not be spared during the post chemo surgery. So he will have to pursue other ways to father a child if indeed it he decides to later in life. He says he absolutely no drive now, but he told me today, he really did not have one prior to getting dx with TC. He has not had his testoserone tested yet.
                    Son Grant
                    dx 12/21/16 at age 17
                    BEP x3
                    Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
                    2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
                    Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

                    Comment

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