Hello, my name is Ben, I'm from Southaven, MS (in the greater Memphis, TN area). I've been recently diagnosed with Pure Embryonal Carcinoma. I have scanned these forums the past week and decided to post in hopes to clear my mind and stay focused. I'll go ahead and give the run down:
Around 9/6/2017--Noticed lump on left testicle
9/18/2017--Scheduled an appointment to see urologist, noticing some aching
9/25/2017--Met with urologist, he felt the testicles and noticed I was more tender on the left side, he wanted to rule out infection, went to get a scrotal ultrasound same afternoon and confirmed mass. Urologist says it's a tumor and we'll need to get it out as soon as possible.
9/28/2017--Performed Orchiectomy on Left Testicle, sent off to pathology
10/5/2017--Followed up with urologist and did CT scan, urologist said CT scan looks good, he said he'll have the radiologist look over it with a fine tooth comb, diagnosed with stage II Pure Embryonal Carcinoma, 40 to 50% chance of recurrence. He referred me to an oncologist at the West Clinic, appointment with the Oncologist is on 10/16/2017.
Results from Pathology
-Histologic type: Pure Embryonal Carcinoma
-Tumor size: 3.0 X 2.5 X 2.5 cm
-Extent: Focal extension into hilar adipose tissue
-Surgical Margins: Negative for tumor
-Lymphovascular invasion: Present
-Germ cell neoplasia in-situ (GCNIS): Present
-Rete testis involvement: Absent
-Necrosis: Present
-Tumor focality: Unifocal
-Pathologic stage: pT2 Nx Mx S0
-Focal sertoli cell nodule adjacent to tumor
-Additional pathologic findings: Epididymal cyst. Unremarkable spermatic cord.
-Serum tumor markers are reported to be within normal limits (HCG <1, AFP 5.7)
My mind has been all over the place these past two weeks. I'm 32 years old, married with 2 children, ages 3 and 1. I just can't imagine leaving my family like this. I've radically changed my diet, cutting out refined sugars, eating much more raw vegetables to the point where it's detoxing my liver. I've been taking supplements to better myself and exercising every day to better myself. I am overweight. I've been feeling out of control and my wife does a good job to stay focused saying this cancer is highly treatable/curable. I've read into the treatment options for this type, surveillance, chemo, or RPLND. RPLND scares me, chemo I'm worried about the long term side affects, possible second cancers. I'm wondering what questions I need to prepare myself with, when I go see the oncologist. Also, we have a family vacation to Disney World coming up from 10/28 to 11/5, that we have been planning for a year and a half, I'm not sure how this will play out after meeting with the oncologist.
Thanks,
Ben
Around 9/6/2017--Noticed lump on left testicle
9/18/2017--Scheduled an appointment to see urologist, noticing some aching
9/25/2017--Met with urologist, he felt the testicles and noticed I was more tender on the left side, he wanted to rule out infection, went to get a scrotal ultrasound same afternoon and confirmed mass. Urologist says it's a tumor and we'll need to get it out as soon as possible.
9/28/2017--Performed Orchiectomy on Left Testicle, sent off to pathology
10/5/2017--Followed up with urologist and did CT scan, urologist said CT scan looks good, he said he'll have the radiologist look over it with a fine tooth comb, diagnosed with stage II Pure Embryonal Carcinoma, 40 to 50% chance of recurrence. He referred me to an oncologist at the West Clinic, appointment with the Oncologist is on 10/16/2017.
Results from Pathology
-Histologic type: Pure Embryonal Carcinoma
-Tumor size: 3.0 X 2.5 X 2.5 cm
-Extent: Focal extension into hilar adipose tissue
-Surgical Margins: Negative for tumor
-Lymphovascular invasion: Present
-Germ cell neoplasia in-situ (GCNIS): Present
-Rete testis involvement: Absent
-Necrosis: Present
-Tumor focality: Unifocal
-Pathologic stage: pT2 Nx Mx S0
-Focal sertoli cell nodule adjacent to tumor
-Additional pathologic findings: Epididymal cyst. Unremarkable spermatic cord.
-Serum tumor markers are reported to be within normal limits (HCG <1, AFP 5.7)
My mind has been all over the place these past two weeks. I'm 32 years old, married with 2 children, ages 3 and 1. I just can't imagine leaving my family like this. I've radically changed my diet, cutting out refined sugars, eating much more raw vegetables to the point where it's detoxing my liver. I've been taking supplements to better myself and exercising every day to better myself. I am overweight. I've been feeling out of control and my wife does a good job to stay focused saying this cancer is highly treatable/curable. I've read into the treatment options for this type, surveillance, chemo, or RPLND. RPLND scares me, chemo I'm worried about the long term side affects, possible second cancers. I'm wondering what questions I need to prepare myself with, when I go see the oncologist. Also, we have a family vacation to Disney World coming up from 10/28 to 11/5, that we have been planning for a year and a half, I'm not sure how this will play out after meeting with the oncologist.
Thanks,
Ben
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