I'm sorry to hear of the difficulty you're facing. I also found it difficult to work with clinicians who are rigorously inflexible around "evidence-based" medicine. I don't know how many times I had to look my oncologist in the eye and ask "What if a CT isn't an option?" It took nine months before she heard what I was saying, so I switched to one who was more accomodating. I feel lucky I was able to find one.
I thought the article you posted by Giguere and colleagues was very interesting. I'm looking forward to reading beyond the abstract. (fortunately I work at a medical school, so I should be able to get the whole article).
I hope you can find someone willing to work with you - I only wish I was well enough connected to suggest a specific surgeon for you.
It is not unheard of to treat testicular cancer without orchidectomy (though this is usually for men with one remaining testicle, or who have GCT in both testicles - and often still involves surgery using an inguinal approach). Have you found anyone willing to talk with you about what treating the cancer with chemo alone, or frequent surveillance alone, might entail?
Again, hope you find what you're looking for, and I'm sorry that the journey has been so arduous.
I thought the article you posted by Giguere and colleagues was very interesting. I'm looking forward to reading beyond the abstract. (fortunately I work at a medical school, so I should be able to get the whole article).
I hope you can find someone willing to work with you - I only wish I was well enough connected to suggest a specific surgeon for you.
It is not unheard of to treat testicular cancer without orchidectomy (though this is usually for men with one remaining testicle, or who have GCT in both testicles - and often still involves surgery using an inguinal approach). Have you found anyone willing to talk with you about what treating the cancer with chemo alone, or frequent surveillance alone, might entail?
Again, hope you find what you're looking for, and I'm sorry that the journey has been so arduous.
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