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Second Opinion W/O The "Second Opinion"

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  • Second Opinion W/O The "Second Opinion"


    Hi All,
    New guy here! I was just diagnosed with reoccurred IIc seminoma here in Charlotte, NC. While Levine Cancer center is a reputable big city hospital group, I am having them forward my records over to IU health for me to get a second opinion.
    While I am fully prepared to make the trip for a formal visit, I truly believe that the chemo regimen proposed by my oncologist here is correct and as straight-forward as it can be (3 BEP/possible surgery post-chemo), but I just want to get the "expert" stamp of approval. Has anyone had success in emailing Dr Einhorn (or a colleague) to get their opinion? Or has anyone's Oncologist reached out to IU to get an opinion? Just want to get as much info as possible as efficiently as possible.


    _____________________________________________

    4/2007 - HS Junior, Pain in LT
    5/2007 - OI to remove LT
    6/2007-7/2013 - Active Monitoring;
    5/2018 - ER visit for abdominal pain
    5/2018 - diagnosed with IIc Seminoma reccurrance


  • #2
    Dr E has always always always responded back to eith my emails or my doctors emails. He is very approachable
    Jan 2012- U/S mass in Left testicle
    Feb 2012- I/O performed to remove cancer
    Mar 1,2012- pathology pure seminoma
    Mar 7, 2012 PET SCAN stage IIa
    April 2012 Mayo clinic carbolite.
    May 2012 carbolite failed, started BEP x3
    August 7th 2012- BEP complete
    April 2013 CT/PET show relapse
    May 2013 RPLND
    Aug 2013 Relapse again Started VIeP x2
    Oct 2013 HDC AUTOLOGOUS
    Dec 2013 HDC completed CT/PETSCAN 1.1 cm x .8 cm right lower lung lobe
    Feb 2014 confirmed false positive all clear FINALLY !
    Jan 2015 1 year cancer free Pet/CT scan
    Jan 2016 2 years cancer free "Pet/CT scan
    Jan 2017 3 years cancer free "Pet/CT scan
    Jab 2018 4 years cancer free "Pet/CT scan, labs, xrays

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    • #3
      So sorry about reoccurance. Yes, Dr. E will respond- leinhorn@iu.edu.
      Keep us updated, and a 2nd opinion is always good if beyond stage 1 or a reoccurance so far out. Please keep us updated.
      Son Grant
      dx 12/21/16 at age 17

      BEP x3
      Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
      2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
      Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

      Comment


      • #4
        I emailed him this morning (saturday) and within an hour he emails me back, amazing! He mentioned he wants to see me there in-person given the long stint prior to re-occurrence. Said 4 BEPs are likely necessary, but post-chemo maybe not.

        Thanks for the kind words and advice!

        Comment


        • #5
          Wow 11 years clear & now a recurrence. I trust they did an U/S on righty to rule out a second primary?

          Dave
          Jan, 1975: Right I/O, followed by RPLND
          Dec, 2009: Left I/O, followed by 3xBEP

          Comment


          • #6
            Yes I have been dubbed a "medical miracle!" and yes, they did CT on pelvis, abdomen, chest, brain and bone scan. all are negative except for the one tumor in abdomen. just started first day of 3 BEPs today!

            Comment


            • #7
              But did they do an ultrasound on the remaining testicle? At 11 years I would be suspicious of a second primary tumor.
              Jan, 1975: Right I/O, followed by RPLND
              Dec, 2009: Left I/O, followed by 3xBEP

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