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Just found out yesterday.... surgery friday.... anxiety through the roof

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  • #16
    Just got a copy of my pathology report; can't tell too much without the results of my scans. Evidently my doc told me the size wrong, it was a lot bigger than I thought, and there were 2 masses in the same teste. But here is what it says:

    tumor focality: multifocal
    tumor size: 2.5 x 2.5 x 2cm and 2 x 2 x 1.5cm
    histologic type: seminoma
    tumor extension: limited to testes
    margin: spermatic cord uninvolved
    lymphovascular invasion: present

    pathological stage:
    primary tumor: pT2
    unable to asses regional lymph nodes or metastasis

    Pre-orchiectomy serum tumor markers: within normal limits

    So it appears that I had two masses instead of 1, and larger than originally told. Since there is lymphovascular invasion (and the tumor was described as "hypervascular") that immediately puts me to at least stage 1B... Not sure how that would affect treatment really. Sometimes I wish I was an oncology nurse instead of an ICU nurse, haha.

    Now to sit back and wait for results on Friday...

    My story so far: 7/22/2018: Discovery rock hard mass on testicle while on vacation 7/26/2018: Urologist confirms mass; immediately get blood work and ultrasound. 7/31/2018: Ultrasound result show mass in right testicle, "highly suspicious of neoplasm". 8/3/2018: Right I/O 8/7/2018: Pathology confirms 100% seminoma. Multifocal. 2 tumors, both 2.5 x 2.5 x 2cm. LVI present. No cord involvement. 8/14/2018: CT of chest/abdomen/pelvis complete 8/17/2018: CT of chest clear, abdomen shows one lymph node 1.7 x 1.3. Staged IIA 8/22/2018: First radiology appointment, debating surveillance vs 3 weeks radiation

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    • #17
      Sorry about Cigna issues- we have had same insurance company since last March and they are the WORST. There are a few other TC patients w/Cigna and all have similar issues. Hopefully your scans are clear.
      Son Grant
      dx 12/21/16 at age 17

      BEP x3
      Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
      2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
      Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

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      • #18
        This is almost the best news you can get following a cancer diagnosis. Be proud you caught this crap early and know you have a lot of options and little fear ahead of you.
        Diagnosed 4/17/08
        Right orchiectomy 4/18/08
        Pure choriocarcinoma; HCG 715,000; lungs, lymphnodes, liver, and random other places
        4X VIP chemo at IU with Dr. Einhorn 4/25/08-7/4/08
        HCG down to 7.2 10/28/08
        HCG back up to 198 12/29/08
        1 X PVB 1/2/09-1/6/09
        2 X HDC w/ stem cell rescue 2/4/09-3/14/09
        Follow-up with Dr. Einhorn 4/22/09
        HCG 1.2
        3 rounds, 21 days, twice daily, VP-16 50mg 4/24/09-7/10/09

        http://www.caringbridge.org/visit/johncovell

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        • #19
          Thanks Trekga, my fingers are crossed that things are clear too. Sorry you had to have the same issues!

          TC Destroyer- I definitely appreciate the uplifting words! Yeah so far I feel like I've been incredibly lucky with everything. It's still a little nerve wracking while I wait for the scan results, but that's to be expected. If things keep going as well as they have been then I'll thank God and my lucky stars that it wasn't any worse.

          And thanks to everyone else that has posted replies to me as well! It's been incredibly helpful in managing my anxiety and stress, and I really appreciate everything.
          My story so far: 7/22/2018: Discovery rock hard mass on testicle while on vacation 7/26/2018: Urologist confirms mass; immediately get blood work and ultrasound. 7/31/2018: Ultrasound result show mass in right testicle, "highly suspicious of neoplasm". 8/3/2018: Right I/O 8/7/2018: Pathology confirms 100% seminoma. Multifocal. 2 tumors, both 2.5 x 2.5 x 2cm. LVI present. No cord involvement. 8/14/2018: CT of chest/abdomen/pelvis complete 8/17/2018: CT of chest clear, abdomen shows one lymph node 1.7 x 1.3. Staged IIA 8/22/2018: First radiology appointment, debating surveillance vs 3 weeks radiation

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          • #20
            So I got my results online via a "my chart" system my hospital has. Everything looks great! No metastatic disease in the chest. My only question is where they say this:

            "No definite evidence of metastatic disease in the abdomen or pelvis.
            2. Unenlarged calcified left periaortic lymph node is 1.3 x 1.7 cm. This is of indeterminate significance"

            How can a lymph node that is 1.3 x 1.7 be considered unenlarged? I thought the cutoff was 1cm.

            But hey, I don't want to overlook the fact that everything looks great! I'm stoked! But I also don't want the doctors to miss anything that could cause me to get worse. What did you guys think about that one lymph node? Should I get a second opinion, or just let it go?
            My story so far: 7/22/2018: Discovery rock hard mass on testicle while on vacation 7/26/2018: Urologist confirms mass; immediately get blood work and ultrasound. 7/31/2018: Ultrasound result show mass in right testicle, "highly suspicious of neoplasm". 8/3/2018: Right I/O 8/7/2018: Pathology confirms 100% seminoma. Multifocal. 2 tumors, both 2.5 x 2.5 x 2cm. LVI present. No cord involvement. 8/14/2018: CT of chest/abdomen/pelvis complete 8/17/2018: CT of chest clear, abdomen shows one lymph node 1.7 x 1.3. Staged IIA 8/22/2018: First radiology appointment, debating surveillance vs 3 weeks radiation

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            • #21
              Doc said 1 lymph is technically enlarged, so is a concern. 2 weeks of radiation therapy has been scheduled, he seems confident that'll knock it out. If not, chemo time. But still, could be a lot worse!
              My story so far: 7/22/2018: Discovery rock hard mass on testicle while on vacation 7/26/2018: Urologist confirms mass; immediately get blood work and ultrasound. 7/31/2018: Ultrasound result show mass in right testicle, "highly suspicious of neoplasm". 8/3/2018: Right I/O 8/7/2018: Pathology confirms 100% seminoma. Multifocal. 2 tumors, both 2.5 x 2.5 x 2cm. LVI present. No cord involvement. 8/14/2018: CT of chest/abdomen/pelvis complete 8/17/2018: CT of chest clear, abdomen shows one lymph node 1.7 x 1.3. Staged IIA 8/22/2018: First radiology appointment, debating surveillance vs 3 weeks radiation

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