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Newbie in Hillsboro, OR

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  • Newbie in Hillsboro, OR

    Hi guys, My name is Aaron, and I live in Portland metro. It's been a whirlwind 2.5 weeks, and I've read that many of you have had the same experience. On a Tuesday afternoon, I emailed my physician about testicular 'weirdness,' and, by Thursday, I was having an ultrasound. Thirty minutes after my ultrasound, on my way home, my physician called and told me I have a marker/lesion on my right testicle. While talking to her, Urology was calling. At 2:30pm, the same day, I was in consultation with a resident and the supervising urologist. They asked me what i was doing tomorrow, and I asked, "Why?" Surgery, the next day. Thumbs up to Kaiser Permanente for their super quick response.

    Overall, I feel okay. Mentally and emotionally, I'm okay, although I have 'fits' of sadness. I think I am mourning the loss of my right testicle; hope that doesn't sound too stupid. I guess it looks alright down there. My urologist will not consider a prosthetic for six months and the resident says he has removed two from infection in his time as a resident. I'm not even sure it's a covered procedure. The timing kinda sucks too, as I quit my job early July. Thank goodness I bought COBRA!

    I'm surprised by the abdominal pain, and my left testicle occasionally feels strange. There's a spot on my skin glue that seems agitated, intermittently, and driving my car was a bad idea, as it probably uses muscles through the area to push the accelerator and brake. Anyway, I was sure happy to find this forum. It's a wealth of information and support. I had a stage 1a seminoma; blood markers prior to surgery were normal and my CT scan was clear, minus a 5mm lung 'nodule,' which the physician says is highly likely unrelated. Both doctors have recommended 'surveillance,' no chemo or radiation for now. They referred me to a 'cancer counselor,' which was helpful. I am so glad you are all here to share your stories.

    8/17/18 Surgery / Classic germ cell tumor / seminoma / 1a
    Last edited by AaronC; 09-12-18, 03:51 PM.

  • #2
    Hey man, sorry to welcome you. I™m also from Portland and also got treated in Kaiser system (West side hospital).

    As far as seminoma at stage 1a this is about as good as a cancer diagnosis can get.

    I highly recommend to get outside opinion (of Kaiser), if you will pursue adjuvant treatment. Happy to chat about local experience
    Age 31 - Portland, OR
    01NOV16- Pain in right testicle, palpable mass
    13NOV16- R I/O. Markers normal
    27NOV16- Stage Ia non-seminoma, 1.3cm, 100% EC, no LVI
    06DEC16 - CT scan clear
    09DEC16 - Started 1xBEP. Neutropenic at day 15; Worst part for me was bleo (allergic).
    03JAN17- Ended 1xBEP; start surveillance
    18MAR17-2nd pathology report shows 90% EC , 10% seminoma

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    • #3
      Hi Aaron, sorry to hear what you had to go through. I did went through same month ago with slightly worse diagnosis. TC is very curable and yours is least agressive and caught early. Most likely you are cured.

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      • #4
        Hi Aaron, sorry to meet you. Got very similar story, both for diagnosys&state of mind. Hold on.
        45yo, left I/O 07/30/2018, T1 pure seminoma, surveillance...
        Waiting...

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        • #5
          I was stage I seminoma and have been on surveillance for 12 years. There are some TC experts in Portland if you are interested in second opinions. Our friends at the TCRC keep a list at: http://thetcrc.org/experts.html although I do not know any of the ones on the list personally. If I was in Portland, I would go to OHSU and see Dr. Brandon Hayes-Lattin, https://www.ohsu.edu/providers/brand...CE4E087C0FA18E I know him personally and he is an incredible guy, well versed with TC and a specialist in AYA - adolescent and young adult oncology (not sure of your age but that is the 15-39 range for AYA). Besides that, he is also a testicular cancer survivor so he has personal experience.

          Mike
          Oct. 2005 felt lump but waited over 7 months.
          06.15.06 "You have Cancer"
          06.26.06 Left I/O
          06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
          06.30.06 It's Official - Stage I Seminoma
          Surveillance...
          Founded the Testicular Cancer Society
          6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

          For some reason I do not get notices of private messages on here so please feel free to email me directly at mike@tc-cancer.com if you would like to chat privately so as to avoid any delays.

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