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  • #16
    No, it's ok, I was confused with 2xBEP, tumor sizes and elevated marker values in pure seminoma. Please ignore me. You obviously get proper care with biopsy and everything else. Everything makes sense with this new information. I'm still confused only about elevated markers values, it makes no sense that original tumor didn't increase markers, and reccured does, but it looks like that they examined everything and covered all options. But if there is some non-seminoma that they were unable to find, it doesn't matter. Basically chemo is similar for seminoma and non-seminoma so you are definetely on right path.
    45yo, left I/O 07/30/2018, T1 pure seminoma, surveillance...
    Waiting...

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    • #17
      Absolutely I appreciate the support, I can tell you care. Thanks for advice

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      • #18
        Today was the start of my second cycle of BEP. The nurse told me that my neutrophils were low at .7, and that the doctor didn't want to delay treatment so we are moving forward with the second cycle. The told me to be extra careful about exposing myself to people, and the prescribed me an antibiotic if I started to develop a fever over 100.5. the last thing they told me was if that happens go straight to the ER.

        I am a little worried about my blood counts being low, but I am doing everything in my power to be extra cautious to prevent sickness. Hopefully my counts go up on there own.
        Last edited by Doryman; 11-09-20, 09:25 PM.

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        • #19
          Harxxony, why are the markers confusing you? His elevated markers are consistent with seminoma

          Doryman, don't be overly concerned about the counts, everyone should be practicing self isolation right now, anyway. Stay home & stay away from folks as much as possible. Has your doc brought up the possibility of injections to improve blood counts?
          Jan, 1975: Right I/O, followed by RPLND
          Dec, 2009: Left I/O, followed by 3xBEP

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          • #20
            Hi Dave,
            He did mention it but right now he is not to concerned because I am quarantining, and also pretty healthy other wise. We spoke about this happening and he said unless I get sick we are moving forward with chemo. We spoke about getting an Neulasta or neupogen injections, but he said there is a little concern with it because of potential bleomycin interaction causing lung toxicity. Right now it isn't necessary, but when we get to that bridge he said we will talk about how to cross it.

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            • #21
              You are on the right track. I had something similar, the nurses wanted to delay one round because of my neutrophil count but I told them that was unacceptable according to best practices and to talk to the oncologist. the Onco agreed with me and continued treatment.
              6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
              6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
              7/7/15: bHCG 56, AFP 42, LDH 322
              7/13/15: begin 4xEP, end 9/18/15
              10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
              10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
              4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
              4/20/16: RPLND @ IU - teratoma only!
              10/22/19: all clears up to this date!

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              • #22
                Bowie,
                That's awesome makes me feel good that I made the right choice. Did you have to take a Neulasta or neupogen injection?

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                • #23
                  Yes, I did end up getting neulasta between cycles.
                  6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
                  6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
                  7/7/15: bHCG 56, AFP 42, LDH 322
                  7/13/15: begin 4xEP, end 9/18/15
                  10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
                  10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
                  4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
                  4/20/16: RPLND @ IU - teratoma only!
                  10/22/19: all clears up to this date!

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                  • #24
                    Ok, sounds good spoke with my doctor today he said if things don't go up, we will do at shot after bleo next week

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                    • #25
                      Sounds like a plan. I got shots as well, can't recall which type. I might have gotten one for each cycle, but it was a long tome ago now.
                      Jan, 1975: Right I/O, followed by RPLND
                      Dec, 2009: Left I/O, followed by 3xBEP

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                      • #26
                        Dave,
                        Did you remember any negative side effects from the booster shots? My only concern is potential for lung damage since I am still taking Bleomycin.

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                        • #27
                          Quick update, day three of my second BEP cycle done. Feeling alright, ringing in my ears is still happening, some slight neuropathy in hands and feet, and some slight pain in my ribs. Other then that feeling good to be over the hump looking forward to being done with the rest of this week.

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                          • #28
                            Doryman,

                            I took Neupogen. I was unlucky and did experience excruciating bone pain after a couple days. Supposedly you can take Claritin starting a few days before the 1st shot and it will prevent the pain. I don't recall if it is the OTC one or not ... you could ask the doc about it.

                            - Matt
                            March 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
                            March 13th: Left IO 100% Classic Seminoma
                            6.3 x 5.1 x 3.8 cm, no invasion of anything
                            LDH never fully normalized
                            Stage: IS
                            Watchful Waiting
                            May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
                            May 12th: started 3xBEP
                            Neupogen during Cycle 2 and 3
                            July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
                            August 4th: Post Chemo CT/PET scan
                            September 4th: Port removed
                            January 2020: 5.5 YEARS ALL CLEAR !

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                            • #29
                              Matt,
                              Thanks for the pro tip, I will speak with my doctor about it. Any lung issues from taking the shots?

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                              • #30
                                Doryman, I didn't have any side effects from the shots. Also, I have never heard of any problems with them increasing Bleo problems? That is a new one to me.
                                Jan, 1975: Right I/O, followed by RPLND
                                Dec, 2009: Left I/O, followed by 3xBEP

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