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Seminoma Reoccurrence

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  • #31
    Dave,
    That is great news!

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    • #32
      I had the neulasta autoinjector. I did not have any side effects from mine.
      6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
      6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
      7/7/15: bHCG 56, AFP 42, LDH 322
      7/13/15: begin 4xEP, end 9/18/15
      10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
      10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
      4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
      4/20/16: RPLND @ IU - teratoma only!
      10/22/19: all clears up to this date!

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      • #33
        Bowie,
        Thanks for the information on starting to feel a lot better about maybe have to take the shots.

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        • #34
          I am not aware of either Neupogen or Neulasta being associated with any lung issues.

          I did have Bleomycin and had a lung function baseline prior to starting chemo and another one a few after completing chemo. I had a ~12% reduction in lung function after Chemo. I do recall the doctor not being concerned about it as it was not totally unheard of. She did mention that that reduction was likely to be temporary and that I would regain most if not all of it.

          - Matt
          March 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
          March 13th: Left IO 100% Classic Seminoma
          6.3 x 5.1 x 3.8 cm, no invasion of anything
          LDH never fully normalized
          Stage: IS
          Watchful Waiting
          May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
          May 12th: started 3xBEP
          Neupogen during Cycle 2 and 3
          July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
          August 4th: Post Chemo CT/PET scan
          September 4th: Port removed
          January 2020: 5.5 YEARS ALL CLEAR !

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          • #35
            Thanks Matt that's kind of what the doctor has been telling me as well. Could go back to normal or could get worse no one really knows. So far so good no issues with my lungs , just this dang ringing in my ears, and tingling in my extremities.

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            • #36
              Doryman,
              Unfortunately, for me, that ringing never went away, however it becomes less annoying with time & while it is always there when I think about it, most of the time I don't notice it.
              Jan, 1975: Right I/O, followed by RPLND
              Dec, 2009: Left I/O, followed by 3xBEP

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              • #37
                Dave,
                I think the goal is to beat this dang cancer. If ringing in my ears stays so be it, but the alternative is not an option so I will keep moving forward with my treatments until this cancer is gone.

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