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Seminoma Reoccurrence

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  • #31
    Dave,
    That is great news!

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    • #32
      I had the neulasta autoinjector. I did not have any side effects from mine.
      6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
      6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
      7/7/15: bHCG 56, AFP 42, LDH 322
      7/13/15: begin 4xEP, end 9/18/15
      10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
      10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
      4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
      4/20/16: RPLND @ IU - teratoma only!
      10/22/19: all clears up to this date!

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      • #33
        Bowie,
        Thanks for the information on starting to feel a lot better about maybe have to take the shots.

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        • #34
          I am not aware of either Neupogen or Neulasta being associated with any lung issues.

          I did have Bleomycin and had a lung function baseline prior to starting chemo and another one a few after completing chemo. I had a ~12% reduction in lung function after Chemo. I do recall the doctor not being concerned about it as it was not totally unheard of. She did mention that that reduction was likely to be temporary and that I would regain most if not all of it.

          - Matt
          March 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
          March 13th: Left IO 100% Classic Seminoma
          6.3 x 5.1 x 3.8 cm, no invasion of anything
          LDH never fully normalized
          Stage: IS
          Watchful Waiting
          May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
          May 12th: started 3xBEP
          Neupogen during Cycle 2 and 3
          July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
          August 4th: Post Chemo CT/PET scan
          September 4th: Port removed
          January 2020: 5.5 YEARS ALL CLEAR !

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          • #35
            Thanks Matt that's kind of what the doctor has been telling me as well. Could go back to normal or could get worse no one really knows. So far so good no issues with my lungs , just this dang ringing in my ears, and tingling in my extremities.

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            • #36
              Doryman,
              Unfortunately, for me, that ringing never went away, however it becomes less annoying with time & while it is always there when I think about it, most of the time I don't notice it.
              Jan, 1975: Right I/O, followed by RPLND
              Dec, 2009: Left I/O, followed by 3xBEP

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              • #37
                Dave,
                I think the goal is to beat this dang cancer. If ringing in my ears stays so be it, but the alternative is not an option so I will keep moving forward with my treatments until this cancer is gone.

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                • #38
                  Just wanted to give an update on my progress. I just finished my last cycle of BEP, all three are done! Now I have a CT scan scheduled on the 28th of December. So far all my tumor markers have normalized. AFP 5.1, LDH 122, HCG negative, below 3. So happy to be done with chemotherapy and getting through it with no major health complications.
                  Last edited by Doryman; 12-15-20, 12:44 AM.

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                  • #39
                    Congrats on finishing BEP and wishing you all the best on the 28th. Keep us posted on the CT results.

                    Mike
                    Oct. 2005 felt lump but waited over 7 months.
                    06.15.06 "You have Cancer"
                    06.26.06 Left I/O
                    06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
                    06.30.06 It's Official - Stage I Seminoma
                    Surveillance...
                    Founded the Testicular Cancer Society
                    6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

                    For some reason I do not get notices of private messages on here so please feel free to email me directly at mike@tc-cancer.com if you would like to chat privately so as to avoid any delays.

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                    • #40
                      Glad to hear it went well for you. Like Mike said, please keep us posted on how things work out down the road.

                      Dave
                      Jan, 1975: Right I/O, followed by RPLND
                      Dec, 2009: Left I/O, followed by 3xBEP

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                      • #41
                        Hey Doryman. Congrats on getting through everything! I had a similar situation with when the tinnitus presented with the first round and I've started to get the sensation in my hands and feet with pins and needles (a little burning sensation sometimes). They mentioned the cold treatment for hands and feet recently (after I was already feeling the effects...) so I'm checking to see if you've still noticed any neuropathy symptoms? Also, you mentioned them changing how the administered the Etoposide and Cisplatin. Was it a slower drip or how did they do it?

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