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Pain/numbness after inguinal orchiectomy

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  • CaliforniaPapa
    started a topic Pain/numbness after inguinal orchiectomy

    Pain/numbness after inguinal orchiectomy

    Hello all,

    I'm 9 months post testicular cancer. My right testicle was removed during the orchiectomy and no follow-up treatment was required, other than CT scans and blood work every 3 months for the first year.

    But here's my problem... Since the surgery, I've had a strange numbness in my right inner thigh, and it extends up to the groin area and surrounding the scar. It's numb yet painful at the same time, if that makes any sense at all. For example, if I touch it, the surface of my skin feels numb, but I feel a discomfort in the nerves beneath the surface.

    I've been told this is "normal" and that it will go away. I feel like the doctors are dismissive and don't take it seriously. I understand it's not life threatening, but this is my crotch area, so it matters to me.

    But orgasm is the real problem. When I reach orgasm, a warm throbbing rushes over that area (not in a good way!). It hurts and feels like an invisible hand is gripping the area and squeezing hard. I hate it enough that it's affected my sex life and I hardly even feel like it anymore because I dread the pain. (The pain probably lasts less than 30 seconds, but it knocks the breath out of me.)

    About 2 weeks ago, I read that patchouli oil increases blood flow and helps heal. I'm open-minded to alternative medicine. I obviously wouldn't try to use it to heal cancer, but I don't see any harm in rubbing some oil on my skin to see if it helps with pain. So I did.

    I massaged the oil into the area and applied light pressure. It hurt a lot and knocked the wind out of me. I did it every few nights, and each time, it felt a little bit easier. There was a tingling feeling from the oil too, so I felt like something must be happening.

    I now feel like the pain in that area has been reduced by 50%. It's much more tolerable when I reach orgasm. For 9 months, I saw no improvement at all. And now, in just a few weeks, I can actually feel relief from the surgery.

    Has anyone else experienced this? The pain and numbness? What did you do to heal it? And why would orgasm trigger it? I'm assuming it has something to do with a rush of blood flow to the area, perhaps overwhelming the nerves? I don't know.


  • Dsyejaculation
    replied
    WatchfulWaiting... Your situation is similar to mine. İ want to ask....
    Do You feel pain at the Side where testicle is removed.?
    Does Your vas deference is still there?
    İf You can reply then i can explain the pain reason

    Leave a comment:


  • Dsyejaculation
    replied
    WatchfulWaiting... Your situation is similar to mine. İ want to ask....
    Do You feel pain at the Side where testicle is removed.?
    Does Your vas deference is still there?
    İf You can reply then i can explain the pain reason

    Leave a comment:


  • Dsyejaculation
    replied
    WatchfulWaiting... Your situation is similar to mine. İ want to ask....
    Do You feel pain at the Side where testicle is removed.?
    Does Your vas deference is still there?
    İf You can reply then i can explain the pain reason. ....

    Leave a comment:


  • SomeGreyBloke
    replied
    Yes I have that warm feeling as if I were prodded with a hot poker. It is very distressing, as I use to be very active and now even a gentle jog for less than half a mile will cause a lot of pain next day. I also found this website http://www.dellon.com/news-2/187-tes...er-orchiectomy and wondered if anyone had any luck with the methods described there?

    Leave a comment:


  • WatchfulWaiting
    replied
    Thank you I will give that a try.

    Leave a comment:


  • eodtech2001
    replied
    There is a urologist in clearmont florida who specialize in pain conditons related to urology. You can find the website at PUR clinic.com
    He has worked wonders for my groin pain. You either have a trapped nerve. Pinched nerve or scar tissue is pressing on the nerve. He has done a couple of minor surgries that have killed the pain for me everytime it comes back and i have been dealing with it for 6 yr off and on. My pain would either be numbness in the groin or burning like someone burned me with a hot poker. It is just below the inner most part of the I/O scar
    Another thing you can do is stretch that groin muscle to help relieve the nerve. Stretch that leg straight back with your foot turned side was and then lean forward on the other leg and look away from the side that you have the nerve pain. It will help. Its not a permanent solution but it will give relief from the pain for a couple of hours. Everytime you start to feel the burn, just stretch it out
    Last edited by eodtech2001; 07-13-18, 10:07 PM.

    Leave a comment:


  • WatchfulWaiting
    replied
    Hi everyone, first time poster here. I too had uncomfortable orgasms post surgery presumably from inguinal nerve damage at the incision site. I would experience warmness and an uncomfortable tingling/stinging sensation in my pelvic area and inner thigh. For the longest time I was able to prevent the discomfort by having at least one orgasm per day. The longer I went without having an orgasm, the more painful my orgasms would be. Lately the stinging sensation has come back even if I orgasm every day, which I find unusual. Does anybody know why this could be? Thanks in advance for any input.

    Leave a comment:


  • vpirh
    replied
    its normal is what he said after 4 months. Now I just suck it up and try to learn to live with it. Not sure what he can do about it anyway.

    Leave a comment:


  • Davepet
    replied
    vpirh & Some Grey, what do your docs say?

    Dave

    Leave a comment:


  • vpirh
    replied
    I had IO 8 months ago and it still does not feel right. Numbness never went away. And while I do not feel pain I do feel aches. I am yet to see ANY improvement.
    Last edited by vpirh; 04-28-18, 06:57 AM.

    Leave a comment:


  • SomeGreyBloke
    replied
    Hi SP,

    I'm nearly 4 months post op, still have numbness and pain mainly when I wear tighter jeans. Did you experienced any pain as well?

    Leave a comment:


  • S P
    replied
    I had that numbness and tingling in my inner thighs after the RPLND also. It went away within a few months.

    Leave a comment:


  • SomeGreyBloke
    replied
    Hi Guys,

    I know its an old post, but did your numbness improved eventually? How are you now?

    Thanks

    Leave a comment:


  • JeskiM69
    replied
    That is a very valuable link. I've never heard of it myself. I would definitely look to get Physical Therapy for that.

    Speaking of PT. I had issues in my left pelvis and very low back months after chemo. I ended up getting PT with a doctor that specializes in the Pelvic Floor muscle groups. These docs can be hard to find....mine was a Gynecologist.

    - Matt

    Leave a comment:

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