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  • #16
    Originally posted by Nish115 View Post
    Tuli I'm just looking at your signature, how comes you received so much treatment? Why 4xBEP for stage 2 and why the extra 3xVIP? Was it just as your AFP was slightly high?
    Sorry for the wait, but because of AFP, yes. The standard here is to treat until markers are down to normal, and then 2 rounds.
    10/2015: Mild pain in right testicle, ultrasound revealed mass of ca. 3 cm. AFP 37,6 kU/l (normal less than 5,8 kU/l), hCG negative (less than 5 U/l). 11/2015: Radical orchiectomy, PAD revealed 100 % embryonal carcinoma (pT2). Post-operatively AFP 234 kU/l, hCG 33 U/l. CT-scan revealed two enlargened retroperitoneal lymph nodes, so classified as Stage II. 12/2015-2/2016: 4 x BEP; hCG back to negative, AFP still 6,6 kU/l. Lymph nodes back to normal size. 3/2016-4/2016: 3 x PEI/VIP; AFP down to normal. 5/2016-: Under surveillance.

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    • #17
      How are you doing now?
      Son Grant
      dx 12/21/16 at age 17

      BEP x3
      Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
      2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
      Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

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