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First year after chemo pet/ct not as expected,im freaking out

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  • #31
    Originally posted by Trekga View Post
    Deep breath! I would look into consulting an expert on TC as mentioned already. Mike is correct in saying that teratoma can be found in patients who do not have it in primary pathlogy at least in the retroperitoneal area.
    I will be emailing Dr.Einhorn to make sure of our choice to wait. I hope he replies. And I will post it here as soon as he do!
    Thank you

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    • #32
      Glad you are emailing Dr. E he truly is a busy man, but gives his time to TC paitents and caregivers. Hang in there.
      17 year old son Grant dx 12/21/16
      pre/o markers 12/21/16- HCG:1065.15,AFP:298.8,LDH:1119
      pre/o CT Scan 12/22/16 normal
      r/o 12/22/16
      Post r/o Elevated Markers with INCREASE 4 weeks post r/o;
      PATHLOGY: mixed maligent germ cell 8.6 x 6.2 x 5.9 cm

      -80% Embryonal, 10% Yolk Sac, 5% Teratoma, 5% Choriocarcinoma w/LVI within Spermatic Cord and invasion into Rete Testis
      2nd CT scan on 1/24/17 3 nodes 2 over 2.5, one over 3.5
      BEP x 3 1/27/17
      Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
      2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
      Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

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      • #33
        I emailed Dr. Craig Nichols and Dr.E
        This is dr. Craig's reply:
        that is something I would just watch at this point. a change from 3.5 to 4 could be artifact. There is no harm in waiting. He should not be having PET scans in follow up.
        I think I can breath now!

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        • #34
          This is Dr.Einhorn's reply:
          "I would just repeat CT scan in 3 months. If further growth, it would almost certainly be teratoma and even if it triples in size would still be easily resectable and curable."
          God bless him.

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          • #35
            I hope the input from Dr. Nichols and Dr. Einhorn gives you some comfort. It isn't easy to wait and see but it sounds like they are in agreement there.

            Mike
            Oct. 2005 felt lump but waited over 7 months.
            06.15.06 "You have Cancer"
            06.26.06 Left I/O
            06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
            06.30.06 It's Official - Stage I Seminoma
            Surveillance...
            Founded the Testicular Cancer Society
            6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

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