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  • #31
    Hello Trekga. The las time I emailed Dr Einhorn I told him about the aortocaval lymp node, he answered to me that its impossible to tell just by email and was probably of no concern. So it wasnt helpful. He might not understand my wording or something

    So How should I email Dr Einhorn should I be brief or very specific?
    39 year old diagnosed Right Mass as per U/S
    Pre/o CT-Scan Chest Xray all Clear march 24 2017
    Right I/O April 8th 2017
    Path report 100% Pure Seminoma Tumor Size 2.5cm x 1.3cm no invasion/surveillance decided
    Tumor Markers never elevated
    Chest Xray clear Ct-Scan January 28 2018 shows 18x14 mm aortocaval node.
    May 11 BHCG Mild elevated 3.1 Reference Value 2.7
    May 25 2018 Chest CT-Scan Clear
    May 31 2018 MRI showing aortocaval node is now 35mm, everything else clear

    Comment


    • #32
      I am a bit confused? I thought that they were going to re-do the CT scan in 7 weeks, and that was from the end of January? Is this the first abdominal imaging you have had since January?

      To be honest, I am not sure how the CT vs MRI relate and the chances for errors with MRI, etc. but a growth of 18mm to 35 mm seems significant in my mind. On the other hand the increase of beta-hCG seems of no significance and most likely just slight variations in the lab tests themselves. Having an ultrasound of the left testicle doesn't seem unreasonable just for peace of mind. I used to get one yearly.

      Mike
      Oct. 2005 felt lump but waited over 7 months.
      06.15.06 "You have Cancer"
      06.26.06 Left I/O
      06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
      06.30.06 It's Official - Stage I Seminoma
      Surveillance...
      Founded the Testicular Cancer Society
      6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

      For some reason I do not get notices of private messages on here so please feel free to email me directly at mike@tc-cancer.com if you would like to chat privately so as to avoid any delays.

      Comment


      • #33
        Mike, yes it is the first abdominal imaging since Januray 27. The Oncologist asked for another abdominal CT-Scan, but my Urologist said it was too much radiation to that area. So Urologist said that MRI would be enough to see if the Lymp node was still there and I will avoid the CT-Scan radiation, and if MRI was not clear enough then he would definitely order a new CT-Scan to my abdomen. So what we agree with the Urologist was to get the abdomen MRI and not a bad idea to get the Chest CT-Scan since I never had a Chest CT-Scan before only had two Chest Xray.
        Last edited by mauroeg7; 07-08-18, 12:19 PM.
        39 year old diagnosed Right Mass as per U/S
        Pre/o CT-Scan Chest Xray all Clear march 24 2017
        Right I/O April 8th 2017
        Path report 100% Pure Seminoma Tumor Size 2.5cm x 1.3cm no invasion/surveillance decided
        Tumor Markers never elevated
        Chest Xray clear Ct-Scan January 28 2018 shows 18x14 mm aortocaval node.
        May 11 BHCG Mild elevated 3.1 Reference Value 2.7
        May 25 2018 Chest CT-Scan Clear
        May 31 2018 MRI showing aortocaval node is now 35mm, everything else clear

        Comment


        • #34
          OK, I understand now. I think that I would be concerned with a doubling in size over the time period. If it was close in size then perhaps I would be less concerned but that is a significant difference.

          Mike
          Oct. 2005 felt lump but waited over 7 months.
          06.15.06 "You have Cancer"
          06.26.06 Left I/O
          06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
          06.30.06 It's Official - Stage I Seminoma
          Surveillance...
          Founded the Testicular Cancer Society
          6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

          For some reason I do not get notices of private messages on here so please feel free to email me directly at mike@tc-cancer.com if you would like to chat privately so as to avoid any delays.

          Comment


          • #35
            I don't understand how the urologist can over ride an order for a CT from the oncologist? Yoir oncologist shoiuld be in control of your TC care at this point. I wouldwant to compare a CT to a CT before proceeding with further treatment.
            Jan, 1975: Right I/O, followed by RPLND
            Dec, 2009: Left I/O, followed by 3xBEP

            Comment


            • #36
              Originally posted by Mike View Post
              OK, I understand now. I think that I would be concerned with a doubling in size over the time period. If it was close in size then perhaps I would be less concerned but that is a significant difference.

              Mike
              The strange thing is that another Urologist that saw the first CT-Scan imaging from January 27 on his PC said that he finds it bigger than 18x14 mm. He said: what my PC software is showing actually measures 32mm instead of 18x14 mm. But He said Im not a radiologist but its what I see
              39 year old diagnosed Right Mass as per U/S
              Pre/o CT-Scan Chest Xray all Clear march 24 2017
              Right I/O April 8th 2017
              Path report 100% Pure Seminoma Tumor Size 2.5cm x 1.3cm no invasion/surveillance decided
              Tumor Markers never elevated
              Chest Xray clear Ct-Scan January 28 2018 shows 18x14 mm aortocaval node.
              May 11 BHCG Mild elevated 3.1 Reference Value 2.7
              May 25 2018 Chest CT-Scan Clear
              May 31 2018 MRI showing aortocaval node is now 35mm, everything else clear

              Comment


              • #37
                Originally posted by Davepet View Post
                I don't understand how the urologist can over ride an order for a CT from the oncologist? Yoir oncologist shoiuld be in control of your TC care at this point. I wouldwant to compare a CT to a CT before proceeding with further treatment.
                Well He didnt override the order for the CT-Scan. I called him and he told me I would recommend to get an MRI instead of a CT-Scan to avoid radiation in your abdominal area. MRI could be enough to check on the aortocaval lymp node progress if it fails to do so, then go ahead and get the CT-Scan. But since the MRI is showing the node is 35mm. Then urologist had a meeting with other doctors including oncologists and urologists where he discussed my case, and agree that chemo should be started. The last words my Urologist said was get to my office to get an order for al ultrasound and go see an Oncologist. And I followed his recommendation about an MRI since that Uro is my treating doctor he did my I/O and my surveillance has been with him so far.

                Actually I saw different doctors to get a second opinion but after visiting a few doctors offices I decided to get back to my original Urologist as advised my mom and some relatives. The doctors I saw all had different opinion, one said get a PET Scan, another advised me to start 15 sessions of radiotherapy to get rid of the node, one more said you need Chemo but I will not start any treatment until you get a Chest CT-Scan which you haven had so far. And the last oncologist that ordered the abdominal CT-Scan also mentioned that if lymp node was still there the best thing to do would be surgery to get it out and have it checked by pathology. But I think its time for an Oncologist to be in control

                I would like to get to the doctors in my country who are experts on TC, I know my Urologist has treated more TC patients but dont know the outcome with them
                Last edited by mauroeg7; 07-08-18, 03:59 PM.
                39 year old diagnosed Right Mass as per U/S
                Pre/o CT-Scan Chest Xray all Clear march 24 2017
                Right I/O April 8th 2017
                Path report 100% Pure Seminoma Tumor Size 2.5cm x 1.3cm no invasion/surveillance decided
                Tumor Markers never elevated
                Chest Xray clear Ct-Scan January 28 2018 shows 18x14 mm aortocaval node.
                May 11 BHCG Mild elevated 3.1 Reference Value 2.7
                May 25 2018 Chest CT-Scan Clear
                May 31 2018 MRI showing aortocaval node is now 35mm, everything else clear

                Comment


                • #38
                  Originally posted by mauroeg7 View Post
                  The strange thing is that another Urologist that saw the first CT-Scan imaging from January 27 on his PC said that he finds it bigger than 18x14 mm. He said: what my PC software is showing actually measures 32mm instead of 18x14 mm. But He said Im not a radiologist but its what I see

                  Perhaps having the January CT re-read by a different radiologist would be a good idea before jumping into things?

                  MIke
                  Oct. 2005 felt lump but waited over 7 months.
                  06.15.06 "You have Cancer"
                  06.26.06 Left I/O
                  06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
                  06.30.06 It's Official - Stage I Seminoma
                  Surveillance...
                  Founded the Testicular Cancer Society
                  6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

                  For some reason I do not get notices of private messages on here so please feel free to email me directly at mike@tc-cancer.com if you would like to chat privately so as to avoid any delays.

                  Comment

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