I've been reading this forum for about 2 months, but this is my very first post.
My cancer story started in the beginning of June 2018. I think that I've stayed mostly positive throughout the process, but occasionally I have an overwhelming feeling of being out of control. I'm new to all of this, and I don't know if I'm doing everything I can or should be doing. I often don't know what questions to ask my oncologist.
What else can or should I be doing?
*Should I consider modifying my diet? (I don't eat fast food, but I'm not a careful eater)
*How much can/should I exercise? (I was running 10 miles/week pre-orchiectomy. I'm only running about 3 miles/week + walking 3 miles/week.)
*I used to drink 1 or 2 beers per week, haven't had a single brew since 6/3/18. Is it okay to have an occasional beer?
*I believe that my immune system will hit it's lowest point this Wednesday (+3 weeks since carbo X1). I'm washing my hands like a mad man... being cautious when in public. Is there anything else I should do?
*Adjuvant chemo is CarboX1. Should I have considered CarboX2? At this point, is it still an option?
*What are the most important questions to ask my oncologist at this point?
Sorry for all of this questions, but any input would be greatly appreciated. Thank you.
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I've posted a timeline below with some details.
6/4/18 BHCG 452, AFP 1
6/13/18 CT Scan, no involvement beyond left testicle
6/18/18 Radical Left inguinal orchiectomy, Pathology pure seminoma, rete testis obliterated
7/1/18 BHCG 7, AFP 1.5
7/12/18 BHCG<1, AFP 1.5, LDH 220, Diagnosed as Stage 1b, T3N0
7/25/18 Adjuvant Chemotherapy, 780mg Carboplatin
8/27/18 Next CT Scan scheduled
9/7/18 Follow up oncologist appointment scheduled.
My cancer story started in the beginning of June 2018. I think that I've stayed mostly positive throughout the process, but occasionally I have an overwhelming feeling of being out of control. I'm new to all of this, and I don't know if I'm doing everything I can or should be doing. I often don't know what questions to ask my oncologist.
What else can or should I be doing?
*Should I consider modifying my diet? (I don't eat fast food, but I'm not a careful eater)
*How much can/should I exercise? (I was running 10 miles/week pre-orchiectomy. I'm only running about 3 miles/week + walking 3 miles/week.)
*I used to drink 1 or 2 beers per week, haven't had a single brew since 6/3/18. Is it okay to have an occasional beer?
*I believe that my immune system will hit it's lowest point this Wednesday (+3 weeks since carbo X1). I'm washing my hands like a mad man... being cautious when in public. Is there anything else I should do?
*Adjuvant chemo is CarboX1. Should I have considered CarboX2? At this point, is it still an option?
*What are the most important questions to ask my oncologist at this point?
Sorry for all of this questions, but any input would be greatly appreciated. Thank you.
-------------------------------------------------------------------------------------------
I've posted a timeline below with some details.
6/4/18 BHCG 452, AFP 1
6/13/18 CT Scan, no involvement beyond left testicle
6/18/18 Radical Left inguinal orchiectomy, Pathology pure seminoma, rete testis obliterated
7/1/18 BHCG 7, AFP 1.5
7/12/18 BHCG<1, AFP 1.5, LDH 220, Diagnosed as Stage 1b, T3N0
7/25/18 Adjuvant Chemotherapy, 780mg Carboplatin
8/27/18 Next CT Scan scheduled
9/7/18 Follow up oncologist appointment scheduled.
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