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6 month Ct scan tommorow -Major nerves

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  • #16
    Originally posted by melanie View Post
    johnm620 thanks for your reply. When did you have your adjuvant BEP? what was you tumor type and stage?

    Its comforting to hear everyone's stories.

    So far his family has made him feel stupid (parents and brother) for his continued stress and anxiety since it wasn't as bad as his brothers and in their mind over and done with.

    Which is awful, ignorant and cruel. He is struggling with feeling anger and sadness over the experience because he feels like somehow that makes him ungrateful for catching it early

    I actually had 1X Carboplatin back on July 25th. I have (had?) stage 1B pure seminoma, with a couple risk factors. Before my I/O, I had elevated bHCG, but I've had 2 good blood tests since then, and have a clean MRI (MRI was ordered to check on some liver cysts) since then. My next blood test/CT scan isn't until the last week of November.

    Was talking to my wife about this last night... "Logic" says I have plenty to feel positive about... and I usually do. But, a few time a week, the anxiety levels just go through the roof. On Sunday, my back was aching... and of course you know what came to mind. But I seemed to forget that I rotated the tires on my wife's SUV the day before. Somehow, for me, logic just goes out the window.

    Even though your husbands family isn't being supportive, your husband is awfully lucky to have such a supportive spouse.

    Let us know the good news on the survelliance as soon as you can!

    John
    6/4/18 BHCG 452, AFP 1
    6/13/18 CT Scan, no involvement beyond left testicle
    6/18/18 Radical Left inguinal orchiectomy, Pathology pure seminoma, rete testis obliterated
    6/29/18 BHCG 7, AFP 1.5 (calc 1.8 half-life)
    7/12/18 BHCG<1, AFP 1.5, LDH 220, Diagnosed as Stage 1b, T3N0
    7/25/18 Adjuvant Chemotherapy, 780mg Carboplatin
    8/27/18 Chest CT Scan clear
    9/7/18 BHCG<2, AFP 2.0, LDH 182 (Different lab w/diff ranges than initial tests)
    9/26/18 MRI to review liver cysts for possible metastasis, all clear. No lymphadenopathy
    11/19/18 Next blood test
    11/23/18 Next CT Scan
    11/30/18 follow up with oncologist

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    • #17
      Thanks John. You are so right about the logic thing. Seems like something else takes over from time to time and no matter what you tell yourself you can't shake the fear.


      Will update with results Monday
      2/7/18- Husband diagnosed
      2/12/18- I/O- Stage 1b 99% embryonal carcinoma 1%seminoma/yolk -CT's clear -All markers in normal range
      3/12/18-4/1/18 Adjuvant BEPx1

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      • #18
        Yesterday I stated to fell pretty okay about the Scans and bloodwork- feeling confidant all will be well.

        Today is the exact opposite. I can't stop playing out the negative possibilities in my head. Feeling convinced something will be wrong. I feel like I am going crazy

        My husband couldn't even focus enough to work. He doesn't want to talk about it which I understand but I hate it when he gets quiet. Scares me

        I hope one day this wont be so hard.
        2/7/18- Husband diagnosed
        2/12/18- I/O- Stage 1b 99% embryonal carcinoma 1%seminoma/yolk -CT's clear -All markers in normal range
        3/12/18-4/1/18 Adjuvant BEPx1

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        • #19
          With 1xBEP the probability is very low of further cancer (SWENOTECA study says about 2-3%; my oncologist said
          Age 31 - Portland, OR
          01NOV16- Pain in right testicle, palpable mass
          13NOV16- R I/O. Markers normal
          27NOV16- Stage Ia non-seminoma, 1.3cm, 100% EC, no LVI
          06DEC16 - CT scan clear
          09DEC16 - Started 1xBEP. Neutropenic at day 15; Worst part for me was bleo (allergic).
          03JAN17- Ended 1xBEP; start surveillance
          18MAR17-2nd pathology report shows 90% EC , 10% seminoma

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          • #20
            Yes, you're right. It's important to keep that in mind. I am sure this must get easier in time. Thanks your reply
            2/7/18- Husband diagnosed
            2/12/18- I/O- Stage 1b 99% embryonal carcinoma 1%seminoma/yolk -CT's clear -All markers in normal range
            3/12/18-4/1/18 Adjuvant BEPx1

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            • #21
              All clear! Ct non distinguishable from first one and bloodwork all with normal range. Hoping that this was the hardest check since it was the first one post chemo CT and the others will be a little less stressful. Thanks to all for the support
              2/7/18- Husband diagnosed
              2/12/18- I/O- Stage 1b 99% embryonal carcinoma 1%seminoma/yolk -CT's clear -All markers in normal range
              3/12/18-4/1/18 Adjuvant BEPx1

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              • #22
                It's a mind game that some deal with better than others. Yes, it is cancer & it CAN be fatal, but unlike most other cancers,for the last 30-40 years the cure rate is in the high 90% range. Try to keep that in mind. He is most likely cured, no reason to think otherwise.

                Dave
                Jan, 1975: Right I/O, followed by RPLND
                Dec, 2009: Left I/O, followed by 3xBEP

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                • #23
                  Glad to hear it went well!! Hope it stay that way forever
                  July 2016 - Left I/O
                  December 2016 - BEPx3
                  All clear for 1 year!

                  My Testicular Cancer Support Kit
                  First Oncologist Visit Checklist
                  Simplify Cancer Podcast

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