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  • Lack of libido

    Hello guys,

    I am on TRT (after bilateral I/O, itīs been 5 months). Since surgery I have noticed a significant decrease of libido a quality of erections. Dr says my testosterone levels in blood are fine, so within the recommended levels. He says that according to my lab results he would not recommend increasing the dosage and that my complaints could come from a psychological point of view due to the traumatic experience. He then suggested to visit a physiologist.

    Honestly, I have my doubts about that. What happened was **** but I donīt feel like traumatised or anything. I just do not feel of having sex as much as before. I donīt know if this could come from my subconscious...

    Obviously this is creating issues with my partner. I take longer to have erections (and often they are softer) and we have sex less often than before...

    If you guys have been in a similar situation, how do you deal with it? Im really feeling lost

    Thanks a lot

  • #2
    What about masturbating? Do you still experience softer erections?
    03/10/16 - Something is seriously wrong
    03/11/16 - Ultrasound shows 7cm mass
    03/15/16 - CT scan: enlarged 1.5cm retroperitoneal node
    03/15/16 - Markers: HCG 2, LDH 220, AFP 2.8
    03/21/16 - Right I/O, Path: classic seminoma tumor 7.1cm (Stage IIA)
    05/03/16 - Radiation treatment started: 18 days/30 Gy

    Comment


    • #3
      Pmx,
      Get yourself to an endocrinologist you specialises in TRT. I've been on TRT since my bilateral six years ago, and I have had no (zero) issues. Do you have your bloods/figures? The range/scale for testosterone is quite wide and "just because" you are in that range _doesn't_ mean that it's enough for you, and a lot of doctors don't understand that.

      DZ

      Jan 2009: RHS (Seminoma) & RT
      Mar 2010: LHS (Embryonal Carcinoma)
      Sep 2010: Relapse & 3 x BEP
      Mar 2015: Five years "nut free"
      http://doublezeroami.blogspot.com

      Comment


      • #4
        Interesting how the docs say that the Level of T will not impact on the erection quality - rubbish like you I know that when I drop below a certain level and its the "normal" rage that that YES the Libido will be down, erections will not be as "strong", tiredness starts and night sweats kick in. Its not the normal that they should look at its the Symptoms that they need to treat. Being on the long term injections I do get peaks and lows although the gap has minimized over time.

        I know that I am good around the 20 - 22 nmol mark - convert here http://www.nebido.com/tools/index.ph...onversion-tool - below this around 17 the symptoms start to kick in. I would seek to get the T levels checked and increased - focus on the symptoms - and YES that non in intense erection is a symptom.

        This site has a lot of usefull information - http://www.nebido.com/en/hcp/index.php
        >>>>>>>>>
        TC1: May 2001 / Right orchiectomy / seminoma stage 1 / Radiation
        TC2: July 2008 / Left orchiectomy / seminoma stage 1 / X2 Prostheses / Reandron (long term Testosterone injections)

        Comment


        • #5
          My levels are 15.5 nmol mark (in the morning without using the Androgel before the blood test). I use the androgel 50mg every morning, sometimes i use it in my left arm, sometimes in the right arm but all the sachet in the same area.

          I will follow your advice. In a few days i have my ct scan and meeting with the urologist, so I will suggest to increase the dosage for 1 month to see if I see benefits, although he might refuse again. If he does, then I will call my GP and see if she can refer me to an endocrinologist.

          Comment


          • #6
            Hello guys,

            An update on this. I had my first CT Scan after diagnosis and all went good, it came back normal (Thank god!). My levels of T were 10.2 nmol mark so significantly lower than before. Doctor then prescribed me a dosage increase to 75mg of Androgel (instead of current 50mg).

            So everyday from now on I have a 50mg sachet+25mg sachet to use. In the prescription it said the 25mg to be used at 6am, and the 50mg to be used at 7am. I found that wired but forgot to ask!

            Do you guys have experience with that? I think it would be more comfortable to use one in the morning after shower, one in the evening, Does it make any difference?

            Thanks!

            Comment


            • #7
              I've never heard of that before. No idea why, is that from the Androgel website or something typed by your doc or pharmacy?

              Over the 6 years I was on gels, I tried many different application sites & various ways of rotating them with no noticeable difference in effectiveness. My T-test numbers seemed to go up when I was switched to the generic version of androgel1%., but I wasn't on it long enough to be sure. I didn't feel any different.

              Dave
              Jan, 1975: Right I/O, followed by RPLND
              Dec, 2009: Left I/O, followed by 3xBEP

              Comment


              • #8
                It was typed in the prescription by the doctor.

                But could you advice? Would you put the 2 sachets (75mg) in one time in the morning, or one in the morning and keep the other one for the evening?

                Thanks

                Comment


                • #9
                  Based on my experiments, it makes no difference. I've tried alternating sides from one day to the next,splitting the dose between AM/PM, applying it to shoulders, armpits, shins, top of feet, & even the big no-no, my crotch/scrotum. It worked fine as far as I could tell no matter what I did. In fact, just before my company switched to an insurance plan that would not cover the gels, my T levels were over the top of the lab's range for several tests over several months, even though I was down to 3 out the 4 prescribed pumps/day. No application site or method seemed to make a difference.
                  Jan, 1975: Right I/O, followed by RPLND
                  Dec, 2009: Left I/O, followed by 3xBEP

                  Comment


                  • #10
                    Pmx,

                    As a pharmacist, I can't see why. Maybe ask your doctor the next time why. However, I suggest you to apply the 50 and the 25 mg in the morning to avoid peak in the evening.

                    Jean-Philippe
                    December 15, 2015 : Right I/O. Markers normal.
                    December 24, 2015 : Merry Christmas ! 100 % pure EC, no LVI.
                    January 7, 2016 : CT scan : 2 RPLN of 8 and 9 mm
                    February 2016 : Markers normal.
                    March 2016 : Markers normal.
                    April 2016 : Abnormal B-HCG (43). 14 mm (from 8) and 10 mm (from 9) lymph nodes.
                    April 25, 2016 : Happy birthday ! Relapsed confirmed.
                    May 2, 2016 : BEP x 3 begins.
                    July 3, 2016 : BEP x 3 ends.
                    July 2016 : Serum tumor markers normal. 10 mm (from 14) and 6 mm (from 10) lymph nodes. Back on surveillance !
                    December 23, 2016 : Merry Christmas ! Serum tumor markers normal. 6.8 mm (from 10) and no more visible (from 6) lymph nodes. Surveillance continues.
                    June 2017 : Serum tumor markers normal. 4 mm (from 7 mm) lymph node. Surveillance continues.

                    Comment


                    • #11
                      Hello all,

                      I have great news. Only after two days of using a higher dosage i feel much better. I donīt know if this could be psychological or based on the increased dosage but great news for me nevertheless.

                      I have changed the way I use it also. Before I applied the whole sachet in only one arm. It was too much gel so in the end I ended up using gel over dry gel on the skin. I thought it would be the best way to do it. However looking online I read perhaps it is a better idea to extend the gel to the maximum skin surface to increase absorption. So now I apply the 2 sachets (50mg+25mg) in one time after the shower in arms and belly using as much skin as possible .

                      Again, not sure if this could be psychological because it has been only 2 days! but I had sex the two days in a row having erections quicker and also not feeling tired at all! I will test my blood in around 6 weeks.

                      Comment


                      • #12
                        Hi Pmx.

                        I have been on injections for 3 years now and it has worked very well for me. I know that some people have had issued with gels being inconsistent due to absorption. You may want to consider trying another method if you continue to have issues.

                        The main point I would like to make is that everyone has different sensitivity to T levels, and make sure you don't let the Dr dictate what level you need to be at. I had the opposite problem that I think you are having. My urologist had my T levels at the upper end of "normal", but I was having back acne, oily skin, and dull headaches. He swore it wasn't my levels and sent me to a dermatologist. I went through a lot of unnecessary experiments, with scrubs and antibiotics, when I knew in my gut I needed to adjust my dose.

                        Long story short is my body is just sensitive to T levels, and I needed to be on a lower dose. I cut my dose in half and increased the frequency of my injections with the advise of my family doctor. My energy levels are still great, I have no libido or performance issues and my side effects have subsided. Trust your instincts and be your own advocate. The silver lining in all of this is we get to be at optimal T levels for the rest of our lives! You should be feeling great.
                        August 2009: Diagnosed TC, left I/O, stage 1 seminoma
                        September 2009: Radiation
                        May 2013: found mass on right during follow up, TC right side
                        June 2013: Right I/O, stage 1 seminoma, servalence, TRT

                        Comment


                        • #13
                          Originally posted by Pmx View Post
                          Hello all,

                          I have great news. Only after two days of using a higher dosage i feel much better. I donīt know if this could be psychological or based on the increased dosage but great news for me nevertheless.
                          Honestly, it really does not matter. You are getting the desired results. Do you really care why? Actually, if it's a placebo effect, it will probably wear off in a short while, if it's not, you should be good to go until something else changes. My personal experience is that something always changes to upset a well balanced TRT program, it's just a question of when...

                          Dave
                          Jan, 1975: Right I/O, followed by RPLND
                          Dec, 2009: Left I/O, followed by 3xBEP

                          Comment


                          • #14
                            Docs need to treat by symptoms not numbers with T! we are all different
                            >>>>>>>>>
                            TC1: May 2001 / Right orchiectomy / seminoma stage 1 / Radiation
                            TC2: July 2008 / Left orchiectomy / seminoma stage 1 / X2 Prostheses / Reandron (long term Testosterone injections)

                            Comment


                            • #15
                              I have problems too. Right IO due to testicular torsion, April 23 2013. Left IO due to TC non seminoma May 27, 2015. On 3 pumps of Androgel 1.62 per day. My libido/desire went south pretty quickly as did my ability to have erections after the second IO despite a testosterone level of 650-700 due to Androgel application. It also is very difficult for me to get to orgasm - I have to try really hard to get there. My uro got me to start using trimix injections so I was able to get hard but still had the libido/orgasm issues. I finally gave up on the Androgel 3 months ago. I was tired of the mess every morning. 3 Months later I notice no difference in libido or erections from when I was on Androgel. My testosterone level from my uro visit last week shows a level of 30. My uro is not happy with me as he says I am at risk for osteoporosis now. I don’t know what to do now. There is no difference for me at a Testosterone level of 650 or 30. Something is wrong here. Anybody have any ideas?? I am very sexually frustrated right now.

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