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  • Low Total T, normal other labs? Confused...

    Hello All,
    So, to try to make this short- Roughly April/May of this year, I started noticing changes with my body. Lack of libido, weight gain, extreme mood swings (very uncommon for me), and lethargy. I finally had my TSH & Total T checked lately, as my symptoms were becoming worse, and it ended up at 287 for me (30 years old). Unfortunately, I don't have a baseline . Anyways, I was referred to an endo and see her again in a few days to follow up with my labs, but am needing some clarification so I can be better prepared for questions.

    As far as I can find, there's primary & secondary hypogonadism, but it doesn't look like my labs fit in to any of them (or maybe I'm confused). Am I not understanding correctly, or....?

    Total T- 287
    TSH, FSH, LH, SHBG, Prolactin, Free T- all well within normal

    What concerns me is my I/O was in Dec 14', so is my other testicle maybe starting to fail or has TC as well (I checked for lumps, etc.)? I was fine until it just started one day and has progressed since. I feel like I'm going through menopause now and it's very frustrating.

    From what I understand, Total T is made of SHBG T, Free T, & Albumin T. So if my free & SHBG is normal, then my albumin bound T is low? I eat good and am not exactly a small person, so I'm confused. And if my free T is normal, shouldn't I feel ok?

    I've Googled and Googled- any help with understanding is appreciated, thank you!

  • #2
    There could be other causes of those symptoms and feelings, and it's also potentially just temporary. I had a similar low patch and I know how it feels. For me the T levels recovered on their own after 3-4 months, but it turned out I also had very low vitamin D levels, and when those were supplemented I felt a lot better too.

    (I have a sneaking suspicion that vitamin D has some link to T levels - and hence why low vitamin D symptoms tie fairly closely to low T symptoms - and there's some emerging evidence from studies that's starting to show this, e.g.: http://www.medscape.com/viewarticle/845483 and https://www.vitamindcouncil.org/vita...terone-levels/ )

    Anyway, it could be worth checking out your vitamin D levels with your endo if you haven't already. And continue to keep an eye on the T levels - if they continue to fall or you continue to feel awful then it would probably be worth discussing TRT with your endo.

    - T
    30 Jul 14: Discovered lump
    31 Jul 14: GP referral to specialist
    4 Aug 14: Clinical diagnosis of tumour, blood samples taken, CT scans, USS (confirming ~2cm tumour)
    8 Aug 14: Left radical orchidectomy (plus test results back: CT normal, no mets; blood markers slightly elevated: AFP 14.16, HCG 4.9, LDH 149)
    29 Aug 14: Pathology results: Stage 1A Mixed Non-Seminomatous Germ Cell Tumour (composition: Yolk-sac Tumour and Mature Teratoma)

    24 Sep 14: Started precautionary adjuvant 1xBEP
    23 Oct 14: All clear; on surveillance

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    • #3
      Thanks Talis! I know Vit D was tested as well, but I don't have the results yet. I take daily vitamins and eat pretty healthy, so I'm curious to see if it's normal.

      Comment


      • #4
        I can't say with certainty, but total T of 287 seems very low to me for someone at age30.
        Jan, 1975: Right I/O, followed by RPLND
        Dec, 2009: Left I/O, followed by 3xBEP

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        • #5
          Thanks Davepet. The endo said she'd like to see it around at least 400 for my age, so she did say it was very low. But with my free T and everything else normal is the part that confuses me.

          Comment


          • #6
            But with my free T and everything else normal is the part that confuses me.
            . Numbers are just numbers not only are yours very low for your age but what is really important is:

            Lack of libido, weight gain, extreme mood swings (very uncommon for me), and lethargy.
            Your T level needs help, it's been two years since I/O, there is little chance of spontaneous recovery. Get TRT stated ASAP, your health depends on it.

            Dave
            Jan, 1975: Right I/O, followed by RPLND
            Dec, 2009: Left I/O, followed by 3xBEP

            Comment


            • #7
              Thanks Dave! Interestingly enough, I received my results for my Vit D today and it was actually a little low. 27ng/mL (reference 30-80), which I'm not sure how that's even possible with the amount of dairy I eat, how much I'm outside, and the vitamins I take. I see the endo in 2 days, so hopefully she can provide some insight.

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              • #8
                I checked my MV I take daily- apparently has 200% Vit D...yeah, I'm at a loss now. Guess I'll wait & see what the doc says.

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                • #9
                  Vitamin D in tablet form may not be getting absorbed properly, according to my doc. In any event your T levels seem to be a bigger problem to me.
                  Jan, 1975: Right I/O, followed by RPLND
                  Dec, 2009: Left I/O, followed by 3xBEP

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                  • #10
                    Well endo started me on HRT yesterday. I chose Axiron, which is a pump axilla application, but wow when I found out the price. Think I'll probably switch over to the gel.
                    She said she doesn't look at free T that much since it's not standardized. As for my other labs, she said it's normal for them to be within the normal range. She also told me to take more Vit D, but wasn't that concerned with it.
                    Thanks for everyone's help!

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                    • #11
                      Pretty sure all the topical testosterones are pricey. There is a generic version of Androgel out that is cheaper, but not truly cheap.My new insurance refused to pay for any of them (my company changed providers) so I'm now on self injections.

                      Dave
                      Jan, 1975: Right I/O, followed by RPLND
                      Dec, 2009: Left I/O, followed by 3xBEP

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                      • #12
                        Does anyone believe or subscribe to the view of increasing testosterone via foods? Some foods - beef, oysters, kale, cruciferous veg etc are supposed to be T boosters. Also exercise (more resistance training) is also supposedly good for boost T levels.

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                        • #13
                          Food and increases T - marginal release you would find equally that after sex activity your T level would be higher as more T is released - this applies to girls to.
                          >>>>>>>>>
                          TC1: May 2001 / Right orchiectomy / seminoma stage 1 / Radiation
                          TC2: July 2008 / Left orchiectomy / seminoma stage 1 / X2 Prostheses / Reandron (long term Testosterone injections)

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                          • #14
                            Originally posted by Davepet View Post
                            . Numbers are just numbers not only are yours very low for your age but what is really important is:



                            Your T level needs help, it's been two years since I/O, there is little chance of spontaneous recovery. Get TRT stated ASAP, your health depends on it.

                            Dave
                            but also TRT may be negative for health,what you think?
                            11.2009 (age 29)carcinoma embryonale testis,op left side(orchiectomy),600 AFP, 90 bHCG(after op still high) ,CT chest and abdomen clear
                            12.2009 - 2.2010 3xBEP + bleomicin
                            going on controls every 4 month,all clear

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                            • #15
                              I think the benefits have to outweigh the risks. They put me on Axiron, which says it can increase the risk of prostate cancer, but it's worth the increased quality of life it provides me.

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