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I am concerned about testosterone levels but my oncologist isn't

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  • I am concerned about testosterone levels but my oncologist isn't

    Hi all--4 years ago I had a single oriechtomy and 1 round of BEP and have been in the clear ever since. I have been concerned with testosterone levels but my oncologist doesn't think I am a candidate for hormone therapy--he cites the risk of increased prostate cancer as his main reason. My latest t-levels are 331 NG/DL, which, according to the Vermeleun chart, is lower than the average 85 year old's levels, but I'm 35. I have fatigue; about every 3rd or 4th day I have to lay on the couch after work and do nothing. When I get fatigued like this, I get depressed and frustrated I can't get anything done. My libido is definitely lower post testicular cancer. I have not had mood swings, nor weight gain, nor hot flashes or anything like that. I have a healthy lifestyle. I run 4x a week, weight train 2x a week, and bike commute. Again, I'm 35, have two little kids, and a full time job. I am frustrated and don't know what to do; I don't know if I'm being a hypochondriac or if I am experiencing low t issues. When I bring any of this up to my oncologist, he thinks I am tired because of environmental factors: the kids, the job, my getting older, etc. Should I consult with an endocrinologist? Does it sound like I have a low t issue? Thanks all. This board is wonderful, and has been a huge benefit to me in the past.

  • #2
    I'd just schedule an appointment with an endocrinologist. They should be able to decide quickly if u need the replacement testosterone. And they would be more knoledge than an onc
    4x vip
    2xhdct
    2x cyber knife
    Oral etoposide
    2xCrainiotomy
    Brain radiation
    2xorchiectomy
    4xPVB

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    • #3
      Your numbers are low AND you have multiple symptoms. Your doc is doing you a disservice by refusing treatment that you clearly need. Your risk of prostate cancer with treatment should be no higher than a guy with two normal testicles, as long as it is monitored regularly & is not sky high.

      Dave
      Jan, 1975: Right I/O, followed by RPLND
      Dec, 2009: Left I/O, followed by 3xBEP

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