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my son's horomone levels came back out of whack

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  • my son's horomone levels came back out of whack

    Grant was 17 when dx. Chemo, than post chemo RPNLD. Finished all treatment in May 2017. He did not have his levels checked prior to TC treatment. Anyway, I requested his levels be tested. I am unable to access his information since he turned 18 earlier this month, but several levels are either too high, or too low. Pedi Oncologist needs to refer us back to his primary family doctor so he can see an adult Endocrinologist.

    Any suggestions, I hope to obtain the actual labs next week.
    Thanks
    Last edited by Trekga; 09-30-17, 09:45 AM.
    17 year old son Grant dx 12/21/16
    pre/o markers 12/21/16- HCG:1065.15,AFP:298.8,LDH:1119
    pre/o CT Scan 12/22/16 normal
    r/o 12/22/16
    Post r/o Elevated Markers with INCREASE 4 weeks post r/o;
    PATHLOGY: mixed maligent germ cell 8.6 x 6.2 x 5.9 cm

    -80% Embryonal, 10% Yolk Sac, 5% Teratoma, 5% Choriocarcinoma w/LVI within Spermatic Cord and invasion into Rete Testis
    2nd CT scan on 1/24/17 3 nodes 2 over 2.5, one over 3.5
    BEP x 3 1/27/17
    Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
    2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
    Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

  • #2
    Sorry to hear you've got another thing to worry about. I know hormone levels (Low T) are affected by TC and chemo and I think it takes quite a bit of time for everything to normalize. I would also get your son to sign the HIPPA form to share his information with you and create your own log in to access his records. You'll need permission for every medical office and lab you deal with. Or you can have Clinical Summaries sent to your email and you can establish the account with your credentials. PM me if you want some help getting through this process.

    Comment


    • #3
      MAMAANG~ thank you for replying. I know you are dealing with your son, so appreciate it even more. I will have him create a patient portal.
      When his doctor called me yesterday,I was driving, and could not pull over to write down the info. She is not even certain what the results really mean, as she does not have charts for 18+. She just thinks that with one 2 lower and one higher he needs to be referred. I requested the bloodwork since things seemed "off" for a 17-18 year old. Thank you again.
      17 year old son Grant dx 12/21/16
      pre/o markers 12/21/16- HCG:1065.15,AFP:298.8,LDH:1119
      pre/o CT Scan 12/22/16 normal
      r/o 12/22/16
      Post r/o Elevated Markers with INCREASE 4 weeks post r/o;
      PATHLOGY: mixed maligent germ cell 8.6 x 6.2 x 5.9 cm

      -80% Embryonal, 10% Yolk Sac, 5% Teratoma, 5% Choriocarcinoma w/LVI within Spermatic Cord and invasion into Rete Testis
      2nd CT scan on 1/24/17 3 nodes 2 over 2.5, one over 3.5
      BEP x 3 1/27/17
      Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
      2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
      Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

      Comment


      • #4
        http://www.medscape.com/viewarticle/881070

        Good info about study, however, I think it behooves the "experts" to consider the patients age, maybe looking at those dx as teenagers. Not all would recognise horomonal issues.Grant is 7 months out and has glaring signs of possible issues and with messed up labs probably looking at medication.
        17 year old son Grant dx 12/21/16
        pre/o markers 12/21/16- HCG:1065.15,AFP:298.8,LDH:1119
        pre/o CT Scan 12/22/16 normal
        r/o 12/22/16
        Post r/o Elevated Markers with INCREASE 4 weeks post r/o;
        PATHLOGY: mixed maligent germ cell 8.6 x 6.2 x 5.9 cm

        -80% Embryonal, 10% Yolk Sac, 5% Teratoma, 5% Choriocarcinoma w/LVI within Spermatic Cord and invasion into Rete Testis
        2nd CT scan on 1/24/17 3 nodes 2 over 2.5, one over 3.5
        BEP x 3 1/27/17
        Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
        2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
        Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

        Comment

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