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Hi david - i think it would be OK for you to call your oncologist and ask him about this. In particular, the fact that the report says clear and he says there is a 2.1 enlarged lymph are definitely conflicting information, no matter what the next CT shows, and he should be able to tell you more about what he was thinking or why he thinks it wasn't mentioned on the report. good luck..... embee
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Nephew Will (19 years old)
2-14-11 Left I/O; 50% EC, 40% teratoma; 10% yolk sac
3-14-11: BEPx3
4-18-11: Markers normalize
6-13-11: IU pathology: 60% teratoma, 35% EC, 5% yolk sac
7-7-11: left modified template nerve sparing RPLND at IU; 2/19 nodes with teratoma (2%), rest necrotic
10-01-11: 1st post-RPLND TM ALL CLEAR
12-01-11: 1st post-RPLND CT ALL CLEAR -
Well, radiologists are not perfect and things can be missed
I would have thought the oncologist would want it looked at by the radiologist again if something wan't noted on the report that he saw. Maybe ask about that.
Tina, wife to Gene
Right I/O 2/21/11
60% embryonal carcinoma- 40% seminoma with L/V invasion, Stage 1B, Cat Scan- clear
HCG- 1.2, AFP-1.5, LDH-normal
BEP X 2 started 3-7-11
Bleo canceled for 2nd round, lung issues
EP 3-28-11 X 5 days, finished chemo 4-1-11
F/U cat scan 4/14/11 - Stable
3rd round EP as precaution because Bleo was cancelled, start 4-25, finished chemo 4-29-11, pneumonia 5-6-11
6-1-11, 8-3-11, 9-7-11, 10-19-11, 11-16-11, 12-18-11, 1-18-12, 5-8-12 ClearComment
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So I had my first follow with the oncologist today and discussed the paraaortic lymph node only he could see.
After comparing the two CT scans he said that it appears to have gotten smaller and the new imaging suggests it could even be that it wasn't the lymph node all along and instead some nearby muscle. He seemed unbothered by it though as its got smaller.
He said that after surgery lymph nodes can sometimes be inflammed too.
Soo i'm hoping thats the end of that particular story.
Just updating for anyone who comes to look at this thread.
Dave Hanson
Found lump 18/02/2011
Ultrasound confirmed mass 23/02/2011
CT Abdomen, pelvis, chest (clear) 24/02/2011
Left I/O 1/03/2011
99% Seminoma <1% Unknown germ cell 10/03/2011
Staging T1 - 1A 10/03/2011
2 month - 27/04/2011 - All clear!
5 month - 16/07/2011 - All clear!
9 month - 22/12/2011 - All clear!
14 month - 22/12/2011 - All clear!
Yesterday was history, tommorrow a mystery, but today is a gift. That's why it's called the "present"Comment
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A bit of a wild ride, but good news in the end. Congrats Dave!!
Best,
Zsolt
Friendship is born at that moment when one person says to another; "What! You too? I thought I was the only one." - C.S Lewis
“Experience: that most brutal of teachers. But you learn, my God do you learn.” - C.S. Lewis
Mass found 11/20/08
Left I/O 11/25/08
Pathology: Seminoma, Stage 1
Surveillance: All Clear sinceComment
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Glad to hear all is well and thanks for the update. I was wondering how that would all turn out
Tina, wife to Gene
Right I/O 2/21/11
60% embryonal carcinoma- 40% seminoma with L/V invasion, Stage 1B, Cat Scan- clear
HCG- 1.2, AFP-1.5, LDH-normal
BEP X 2 started 3-7-11
Bleo canceled for 2nd round, lung issues
EP 3-28-11 X 5 days, finished chemo 4-1-11
F/U cat scan 4/14/11 - Stable
3rd round EP as precaution because Bleo was cancelled, start 4-25, finished chemo 4-29-11, pneumonia 5-6-11
6-1-11, 8-3-11, 9-7-11, 10-19-11, 11-16-11, 12-18-11, 1-18-12, 5-8-12 ClearComment
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Glad to hear it went well for you.
I am about to go through the same thing you went through. My markers are falling at an insane rate x2 weeks post OP, and the oncologist doesn't think that I will need chemo if they fall as he predicts this next go around. I will know more on Friday (5/13).
He even went as far as to say we would have been discussing surveillance had my lymph nodes not been enlarged. The urologist says it was only by millimeters on my post-OP CT which he said could be reactionary to the surgery, infection, or an allergic reaction, but the oncologist wants to re-visit the lymph nodes again with more emphasis before he recommends a course of action.Comment
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I was searching for the exact same information and found this:
The source:Reports of the upper limits of normal for lymph node size at abdominal computed tomography have varied from 6 to 20 mm. Establishment of an upper limit for node size by specific location, analogous to that which has been reported for mediastinal lymph nodes, was sought. Short-axis diameters of the lymph nodes were measured in 130 patients who were not likely to have enlarged abdominal lymph nodes. Seven locations were defined, and the largest nodal measurement for each was recorded. Histographic analysis and nonparametric statistical methods were used to determine threshold values for the maximum node size in each region. The upper limits of normal by location were as follows: retrocrural space, 6 mm; paracardiac, 8 mm; gastrohepatic ligament, 8 mm; upper paraaortic region, 9 mm; portacaval space, 10 mm; porta hepatis, 7 mm; and lower paraaortic region, 11 mm. Lower paraaortic lymph nodes larger than 11 mm by short-axis measurement are abnormal. In other locations, nodes smaller than 1 cm may be abnormal if the determined thresholds are exceeded.
As stated above, anything bigger than 1 cm is usually considered abnormal.07 Aug 2014 - USG showed 5mm mass, bHCG: 6,45 AFP: 4,58
08 Aug 2014 - left I/O surgery - NSGCT (70% Mature Teratoma, 30% Embryonal Carcinoma), pT1N0M0, no LVI invasion
22 Aug 2014 - Markers after I/O: bHCG: 0,05 AFP: 3,40 - CT scan negative
--- on surveillance ---
20 Oct 2014 - bHCG: 30 AFP: 8
04 Nov 2014 -bHCG: 270 (!) AFP: 26, CT shown 2,5 x 1,5 cm para-aortic lymph node
--- recurrence confirmed ---
12 Nov 2014 - MRI of brain - clear, re-staged to IIB, 3x BEP started, changed to 4x BEP
08 Jan 2015 3x BEP finished (bHCG: <0,1 AFP: 4,88), 4th cycle cancelled
21 Jan 2015 CT scan clear - para-aortic lymph node shrunk to 0,6 x 0,4 cm
--- on surveillance ---
[2015 - all clear]
[July 2016 bHCG:<0,1 AFP:3,24, MRI scan clear]Comment
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