Announcement

Announcement Module
Collapse
No announcement yet.

New Member, 26, just started me chemo ;)

Page Title Module
Move Remove Collapse
X
Conversation Detail Module
Collapse
  • Filter
  • Time
  • Show
Clear All
new posts

  • Sweeny
    started a topic New Member, 26, just started me chemo ;)

    New Member, 26, just started me chemo ;)

    Hey everyone. To start I must say thank you to everyone who has posted on this forum. This website rocks and I have gotten a lot of good info and support here.

    My story:
    I am 26, healthy (personal trainer by trade), and have no family history of testicular cancer.
    8/7 I went into my primary care physician due to left testicular hardness and discomfort to the touch and with running.
    8/9 Had ultrasound, but radiologist MISSED THE TUMOR
    8/30 Saw a urology specialist just to be safe. He knew immediately. Pre-surgery blood values: AFP - 58.7, HCG - 565, LDH - 315
    8/31 Had left testicle removed
    9/13 Diagnosed as Stage 2 with cancer spread to lymph nodes. Post-surgery blood test values: AFP - 68.1, HCG - 903, LDH 231
    9/17 Started 1st of 3 bouts of BEP treatment (7 hours of chemo Monday through Friday, another 7 hours two following Mondays. Repeat every 3rd week for 3 weeks)
    9/18 Today is my second day of 7 hour chemo and so far so good.

    This has been a whirlwind, but I am optimistic, thankful for my youth and strength and certain that God has my back. My character is being molded for sure.Hope this helps someone else like reading these posts helped me. More to come. Love ya'll.

  • Mom2One
    replied
    He's 17 and he asked me when all of this started to please not use his name on the forum, so I respect his privacy. He likes for me to do the research, so I know which questions to ask and what to look out for, but he prefers to go through treatment without worrying about if / when certain side effects will hit since he feels that optimism is his best weapon.

    Thank you for your kind thoughts. I hope your treatment is going well too.

    Leave a comment:


  • Sweeny
    replied
    Hey Mom2One,
    How old is your son? I am sure that BEP will work great for him. Chemo is a necessary evil, but it sure does like to destroy cancer. I wish your son all the best and will keep him in my prayers. Name?

    Leave a comment:


  • Mom2One
    replied
    Hi Sweeny,

    So glad to hear you're doing well with the chemo. That's fantastic!

    My son starts 3x BEP on Monday, so he's right behind you. Thanks for the advice on working out. He's going to be admitted on the long weeks, but should still be able to do some walking around the hospital. And we have a treadmill and weight set for when he's home on the off weeks.

    Keep posting updates, they help other people. And keep on kicking it in the face!

    Leave a comment:


  • JoeysMom
    replied
    Great attitude! That is what got my son Joey through this past year. The bleomycin hit him really hard and at one point we werent sure he could continue, BUT, we did it anyway and now he is just fine. He was worried after his RPLND because he came home on oxygen and couldnt seem to get off of it. No one told us to slowly wean yourself off of the oxygen, thank goodness my sister is a nurse and she told us to slowly reduce it. That was in April, now he is hiking, climbing 13,000 high mountains here in Colorado. Life is great these days and it will be for you too.

    Leave a comment:


  • Sweeny
    replied
    Kicking Cancer in the Face

    Hey everybody. I'm sorry that I haven't posted in a while, but I have been busy kicking cancer in the face. That is what my wife likes to call it at least . I am halfway through my 2nd round of BEP chemotherapy and I have 1 more round. My half-way measure of my tumor markers were great (posted below) and I have been feeling quite good. The hair is gone, but baldness isn't too bad, and I am still working out every week. If there was one suggestion I could give it would be to keep up your workouts if you can, it definitely seems to help me cope with the anxiety and ravenous appetite.

    First tumor marker numbers (just beginning chemo): AFP - 86.4;HCG - 1,100;LD - 160
    Halfway through BEP numbers: AFP - 12;HCG - 6;LD - 157
    Cost: Priceless

    The only bad news I have I suppose is my pulmonary function has decreased about 10%, but they say that will come back post-chemo. That darn Bleomyacin.

    Love you guys,
    Matt

    Leave a comment:


  • Johnpaul20
    replied
    How you getting on sweeny?

    Leave a comment:


  • AZWife
    replied
    You Rock Sweeny

    I hacked my wifes account to make this post. BEP is going to kick cancers ass. It did for me. I was scheduled for 3 cycles but Doc bumped it to 4 at the end because I had a pretty nasty tumor. After my lymphectomy, which was done robitically at the mayo clinic here in Phoenix, we saw that chemo did it's job and killed the cancer. Since you'll have some extra time on your hands go to my blog www.gladitchoseme.com and read about my story. My biggest advise is to shave a mohawk before you lose your hair. leave comments on my blog or email me direct if you want to talk. marcmontini@shurwest.com

    Leave a comment:


  • Johnpaul20
    replied
    I havent experienced this but i have have some discomfort in my "good" ball. Nothing would surprise me as a symptom of chemo, it seems to just rove around the body and say "oh look at that thing there, lets see what i can do to that today!!"

    I hope your urologist can help you

    Leave a comment:


  • Sweeny
    replied
    Concerned

    Hey Everyone. I am now a week and a half into chemotherapy and I am experiencing some weird symptoms I thought I would ask around about. The main thing is that I seem to have some swelling of the skin at the base of my penis. It isn't tender or hard or anything; it just seems like there is extra fluid underneath the skin? Has anyone else experienced this? I believe I heard some skin swellign can happen with chemo. I am curretnly doing the BEP treatment. Any insight would be greatly appreciated!

    Cheers,
    Matt

    P.S.
    I will call my urologist today just to be safe.

    Leave a comment:


  • BarclayBanister
    replied
    Keep us posted and let us know how things are going

    Leave a comment:


  • Sweeny
    replied
    Hey everybody. Thanks for the feedback and encouragement. You were right Barclay, I went in for my first Monday only chemo today and it was only a couple of hours including hookup and all that. Lets just say it was a very nice and well recieved surprise. I was expecting to be locked down for the day. Wahoo.

    So far I have done 1 full week fo my BEP and today (first Monday) and I feel pretty darn good. I have read some of the BEP threads and they are very helpful. All I can think is that this could be so much worse so far. Counting my blessings.

    Good luck John Paul, I will definitely check out your thread!

    Leave a comment:


  • ColdCanadian
    replied
    Hope things are going well for you. Also, hope those days are not all 7 hours. My treatments tend to be 4 to 5 hours with about .2.5 on the bleo days with questions and all.

    All the best. Greg

    Leave a comment:


  • BarclayBanister
    replied
    On the weeks that you only go on Mondays it shouldn't be anywhere close to 7 hrs. If I am recalling correctly isn't that only the bleomycin day which takes only an hour or so? Anyway, the fact that you are in great shape obviously with being a trainer will really serve you well. I was 42 at dx and in pretty good shape (but nowhere near that of a 25 y/o personal trainer) and my oncologist said that definitely helped in tolerating the chemo. It will knock you on your ass some but you should do fine. It is almost like clockwork as to the times you'll feel pretty well and those when you'll feel not so well---has a lot to do with how low your blood counts get before they come back up I think. I developed a blood clot in my right arm from the port but that is not a normal occurrence. You'll obviously lose your hair. And "chemo brain" is very real. Mouth sores were pretty bad at times---tell your dr. as there are "magic mouthwashes" out there that help. I never got nauseated---make sure you uuse the anti-nausea meds. I wouldn't want to do it again but it is extremely effective in most cases and your particular brand (EC) is highly susceptible. Best of luck.

    Leave a comment:


  • Ny01
    replied
    Good luck guys! Stay strong and you'll get through this with new perspective and strength on life! this board will answer all your questions and just about every odd side effect has an answer or explanation from others here.

    Cheers,

    Rob

    Leave a comment:

Working...
X