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Cold feeling in feet after RPLND and numbness?

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  • Cold feeling in feet after RPLND and numbness?

    Hello everyone this is my first post, looking to see if any survivors out there post chemo and rplnd are having similar issues and if so have you tried any medications that worked?
    So I've had a coldness type feeling in my feet ever since my rplnd,I remember when I was post surgery that my whole body was cold including my feet but that was from the blood transfusion I suppose,just to give a little background I was diagnosed stage IIC had a right orchiectomy,3x bep chemo,and rplnd with not much of a break in between,my rplnd surgery was complicated and went some 11-12 hours,they ran into some problems near my right kidney but were able to save it and parts of my vena cava,anyways this coldness that I'm feeling I felt it really bad after surgery to the point where I had them stacking blankets on my feet while in the hospital,well I am 3 years post rplnd and still have this feeling its slightly better than shortly after surgery but sometimes it gets bad.excercise helps and so does wearing compression socks,I ride a bike everyday to work which helps a lot.I've tried neurontin which doesn't seem to help,I tried prescription b vitamin supplement with no change,I also have an issue with my arms and legs "falling asleep" when in certain positions or working with hands,e.g. typing on computer,etc. Any input would be greatly appreciated!,I feel like the doctors just either don't know or there's just nothing to do about it,I guess its a small price to pay for my life...

  • #2
    Thanks for the message. I'm about 3 years post and I am also experiencing numbness and arms legs falling asleep lately? Didn't really come on since a few months back. Haven't spoke to Dr. about it yet, but that's my next step. Don't really want meds. Haven't exercised in pay well site to a virus I picked up, but hoping to get back tomorrow.
    You mentioning cold feet has sparked me to realize at least one of my feet are cold most nights. One is as i type this. I wasn't aware I had a blood transfusion though, not sure if everyone does during an rplnd. You may have just got one due to your complications during surgery.
    I'm very interested in others feeling the same at around the 3yr mark.
    Thanks for posting.


    Originally posted by surf4life View Post
    Hello everyone this is my first post, looking to see if any survivors out there post chemo and rplnd are having similar issues and if so have you tried any medications that worked?
    So I've had a coldness type feeling in my feet ever since my rplnd,I remember when I was post surgery that my whole body was cold including my feet but that was from the blood transfusion I suppose,just to give a little background I was diagnosed stage IIC had a right orchiectomy,3x bep chemo,and rplnd with not much of a break in between,my rplnd surgery was complicated and went some 11-12 hours,they ran into some problems near my right kidney but were able to save it and parts of my vena cava,anyways this coldness that I'm feeling I felt it really bad after surgery to the point where I had them stacking blankets on my feet while in the hospital,well I am 3 years post rplnd and still have this feeling its slightly better than shortly after surgery but sometimes it gets bad.excercise helps and so does wearing compression socks,I ride a bike everyday to work which helps a lot.I've tried neurontin which doesn't seem to help,I tried prescription b vitamin supplement with no change,I also have an issue with my arms and legs "falling asleep" when in certain positions or working with hands,e.g. typing on computer,etc. Any input would be greatly appreciated!,I feel like the doctors just either don't know or there's just nothing to do about it,I guess its a small price to pay for my life...
    9/3/10 - Diagnosed with TC. CT showed mass 9.6cm x 6.5cm
    9/28/10 - Ultrasound found NO Cancer in testicles. Germ cell tumor is primary in retroperitoneum.
    10/6/10 - 1st day of EP chemo started. 3x 5 consec. day cycles
    12/3/10 - Final day of chemo treatment.
    12/16/10 - Residual lymphal mass of 5.0 cm x 2.2cm
    2/3/11- Mass decreased to 4.6cm x 2.1cm.
    3/2/11 - RPLND surgery with Dr. Foster IU
    3/4/11 - All clear
    3/16/11 - 32 staples out
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    • #3
      Could be... neuropathy.
      Could be... pre-existing circulatory issues that just got worse with cancer treatments.
      Could be... Raynauds and other issues from the Bleomycin.

      Probably not a whole lot you can do about it.

      I'm 2.5 years out from my RPLND and most of the issues I had from that have gone away now besides still being 100% retrograde. I still can't feel my left foot much at all, but that's from the 4xEP chemo. My "Achilles heel" nervous system and neuropathy, mostly muscle fatigue, is what I deal with the most, damaged from chemo.

      Yes, a lot of this is the price of the cure, but regular exercise and physical activity helps a lot. Even though my nervous system can't sustain it for very long, I do get out and run a few times per week for 4-5 miles once the weather warms up. Keeps the aches and pains and nerve pain under control, and does help to bring back some feeling in my left foot.

      Not sure what else to say.... Yes doctors might not know what to do, but you could see alternative medicine specialists like accupuncture if something is really bothering you, and see if it helps or not.

      Good luck!
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