My wife and I were just talking and realized we don't know how long after our son finishes his last round of BEP, scans are done. Anyone know the answer to that? Actually I am sure some of you know so well anxiously wait your response. We are to go see Dr. Einhorn as soon as we've done them and we are trying to figure out when to book the hotel and airline tickets for.
Post BEP scans
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I had my post chemo CT scan done a few days before my last bleo day which was my final day of chemo. I'm sure some doctors might do it differently. But usually it should be done sometime leading up or a little after the end of chemo. I'm not sure if there's a protocol that is in place for that.Last edited by Daniel335; 02-14-15, 07:53 PM.3/11/14 - Right orchiectomy
non seminoma - stage IIC 100% embroyal carcinoma
2 enlarged lymph nodes
3/31/14-5/27/14 - BEPx3
lymph nodes decrease in size but still about 3 cm each
7/16/14 - RPLND - found only dead cancer
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i have mine scheduled for 4 days after my last bleo.When i questioned if it was too early, they said it was normal. I was concerned because i didnt know if it would be ample time for my nodes to return to normal, but they said thats what we are doing.
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We were told to have our ctscan done 4-6 weeks after his last bleo. He finished chemo Nov. 25 and he had his ctscan Dec. 24. I would ask your doctor what he thinks. From what I read, everybody is a bit different.9/6/13 Left I/O. 18 year old son diagnosed 9/13/13 Stage 2C. Path report: embryonal and yolk sac with spermatic cord involvement and lymphatic invasion BEP x 3 finished 11/25/13. PC-RPLND with Dr. Foster at IU on 1/21/14. Found only dead cancer! Surveillance as of 1/23/14. All clear as of 5/2018.
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I cannot be certain, but I believe I had one about a week after finishing chemo. My one enlarged node had shrunk, but nt normal, a few months later it was normal, so keep that in mind if the scan is very close to the end of chemo.
DaveJan, 1975: Right I/O, followed by RPLND
Dec, 2009: Left I/O, followed by 3xBEP
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The time frame for a CT versus a Petscan is different. CT can be done very close to finishing Chemo, as to a PETSCAN should be done 4 to 6 weeks out. Chemo has a way of producing false postives with petscan. So the question should be is he getting a CT or a PETSCAN /CT.Jan 2012- U/S mass in Left testicle
Feb 2012- I/O performed to remove cancer
Mar 1,2012- pathology pure seminoma
Mar 7, 2012 PET SCAN stage IIa
April 2012 Mayo clinic carbolite.
May 2012 carbolite failed, started BEP x3
August 7th 2012- BEP complete
April 2013 CT/PET show relapse
May 2013 RPLND
Aug 2013 Relapse again Started VIeP x2
Oct 2013 HDC AUTOLOGOUS
Dec 2013 HDC completed CT/PETSCAN 1.1 cm x .8 cm right lower lung lobe
Feb 2014 confirmed false positive all clear FINALLY !
Jan 2015 1 year cancer free Pet/CT scan
Jan 2016 2 years cancer free "Pet/CT scan
Jan 2017 3 years cancer free "Pet/CT scan
Jab 2018 4 years cancer free "Pet/CT scan, labs, xrays
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Agreed. I had a PET scan 4 weeks after my final Bleo push.
-- MattMarch 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
March 13th: Left IO 100% Classic Seminoma
6.3 x 5.1 x 3.8 cm, no invasion of anything
LDH never fully normalized
Stage: IS
Watchful Waiting
May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
May 12th: started 3xBEP
Neupogen during Cycle 2 and 3
July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
August 4th: Post Chemo CT/PET scan
September 4th: Port removed
Jan 9th 2019: 4.5 YEARS ALL CLEAR !
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The recommendation for CT scan is during or shortly after the 3rd/final course of chemotherapy. I've had mine 3 weeks after finishing 3rd round of BEP. As far as I know the nodes might be shrinking even 1 month post chemo.07 Aug 2014 - USG showed 5mm mass, bHCG: 6,45 AFP: 4,58
08 Aug 2014 - left I/O surgery - NSGCT (70% Mature Teratoma, 30% Embryonal Carcinoma), pT1N0M0, no LVI invasion
22 Aug 2014 - Markers after I/O: bHCG: 0,05 AFP: 3,40 - CT scan negative
--- on surveillance ---
20 Oct 2014 - bHCG: 30 AFP: 8
04 Nov 2014 -bHCG: 270 (!) AFP: 26, CT shown 2,5 x 1,5 cm para-aortic lymph node
--- recurrence confirmed ---
12 Nov 2014 - MRI of brain - clear, re-staged to IIB, 3x BEP started, changed to 4x BEP
08 Jan 2015 3x BEP finished (bHCG: <0,1 AFP: 4,88), 4th cycle cancelled
21 Jan 2015 CT scan clear - para-aortic lymph node shrunk to 0,6 x 0,4 cm
--- on surveillance ---
[2015 - all clear]
[July 2016 bHCG:<0,1 AFP:3,24, MRI scan clear]
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They can shrink up to 1 year after chemo.
I am 6 months out and the one remaining node is still shrinking.
- MattMarch 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
March 13th: Left IO 100% Classic Seminoma
6.3 x 5.1 x 3.8 cm, no invasion of anything
LDH never fully normalized
Stage: IS
Watchful Waiting
May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
May 12th: started 3xBEP
Neupogen during Cycle 2 and 3
July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
August 4th: Post Chemo CT/PET scan
September 4th: Port removed
Jan 9th 2019: 4.5 YEARS ALL CLEAR !
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As far as the PET scan, which should really only be used in seminoma patients with a residual mass after chemotherapy of >3cm, the scan should occur at least 6 weeks after chemotherapy because of the false positive risk mentioned previously. I am not aware that there is a set time for the CT. I think 4-6 weeks is reasonable. If you get one immediately afterwards and the tumors appear to be shrinking then what? Do you need another one in a month? I would think giving the chemo a chance to work for a few weeks before imaging is probably more appropriate.Oct. 2005 felt lump but waited over 7 months.
06.15.06 "You have Cancer"
06.26.06 Left I/O
06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
06.30.06 It's Official - Stage I Seminoma
Surveillance...
Founded the Testicular Cancer Society
6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary
For some reason I do not get notices of private messages on here so please feel free to email me directly at [email protected] if you would like to chat privately so as to avoid any delays.
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All makes sense and thanks to all of you for answering. I think the oncologist wants one month but Dr. Einhorn wrote and said he wants to see our son right after his last round is finished (within that week) but to take the post-chemo scans to IU with us. I guess we will just ask them to do them the week of the final bleomycin and go from there.
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If that is what Dr. Einhorn wants then I certainly would not second guess him.Oct. 2005 felt lump but waited over 7 months.
06.15.06 "You have Cancer"
06.26.06 Left I/O
06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
06.30.06 It's Official - Stage I Seminoma
Surveillance...
Founded the Testicular Cancer Society
6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary
For some reason I do not get notices of private messages on here so please feel free to email me directly at [email protected] if you would like to chat privately so as to avoid any delays.
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