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Relapsed extragonadal primary mediastinal non-semienoma

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  • It was very difficult catching up on this post. Martin was truly and inspiration. However, the post from b45 is clear evidence of Martin's legacy carrying on. Best wishes b45.


    • Keep thinking about Martin! RWA thanks for bumping this thread back up. Continued prayers for b45.
      17 year old son Grant dx 12/21/16
      pre/o markers 12/21/16- HCG:1065.15,AFP:298.8,LDH:1119
      pre/o CT Scan 12/22/16 normal
      r/o 12/22/16
      Post r/o Elevated Markers with INCREASE 4 weeks post r/o;
      PATHLOGY: mixed maligent germ cell 8.6 x 6.2 x 5.9 cm

      -80% Embryonal, 10% Yolk Sac, 5% Teratoma, 5% Choriocarcinoma w/LVI within Spermatic Cord and invasion into Rete Testis
      2nd CT scan on 1/24/17 3 nodes 2 over 2.5, one over 3.5
      BEP x 3 1/27/17
      Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
      2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
      Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.


      • I never wrote to Blondie but I miss his updates and spirit. Depressing.


        • Reading Blondie's story is the reason I finally pulled the chord and jumped into this group. I wish I had known him.