discovery during ultrasound

[biwi]

I'd rather eliminate any cancer and have to be on TRT. TRT is a pretty well known entity and with the right docs not difficult to manage.

[Davepet]

[QUOTE=the last tommy;n290911maybe im missing something. this is apparently a pretty complicated case... i was really set on partial until all this. i don't even like to take ibuprofen so to be on a lifelong medication at 32 makes me feel very uneasy..[/QUOTE]

Sorry you are in this position, but really the only thing complicated is that you are already down to one & want to avoid the complications of having none. While exceptions exist, the odds of your keeping your right one seem very low, even with a partial.My advise is to not think of TRT as a "drug". It is simply a hormone that you already have in plentiful supply even with just one. You are just replacing what you have had all your life. Yes it is less convenient than having a testicle or two hanging around, but sometimes you have to do what's needed to save your life. It won't be as bad as you are thinking it will be. You will deal with it as many of us have & go on to live your life.

Dave

[the last tommy]

appreciate everyone's responses. a lot of strange twists and turns with all this but all of it aside i'm now headed to indiana tomorrow for a second opinion and will probably just do whtever dr. foster recommends. we'll see...

[Davepet]

It's been almost two months since your last post, you haven't had surgery yet?

Dave

[the last tommy]

well, saw dr foster 2 weeks ago or so. he said to wait 3 months to scan again and that my cure rate would be the same even if it was cancer. something about it being very small and also the shape of it being not circular has him unconvinced that its cancer. said something like, if you were to scan a random set of 1,000 people with no other testicular related symptoms you'd find some abnormalities that may resolves without even knowing about it so no need to go removing every testicle that has something on it especially if its your only one. anyhow gunna get scanned now in a few months and see what happens next.

[the last tommy]

another scan and it looks to be the same size as before. a dr. in indiana said 6 months, another ultrasound and bloodwork. wew lads. we'll see...


btw, dr foster didn't view my scan himself. he is having some kind of health problems of his owm so keep him in your prayers.

[buttercup902]

great news!

[hinear]

I also have similar issue.
Dec15 My Left testis has 4mm mass, right testis has 2.5cm mass
Jan16 Left testis mass become 6mm, Right I/O
Feb16 Left testis remain the same as 6mm. Still have blood flow, suggest of aggressive cancer.

However my doctor do not allow me to do partial Orchiectomy. He said if it grow >1cm, I need to do a complete orchiectomy or Chemo

[the last tommy]

I also have similar issue.
Dec15 My Left testis has 4mm mass, right testis has 2.5cm mass
Jan16 Left testis mass become 6mm, Right I/O
Feb16 Left testis remain the same as 6mm. Still have blood flow, suggest of aggressive cancer.

However my doctor do not allow me to do partial Orchiectomy. He said if it grow >1cm, I need to do a complete orchiectomy or Chemo

ah they suggested surveillance for the 2nd small finding for you too, eh? sounds like you have a similar situation as myself, except yours came all at once. how often are you getting scans? are you in the usa, may i ask? good luck to you, i am a few months away from my next scan and finding myself pretty nervous.

[hinear]

I keep doing ultrasound and blood test once per month.

The recent scan is 30/3, the size remain the same as 5-6mm, tumor to be consider.

The urologist told me that over 3-4months, the size remain the same. As I have one testicular left, it is worth to keep watching it. Some tumor growth to 1cm and stop growing.

If it grows >1cm, there are 2 options
1. Treat as relapse and do 3-4 cycle of BEP. If the tumor size reduce, no need to do orchiectomy
2. Left Orchiectomy

I am from Hong Kong. I visit both public and private hospitals for consultation, I believe they have enough professionals.

[Daniel_Eye]

ok so the next turn of events... and maybe this should go into the 2Xers forum at some point. i don't know, but i'll keep it here for now. i guess the same people are looking at it either way

anyhow, got a call from the dr. dr says neither he nor the other 20 something urologists in his urology group have seen a cancer spread to the second testicle or a new cancer occur in the second testicle. they were pretty evenly split on remove/surveil. so i am being referred to another urologist in town who apparently has had experience opening testicles, removing lesions, and sewing them back. hes a fertility specialist which seemed odd. is anyone surprised by this? i guess because i have been reading these forums that i thought any dr would've seen a patient with cancer in two testicles at least once, but a whole group having not?

well, now to make another dr's appointment.

Hi Tommy

This is not odd at all. I had to have a testicular biopsy on my other testicle to extract sperm by a leading fertility Urologist in Boston, MA, USA. I required this because I found out I was azoospermic meaning I had little to no sperm production. While it was not the same exact procedure as you are having these doctors are always in that area and have opened scrotums and testicles of many men with their two hands. They use a massive microscope during the operation but, I'm not sure about how it works to remove a tumor.

When I had my orchy done I actually had two small nodes that were found in my left testicle. I mention this because partial biopsies can miss tumors, which can cause a spread of the cancer. I don't want to scare you but it is very risky. I don't think they even do it in the states, at least the two Urologists I spoke to wouldn't and one of them was the Dr who did my TESA/TASA biopsy.

If it were me, I'd probably have them remove the testicle and go on testosterone replacement therapy. Oh and by the way, the first three days after the testicular biopsy are pure hell. Every moment you stand up it feels like Bruce Lee has a death grip on your sac. But its your body, your life and ultimately your choice.

I wish you all the best luck and please keep us updated.

Cheers,
Daniel

[Davepet]

If it grows >1cm, there are 2 options
1. Treat as relapse and do 3-4 cycle of BEP. If the tumor size reduce, no need to do orchiectomy
2. Left Orchiectomy

I am from Hong Kong. I visit both public and private hospitals for consultation, I believe they have enough professionals.

BEP is not very effective on tumors in the testicle, that proposal would have me questioning my doctor's experience.

Dave

[hinear]

BEP is not very effective on tumors in the testicle, that proposal would have me questioning my doctor's experience.

Dave

Yes it is not very effective. The Doctor mentioned to me as well.

However, I prefer to take a chance rather than losing the remaining testicular.

[Davepet]

Yes it is not very effective. The Doctor mentioned to me as well.

However, I prefer to take a chance rather than losing the remaining testicular.

That is your choice, of course, Personally, if part of my body is trying to kill me, I prefer to get rid of it rather than take a chance it might kill me due to very ineffective chemo,That is not a gamble I would take. Living with no testicles is way better than dying with one. JMHO.

Please, let us know what you decide, and what the outcome is,

Dave