Announcement Module
No announcement yet.

Surveillance or BEPx2 (Pure Embryonal Carcinoma )

Page Title Module
Move Remove Collapse
Conversation Detail Module
  • Filter
  • Time
  • Show
Clear All
new posts

  • #16
    Sorry to hear the news of relapse. 3x bep is tough but it will go by fast and you'll be cured. Glad it was caught early. Keep us updated and ask any questions you have! I just got done 6-7 weeks ago with 3x bep, I also had 100% EC.
    11/16- Pain/lump in R testicle 11/16- US finds multiple masses 11/16- Right I/O path multifocal largest nodule 2.1cm 100% EC with LVI/rete testis invasion. 12/16- Ct/markers normal stage 1b 12/16- Ct/markers normal 1/17- rplnd pN1 2 nodes 1.8/1.4 cm EC Stage IIA 2/20 ct/markers clear! 3/1/17 started androgel for low T 4/27/17 Relapsed. Multiple lymph nodes in mesentary and few nodes in retriperitoneum. Start 3x bep. Ct after 2nd cycle revealed all masses already resolved! Continue last cycle! 6/26/17 Finished 3x bep!


    • #17
      Originally posted by hinear View Post
      Afp raise from 3 to 35 to 1xx
      7 is normal
      Then I do a Ct scan and observe a lymph node of 1.6 cm
      Sorry to hear man. Did you do the adjuvant chemo in the end, or surveillance?
      Age 31 - Portland, OR
      01NOV16- Pain in right testicle, palpable mass
      13NOV16- R I/O. Markers normal
      27NOV16- Stage Ia non-seminoma, 1.3cm, 100% EC, no LVI
      06DEC16 - CT scan clear
      09DEC16 - Started 1xBEP. Neutropenic at day 15; Worst part for me was bleo (allergic).
      03JAN17- Ended 1xBEP; start surveillance
      18MAR17-2nd pathology report shows 90% EC , 10% seminoma


      • #18
        I do surveillance, but relapsed

        I have 3 cycles of BEP, going through my 2nd cycles now.
        I think my body is getting worst, it takes longer time for me to recover.

        I hope the 3rd cycle has decreased of toxic, otherwise it must be worst than this time
        30/12/16 2.5cm on right testis, 6mm on left testis.( B-HCG 0.34 <2,AFP 4.5 <7)

        24/01/17 Right I/O
        (Pure embryonal carcinoma, no lymphovascular, no invasion of tunica albuginea, rate testis, epididymis, spermatic cord. )

        14/02/17 AFP 2<7, 6mm on left testis
        17/02/17 Survelliance
        06/03/17 CT scan (Visible lymph nodes in the mediastinum . probable benign reactive appearance)

        28/07/17 AFP 35 (normal 7), relapsed confirmed
        04/08/17 CT scan (new metastatic para-aortic lymph node 1.6cm AP1.5cm)
        10/08/17 Start 3 BEP, AFP201 (normal 7)
        06/10/17 End of 3 BEP, AFP3 (normal7)
        17/10/17 CT scan
        27/10/17 Prev left para-aortic lymph node not seen. AFP2(normal 7), B-HCG <2, LDH 208( normal 118-220)


        • #19
          Chemo is an ordeal for sure, I hear you and have been through it! During the last round I was literally counting the days, and was encouraged as each day meant I was a little closer to the finish line.
          6/5/15: bHCG 27,AFP 8.66, LDH 361, 5.6cm lymph node - Stage IIC
          6/16/15: Left I/O 85% EC, 10% chorio, 5% yolk sac opinion 2 (mayo) 90% EC, 10% yolk sac
          7/7/15: bHCG 56, AFP 42, LDH 322
          7/13/15 - 9/18/15: 4xEP
          10/1/15: bloodwork normal, ct scan shows 2 lymph nodes 1.0cm
          10/26/15: 2nd opinion on CT results - lymph nodes normal. Surveillance!
          4/6/16: 1.7cm X 1.5cm lymph node found with markers normal.
          4/20/16: RPLND @ IU - teratoma only!
          9/18/2017 all clears up to this date!