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About to start my last long week of 3xBEP

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  • About to start my last long week of 3xBEP

    Any advice from anyone? How'd the last cycle compare to the others for you? My second was different than my first not necessarily worse or better just different side effects. I'm looking forward to being done with all these treatments and getting back to feeling normal. The end is in sight just gotta power through this last (hopefully) hurdle. Einhorn was confident chemo (saying close to 100% he felt) alone is all I will need and I seem to think he knows a thing or two about this lol.

  • #2
    Second question. How do I add a signature to the end of my posts? I went to my profile, edit settings, account and clicked on edit post signature and I type in

    3/29/17 Diagnosed
    100% Embryonal
    4/10/17 Left I/O
    CT scan shows a few suspicious lymph (biggest 1.9 cm)
    5/8/17 - 7/3/17 3xBEP

    and I get an error. Is there something like quotes or something I need to put around it for it to go through or am I in the wrong place.


    • #3
      For me, each round was similar, just a bit more intense/uncomfortable.

      As far as your signature, sounds lie you are doing it correctly, the forum software has been a bit flaky from time to time, I'd try again later.

      Jan, 1975: Right I/O, followed by RPLND
      Dec, 2009: Left I/O, followed by 3xBEP


      • #4
        For me, round 3 was the easiest because I knew exactly how it would play out - all the symptoms, side effects, how to manage my energy... Plus it's the last one, you're ALMOST there!! Take care


        • #5
          DCALANDRELLI~ Hope your last 5 day goes well. I think it varies individual to individual. My son was the most tired toward end of the last five day. I could barely get him to make a lap around the hospital floor, and he was walking multiple laps numerous times other cycles. Wishing you the best!!!
          17 year old Grant dx 12/21/16
          pre/o markers 12/21/16- HCG:1065.15,AFP:298.8,LDH:1119
          pre/o CT Scan 12/22/16 normal
          r/o 12/22/16
          Post r/o Elevated Markers with INCREASE 4 weeks post r/o;
          PATHLOGY: mixed maligent germ cell 8.6 x 6.2 x 5.9 cm

          -80% Embryonal, 10% Yolk Sac, 5% Teratoma, 5% Choriocarcinoma w/LVI within Spermatic Cord and invasion into Rete Testis
          2nd CT scan on 1/24/17 3 nodes 2 over 2.5, one over 3.5
          BEP x 3 1/27/17
          Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
          2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
          Post Chemo RPLND 5/8/17: pathlogy Teratoma , 3 large masses removed


          • #6

            My 3rd cycle was the easiest for me too. I had better control of nausea and fatigue and I was seeing the end of the race. Keep it up, a few more shots to get !

            All the best,

            December 15, 2015 : Right I/O. Markers normal.
            December 24, 2015 : Merry Christmas ! 100 % pure EC, no LVI.
            January 7, 2016 : CT scan : 2 RPLN of 8 and 9 mm
            February 2016 : Markers normal.
            March 2016 : Markers normal.
            April 2016 : Abnormal B-HCG (43). 14 mm (from 8) and 10 mm (from 9) lymph nodes.
            April 25, 2016 : Happy birthday ! Relapsed confirmed.
            May 2, 2016 : BEP x 3 begins.
            July 3, 2016 : BEP x 3 ends.
            July 2016 : Serum tumor markers normal. 10 mm (from 14) and 6 mm (from 10) lymph nodes. Back on surveillance !
            December 23, 2016 : Merry Christmas ! Serum tumor markers normal. 6.8 mm (from 10) and no more visible (from 6) lymph nodes. Surveillance continues.
            June 2017 : Serum tumor markers normal. 4 mm (from 7 mm) lymph node. Surveillance continues.


            • #7
              I was the opposite, it was the worst one for me by far, but it was still tollerable, especially knowing the end was in sight!
              24 year old diagnosed 6/11/16
              Pre/o markers 9/11/16 - HCG 15, AFP 210, LDH 539
              Pre/o CT Clear
              Non-seminoma (80% embryonal carcinoma, 10% yolk sac tumour, 5% chorea carcinoma, 5% seminoma)
              Post-op markers - 14/12/16 - HCG 35, AFP 1050, LDH 430
              Post-op CT with one enlarged lymph node - 1.5x1cm
              Borderline stage 2B/3B
              BEPx3 started 15/12/16 (Borderline BEPx4 - Advise of Dr. E to only do 3 rounds)
              CT and markers clear - in remission - 28/2/16


              • #8
                One positive just finished my last day of all 3 drugs! No more longest long days! The light at the end of the tunnel is near!


                • #9
                  the last cycle probably had the most fatigue for me, especially the long week. Every week for me was a struggle mostly because I was tired. I ate everything in sight!