Surveillance protocols

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  • Addictedangel
    Registered User
    • Aug 2017
    • 13
    #1

    Surveillance protocols

    My husband's oncologist is suggesting surveillance every 4 months (My husband just finished 1x bep).. but every thing I read suggests it being done every month...what do you guys think?

    He has stage 1a nonseminoma
    What do I do once I finish treatment?
    http://tcrc.acor.org/whatnow.html
    Crystal wife to Jonny (30) diagnosed

    1/28/2015: got sick after dirt bike riding, right testicle swelling
    5/2015: saw a dr who said it was torsion but since the swelling "went down" we shouldn't worry
    02/2017: swelling increased tremendously no longer "went down"
    07/24/2017: had realistic dream telling him it was cancer, went to ER, was told it was never torsion and the tumor was cancer
    Afp: 4759
    Hcg: <1
    Ldh: 258
    07/28/2017: right orchiectomy ct scans all clear
    08/04/2017: nonseminoma stage 1 no invasion 40% ec 60% yolk
    08/28/2017: pet-ct and brain ct due to headaches
    Afp: 11.8
    Hcg: <2
    Ldh: 138
    09/06/2017: pet and brain clear
    09/18/2017 afp down to 2.9! Stage 1a
    10/02/2017 1xbep starts
    Tags: None
  • dcalandrelli
    Registered User
    • Apr 2017
    • 288
    #2
    Most here on being seen about once every 3 or 4 months. Once a month seems a bit excessive honestly.
    3/29/17 Diagnosed 100% Embryonal 4/10/17 Left I/O CT scan shows a few suspicious lymph (biggest 1.9 cm) 5/8/17 - 7/3/17 3xBEP 7/20/17 CT Scan Clear, AFP has uptick to 19 8/16/17 AFP Drops in half to 10, ALL CLEAR! 6/08/23 All clears up to here! 6 years all clear! Son born September 2022, conceived naturally!

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    • RJKD
      Registered User
      • Jul 2015
      • 740
      #3
      Blood tests per 3 months for the first 2 years. CT scan of the abdomen/pelvis once a year for the first 2 years. Chest x-rays every 6 months for the first 2 years. Those are the NCCN guidelines and the guidelines that I am following.

      Surveillance is for 5 years at least. The schedule changes after 2 years though.
      Diagnosed at age 31. Treated in NYC. Now living in Ottawa, ON, Canada.

      7/1/2015: felt tiny lump on side of R testicle
      7/30/2015: Ultrasound shows 2 intra-testicular masses.
      7/31/2015: tumor markers normal, CXR clear
      8/5/2015: R orchiectomy
      8/11/2015: Pathology: 1.2 x 1.0 x 1.0 cm, embryonal 80%, seminoma 20%, with LVI and rete testis invasion
      8/14/2015: CT abdomen/pelvis clear, Stage 1b
      8/24/2015: started 1 x BEP

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