Hello All.
Another quick update:
My son is on Day 6 of cycle 3 now, so he just finished his long week yesterday which went better than expected. Cycle 2 was his worst- he had insomnia and didn't sleep at all on Day 1 into 2, and the nausea was worse too. After his insomnia, he basically stayed in bed for the next 5 days. He bounced back the next week by Tuesday, though, and felt pretty good for his bleo weeks. His Cycle 3 long week was much better- no insomnia and nausea under control. I think it's because for Cycle 2, he was just taking Ativan at home, and for Cycle 3 they added Olanzapine at night which really seemed to help with nausea and knocked him out so he slept through the night.
His neutrophils have stayed above 1,000 so far on the weekly checks after they had dropped to 390 on Cycle 1. Tumor markers for Cycle 2 were AFP 3.9 and LDH 267. The LDH concerns me a little because it has crept up slowly and is over the 111-245 stated range.
LDH:
2/12- 204
3/09- 204
3/30- 222
4/20- 267
No HCG results, but it had dropped to <1 on 3/30.
We will see the oncologist again on the Friday after the final bleo, and I think he wants to do scans two weeks after that.
Another quick update:
My son is on Day 6 of cycle 3 now, so he just finished his long week yesterday which went better than expected. Cycle 2 was his worst- he had insomnia and didn't sleep at all on Day 1 into 2, and the nausea was worse too. After his insomnia, he basically stayed in bed for the next 5 days. He bounced back the next week by Tuesday, though, and felt pretty good for his bleo weeks. His Cycle 3 long week was much better- no insomnia and nausea under control. I think it's because for Cycle 2, he was just taking Ativan at home, and for Cycle 3 they added Olanzapine at night which really seemed to help with nausea and knocked him out so he slept through the night.
His neutrophils have stayed above 1,000 so far on the weekly checks after they had dropped to 390 on Cycle 1. Tumor markers for Cycle 2 were AFP 3.9 and LDH 267. The LDH concerns me a little because it has crept up slowly and is over the 111-245 stated range.
LDH:
2/12- 204
3/09- 204
3/30- 222
4/20- 267
No HCG results, but it had dropped to <1 on 3/30.
We will see the oncologist again on the Friday after the final bleo, and I think he wants to do scans two weeks after that.
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