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Hi; I am a Turkish testicle cancer patient from Turkey. First of all I would like to share my story:
I was experiencing abdominal pain for about 1.5 years. I have visited a number of different doctors and hospitals, unfortunately none of them could identify the problem. On January, I have visited an Internal Diseases Specialist, who suspected of Aortic Aneurysm. After Ultrasound and MRI scans, they found a 5.5 x 4.5 cm mass in my abdomen. He, again, suspected of testicle cancer and demanded another Testicular Ultrasound scan. And an 8-mm testicular mass was seen there. They said I was a Phase IIC Testicular cancer patient.
I had my right I/O on 1st of February, and started 3xBEP afterwards. The mass in the testicle was pure seminoma. The chemo ended on April 17, my oncologist demanded an MRI scan. The mass in my abdomen was slightly shrank, but was still over 3 cm's. After a PET scan, it also seemed active and the oncologist suggested an RPLND operation to remove the mass.
After discussing the options, on 29 May, I had an RPLND operation. Initially they told the mass was over vena cava and they might replace it with a graft. But during the operation, they could completely resect the abdominal mass, and also the mass inside vena cava, without the need for a graft.
The pathology report says the main tumor is 5.8x5.6x3.5 cm's and the tumor inside vena cava is 2.6x2x1 cm and all of them was teratoma.
But as the urologist pointed, the report also says there are 6 lymph nodes analysed and 1 of them was metastatic. He didn't have any idea if I will need any more chemotheraphy, so he will discuss my situation with an oncologist next week. I also will discuss it with my own oncologist.
I wanted to share my experience if someone had gone through a similar experience and give me advice on this. Regards from Turkey, hope we all recover with no relapses
I was experiencing abdominal pain for about 1.5 years. I have visited a number of different doctors and hospitals, unfortunately none of them could identify the problem. On January, I have visited an Internal Diseases Specialist, who suspected of Aortic Aneurysm. After Ultrasound and MRI scans, they found a 5.5 x 4.5 cm mass in my abdomen. He, again, suspected of testicle cancer and demanded another Testicular Ultrasound scan. And an 8-mm testicular mass was seen there. They said I was a Phase IIC Testicular cancer patient.
I had my right I/O on 1st of February, and started 3xBEP afterwards. The mass in the testicle was pure seminoma. The chemo ended on April 17, my oncologist demanded an MRI scan. The mass in my abdomen was slightly shrank, but was still over 3 cm's. After a PET scan, it also seemed active and the oncologist suggested an RPLND operation to remove the mass.
After discussing the options, on 29 May, I had an RPLND operation. Initially they told the mass was over vena cava and they might replace it with a graft. But during the operation, they could completely resect the abdominal mass, and also the mass inside vena cava, without the need for a graft.
The pathology report says the main tumor is 5.8x5.6x3.5 cm's and the tumor inside vena cava is 2.6x2x1 cm and all of them was teratoma.
But as the urologist pointed, the report also says there are 6 lymph nodes analysed and 1 of them was metastatic. He didn't have any idea if I will need any more chemotheraphy, so he will discuss my situation with an oncologist next week. I also will discuss it with my own oncologist.
I wanted to share my experience if someone had gone through a similar experience and give me advice on this. Regards from Turkey, hope we all recover with no relapses
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