Hello all,
I've come back to the forum yet again for some advice and support. About 7 months ago I had my last remaining testicle removed and the pathology confirmed pure Seminoma. My Bhcg was elevated, but then normalized after the surgery. All of the doctors I saw, including Doctor E, recommended surveillance given a smaller primary tumor size.
Fast forward to today and I am now dealing with a recurrence with a 1.4 cm para-aortic lymph node that was previously .5cm. My bHCG is once again elevated, this time to 71.
I feel incredibly unlucky through all of this as I have been told on many occasions the odds of some these things happening to me are below 5%.
What I hope you all fine member of the community can help me with is stories of how your recurrence was treated. My oncologist is recommending standard radiation and I met with the doctors there yesterday. He seemed very confident in achieving success, but when we talked about long-term side effects he was quoting risks of 1-2%, which are way lower than many published studies out there on second malignancies after radiation.
I've also inquired about surgical removal via RPLND. I don't qualify for the SEMS trial because this is my second go around with cancer which is an exclusion. When I met with the chief Urologist he talked about doing the procedure roboticaly which is how they do them at UM now I guess (link: https://medicine.umich.edu/sites/def...20Update_0.pdf)
I haven't talked with any doctor about chemo yet, however after talking with both my oncologist and Dr. E they both advised against any further Bleomycin given the potential fatal side effects.
I've already reached out to Dr. E, but is going to be in Kenya for the next week and a half.
Any thoughts or similar stories?
Thanks,
​Patrick
I've come back to the forum yet again for some advice and support. About 7 months ago I had my last remaining testicle removed and the pathology confirmed pure Seminoma. My Bhcg was elevated, but then normalized after the surgery. All of the doctors I saw, including Doctor E, recommended surveillance given a smaller primary tumor size.
Fast forward to today and I am now dealing with a recurrence with a 1.4 cm para-aortic lymph node that was previously .5cm. My bHCG is once again elevated, this time to 71.
I feel incredibly unlucky through all of this as I have been told on many occasions the odds of some these things happening to me are below 5%.
What I hope you all fine member of the community can help me with is stories of how your recurrence was treated. My oncologist is recommending standard radiation and I met with the doctors there yesterday. He seemed very confident in achieving success, but when we talked about long-term side effects he was quoting risks of 1-2%, which are way lower than many published studies out there on second malignancies after radiation.
I've also inquired about surgical removal via RPLND. I don't qualify for the SEMS trial because this is my second go around with cancer which is an exclusion. When I met with the chief Urologist he talked about doing the procedure roboticaly which is how they do them at UM now I guess (link: https://medicine.umich.edu/sites/def...20Update_0.pdf)
I haven't talked with any doctor about chemo yet, however after talking with both my oncologist and Dr. E they both advised against any further Bleomycin given the potential fatal side effects.
I've already reached out to Dr. E, but is going to be in Kenya for the next week and a half.
Any thoughts or similar stories?
Thanks,
​Patrick
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