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Confirmed I have Bleomycin Lung Toxicity

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  • vxmike
    started a topic Confirmed I have Bleomycin Lung Toxicity

    Confirmed I have Bleomycin Lung Toxicity

    I finished BEPx4 on May 7th. About a week later I started having lung pain when breathing in deep and could not take a full deep breath. I had a CT ordered from Oncology that showed multiple ground glass opacities in multiple lung lobes.

    It took me two weeks to see a Pulmonary specialist today. She confirmed there is practically no reason to have these lung findings and symptoms at my age with no risk factors other than recent Bleo and diagnosed me. I’m starting on Prednisone 60mg for a month then another CT.

    Anyone else here have confirmed Bleo lung toxicity? If so how did it work out and do you have any long lasting effects?

  • Ryan Bi
    replied
    vxmike ,

    This is a good news. Happy for this outcome!
    Thank you very much for your update.

    Amy,Ran’s mom

    Leave a comment:


  • vxmike
    replied
    Had a chest CT yesterday after a month on 60mg Prednisone. Fortunately the report stated the lung inflammation appears to be nearly all resolved.

    Looks like I got lucky here getting on Prednisone quickly.

    Leave a comment:


  • vxmike
    replied
    Originally posted by Violet0729 View Post
    My husband is on round 3 of BEPX3 and he has a dry cough. I guess we gotta keep an eye on that. Is lung toxicity manageable?

    Yeah for sure. It’s not common but does happen. They’ll be able to see lung damage on his post-chemo CT if there is any.

    The outcome really varies with lung toxicity. Some people recover fully with steroids and some progress to respiratory failure and death. I’m not getting worse and my cough is improving, so I think death is unlikely for me. Hoping I don’t end up with permanent damage though.

    Leave a comment:


  • vxmike
    replied
    Originally posted by JoeTheAstronaut View Post
    That really sucks!! What does that mean for you? Is it manageable or can it be repaired?
    Unknown at this time. I’m on Prednisone now and not getting worse. After a month I’ll get another CT to check the progress.

    Leave a comment:


  • Violet0729
    replied
    My husband is on round 3 of BEPX3 and he has a dry cough. I guess we gotta keep an eye on that. Is lung toxicity manageable?

    Leave a comment:


  • JoeTheAstronaut
    replied
    That really sucks!! What does that mean for you? Is it manageable or can it be repaired?

    Leave a comment:


  • Trekga
    replied
    So sorry to hear. Keep us updated.

    Leave a comment:

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