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When HDC doesn’t work

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  • #16
    Here in France at Gustave Roussy, they have a new protocol for poor prognosis called GETUG13 but it looks like it's only for TGNS...
    I don't know if it can help...
    Gustave Roussy is a center of excellence in TC


    • #17
      Hi Dook, thank you very much for the links, and for telling me the name of the center of excellence there in France, it's good to know and I'm looking now for more information.

      Although the histology showed that the tumour was seminoma, it's considered that it's a nonseminoma due to the high level of bHCG (probably choriocarcinoma).

      Today we'll repeat the blood test.


      • #18
        The professor at Gustave Roussy :


        • #19
          Hello all, I just wanted to bring GOOD news.

          All the doctors agreed: he needs more chemo. He started Gemcitabine + Taxol on 24th July. The tumour marker started to drop inmediately, all his doctors (Seville, Barcelona and Einhorn) are very happy.

          He doesn't feel bad at all with this chemo (just very tired 24-48 hours after the chemo), only 1 day at week, with ZERO nausea (I even can't believe this) so all this month he's been with (almost) normal life and enjoying it, eating all the food he wants, not losing weight and feeling like normal.

          We already know that the only new nodule was the lung one (they are very happy because of this too), so the doctors want him to receive at least 3-4 courses of Gem+Tax and then check, if the nodule is still there, do the surgery (they say it's placed on the external side, so it will be an "easy" surgery).

          His bhCG is 63 now (normal range 0-10), with the last shot of chemo given yesterday (1 course complete), so we think this is a very good sign.

          Any similar experiences or support comments are welcome.

          Thanks for being there.