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I need your opinion please

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  • I need your opinion please

    I would like you opinions on my chances of being cured already.

    Pathology: EC 50%, Seminoma 40%, Teratoma 10%

    Markers pre chemo post left i/o: AFP: normal, bHCG: normal, LDH: 360

    CT Scan pre-chemo showed retroperitoneal biggest node 1.9cm, mediastinal biggest 2.1cm, lung 4x5cm 5 mets total

    Did 4BEP, post chemo CT scan showed under 1cm for retroperitoneal and mediastinal lymph node went from 2.1 to 1.2cm and lung is under surveillance as it went for 4x5cm to 1.8x1.1cm and onc hopes it continues to shrink so he ordered an other CT 6 weeks later.

    So no RPLND or Thoracotomy recommended yet.

    I can't stop searching and looking at studies and statistics and comparing myself with case summaries from I am worried live cancer is still there in the lung or Teratoma will pop up somewhere on future CT scans.

    What do you guys think?
    Last edited by Webzfactory; 08-14-19, 01:01 AM.

  • #2
    How long after chemo was the CT?
    Jan, 1975: Right I/O, followed by RPLND
    Dec, 2009: Left I/O, followed by 3xBEP


    • #3
      Originally posted by Davepet View Post
      How long after chemo was the CT?
      Just over one week


      • #4
        Glad to see you are on surveillance! Honestly I would try to stay away from researching stuff and just try not think about it. I know that’s tough because I was the same way after I finished chemo but you will drive yourself crazy.

        I had 3 x BEP in June of 2017 with one enlarged node at 1.4 CM. I as well had some Teratoma in my pathology and I will have my 2 year post chemo CT scan coming up in October. I have been all clear even since! Hope this helps!


        • #5
          Since the CT was so close to the end of chemo,there is a good chance the nodes will shrink further mine did.
          Jan, 1975: Right I/O, followed by RPLND
          Dec, 2009: Left I/O, followed by 3xBEP


          • #6
            Eh, time to log off the Internet and just go live your life every single day.

            Worrying never got me anywhere, other than holed up in a corner in tears. You want to know what all of us want to know - is my cancer really cured, or if it will come back or not? Not a single one of us can ever know that, and no amount of researching or studying or scouring the Internet will tell you what you want to know. You just have to accept that you can never know this, release yourself from all of the worrying, and go live your life the best you know how.

            I wrote a blog about this...

            "The Best Way To Survive Cancer, Is to LIVE!"


            Meaning, just go live your life to the best of your ability and as best you know how. That's a much better use of time than worrying endlessly about what you can never know. It took me awhile to realize that, and a year to reset my mind, but I haven't really worried about cancer or anything since. It's absolutely terrifying to "let go" like this, but freeing and liberating at the same time.
            Young Adult Cancer Survivorship by Steve Pake
            April is Testicular Cancer Awareness Month!
            Feb 2011, Stage IIB, 4xEP, RPLND, PTSD
            My Survivorship Thread | All of my Blogs
            ONTACT ME ANYTIME!


            • #7
              I read a book in my very early 20's that, in part, discussed a method to deal with worrying. It has stuck with me & served me well for 45 years. It simply said: Imagine what you are worried about actually has happened. Then figure out a plan of what you would do to deal with it
              Once you do that, most worry disappears,at least that's how it has worked for me.


              Jan, 1975: Right I/O, followed by RPLND
              Dec, 2009: Left I/O, followed by 3xBEP