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Controversial CT Scan Results

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  • Controversial CT Scan Results

    My nightmare with TC cancer seems to continue, which I am so sorry for. I just had CT scan which radiologist evaluated as negative. Although they did compare CT Scan of chest and thorax with post-chemo CT scan performed on May 2019 which was negative, but they did compared my Pelvis & Abdomen CT scan with one prior to chemotherapy (January 2019). Well in May 2019 pretty much results were " A small fatty lymph nodes persist, measuring at most 10 mm in diameter ". Now "Paraaortic nodes show regress with largest measuring 1.2 cm". But since he compared those to January and not May does it means it grew 2mm since May (pre-chemo they largest was 2.1cm, post chemo all were less than 1.0cm). Oncologist is requesting comparison of CT scan between post-chemo and now. instead of pre-chemo and now. My oncologist was not very concerned, but he definitely doesn't have much of experiences with pure embryonal carcinoma. Should I be concerned? Do I need RPLND / second line chemotherapy?


    I am 40 years old caucasian (39 years old when diagnosed).
    July 24th, 2018 Blood Pre Orchiectomy : HCG 45, Afp 26
    July 25th, 2018 CT Scan Abdomen & Pelvis, X-Ray Chest: No evidence of metastatic disease
    July 31st, 2018 left testicle orchiectomy, Stage 1B Testicular Cancer 3.5cm tumor size (3.5cmx2.5cmx2cm), pure embryonal carcinoma
    August 6th, 2018: HCG<2, Afp 8.9
    August 9th, 2018: HCG<1, Afp 8.5
    August 23rd, 2018: HCG<1, Afp 6.2
    August 28th, 2018: I decided for Surveillance after consultation with IU Team, 50% chance of relapse.
    September 21st, 2018: HCG<2, Afp 4.5
    October 17th, 2018: CT Scan Abdomen & Pelvis, X-Ray Chest: No evidence of metastatic disease, Left Paraaortic node 9mm, was 8mm
    November 27th, 2018: HCG:3, Afp 3.9
    December 19th, 2018: HCG:3, Afp 4.6
    January 21st, 2019: HCG: 1, Afp 4.1
    January 22nd, 2019: CT Scan Abdomen & Pelvis, X-Ray Chest: Lymph nodes now measuring 2.1cm and 1.4cm suspicious for nodal metastatic disease. Previously these lymph nodes measured less than 1cm.
    Feb 4th, 2019 pre-chemo: HCG: 4, Afp 4.0
    Feb 4th, 2019 : 3XBEP started, Bleomycin not administered during 3rd cycle due to false positive of pulmonary function test.
    Feb 11, 2019 HCG 4, Afp 5.0
    April 1st, 2019 after BEP chemo finished HCG <1, Afp 6.5
    April 12th, 2019 HCG <1, Afp 4.0
    May 8th, 2019 CT Scan Chest, Thorax, Abdomen & Pelvis: No evidence of major visceral metastasis. A small fatty lymph nodes persist, measuring at most 10 mm in diameter.
    May 10th, 2019 HCG <1, Afp 4.0
    May 29th, 2019 HCG <1, Afp 3.8
    August 1st, 2019 HCG <1, Afp 4.4
    August 21st, 2019 CT Scan Chest, Thorax, Abdomen & Pelvis: Negative for Chest & Thorax compared to CT scan done on May 8th, 2019. But for whatever reason Abdomen & Pelvis CT Scan was compared with one performed on January 22nd, 2019 instead of post chemo CT scan done on May 8th, 2019, with result "Paraaortic nodes show regress with largest now measuring 1.2 cm".

  • #2
    Milan, I am so sorry to hear this news although not sure 2mm increase would mean a relapse.. After sending our CDs to Dr Einhorn, he was not concerned with 2mm increase of a lung nodule, although my boyfriend needs an rplnd.. Did you try to get second opinion? Or did you hear from your doctor? I hope this is just a false alarm for you but in any case we will win our battle..

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