Announcement Module
No announcement yet.


Page Title Module
Move Remove Collapse
Conversation Detail Module
  • Filter
  • Time
  • Show
Clear All
new posts

  • Update.

    So here is where I am!

    Jan 22th, bHCG 21, AFP 43,LDH WNL 1.3cm Right Testicular Mass.
    Feb 4th Surgery, Right Testicular Mass 1.6cm
    Pathology Report: 100% Embryonal without LVI, with clear margins and tunica albuginea clean of any invasion. Tumor 1a.Nx

    Feb 2/12/2020
    BHCG Undetectable
    Chest CT: CLEAN- Normal Sized Lymph Nodes
    Abdominal CT Scan with Contrast: CLEAN- Normal Sized Lymph Nodes
    Pelvic CT Scan with Contrast: CLEAN- Normal Sized Lymph nodes

    Pending: AFP

    -I know I still need the AFP but I feel somewhat victorious.
    I have cried tremendously today. I finally felt all my anger, sadness and partial joy from this.

    In 2 weeks (Allowing 3-4 half lives of AFP) will be getting my AFP level

    March 5th I should be having a Multimodality meeting at the oncology center with Urology Oncology, Medical Oncology and Radiation Oncology.

    According do Dr. E, if my AFP normalizes which should, this should be considered a Clinical Stage 1a, without LVI and my Cure Rate is at about 70-85% depending on which literature you check.
    Biggest study around appears to be SWENOTECA, and they give me a 85% Cure rate Dr. E ballparked me on 70.

    IF this is what happens, I will be choosing surveillance.
    There 20-40% risk of neuropathy, with unknown long lasting effects on morbidity and SMN is not worth over a 15-30% relapse. I use my hands for a living. I'm an internist and I depend on my physical exam findings to treat my patients.

    I will keep ya'll posted on my final meeting with the MMR group.

  • #2
    That's great news!! Exactly, you go with what you want are comfortable with.
    July 2016 - Left I/O
    December 2016 - BEPx3
    3 years all clear + baby after TC!

    Take Your Life Back After Cancer 7 Day Challenge - Sign Up Free
    Personal advice on the everyday reality of TC - Testicular Cancer Support Kit
    My book on overcoming key challenges us guys face during cancer - Find Out More
    Listen to expert opinions and survivor insights - Listen to Simplify Cancer Podcast


    • #3
      Sound good, I would do the same. The thing about TC is that, as long as you stick to your surveillance schedule, even if it comes back, the treatments these days still offer a cure.
      Jan, 1975: Right I/O, followed by RPLND
      Dec, 2009: Left I/O, followed by 3xBEP