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  • #31
    How about Orange County, Los Angeles, or any Southern California?
    3/2/12 sciatic pain, ER visit-multiple lung mets, admitted. Multiple lung mets, RP masses 4.6x5.8 & 7.8x8.4, spleen 4.6, liver 2.5, 4 brain lesions (3 Cyberknife 3/8/12 DX pure Chorio with RP bx. 3/9/12 started BEPx4. HCG pre-chemo 330,000-after 3/15 759,672 -3/21 272,206 -3/28 46,486 -4/5 11,326 -4/18 2423- 5/4 871 -5/23 176 -5/30 105 -6/6 97 -6/27 29 -7/6 16 -7/1 20 -7/18 129 -7/25 3122, -8/4 1105, -8/10 122, -8/15 37, -8/22 7, 8/30 3!! -9/5 8.4 start of HDC -9/26 <2, 10/3 <2, 10/4 2nd HDC

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    • #32
      Hello Friends,

      by any chance any body have idea of good specialist in India..?
      12\2010 : Diagnosed with NSGCT Stage III
      12\2010: Left I/O
      01\2011: 4 Cycles of BEP (all cleared)
      04\2012: AFP Rising.. 6 Cycles of TIP.
      06\2013: AFP at 18.6 ng\ml..
      08\2015: AFP at 15.0. 6 months regular follow ups.

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      • #33
        Dr. Allaf, Johns Hopkins

        I would add Dr. Mohammed Allaf at Johns Hopkins Brady Urological Institute. Below is a link to his bio. He is an oncologist, urologist and the director of minimally invasive and robotic surgery. He does loads of L-RPLND a year and is VERY up on all the research. We were very impressed when we met him and feel that we can trust him. He took time with us and answered all of our questions.

        http://urology.jhu.edu/mohamadallaf/index.php
        Toni-wife of Jim, age 43 at DX
        8/15/13 Left I/O, CT scans clear
        8/23/13 Path#1 -U of Rochester: 2cm tumor - 80% EC, 20% Seminoma, No LVI
        9/9/13 Path #2 - IU - 35%EC, 50% Yolk Sac, 10% Seminoma, 5% Chorio, a Focus of LVI
        9/13/13 Path #3 - Johns Hopkins - 40% EC, 45% Yolk Sac, 10% Seminoma, 5% Chorio, NO LVI
        9/30/13 Robotic RPLND at Johns Hopkins with Dr. Allaf - 32 nodes removed. ALL CLEAR!
        10/23/14 Lastest round of bloodwork- ALL CLEAR still...

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        • #34
          Dr. Sanjeev Kaul - Michigan - Robotic RPLND

          http://www.urologist.org/AboutUs/Our...njeev-M-D.aspx

          Kaul, Sanjeev M.D.
          31157 Woodward Ave.
          Royal Oak, MI 48073

          Tel: 248.336.0123
          Fax: 248.336.3390

          He is highly recommended by his peers. I cannot say enough about how good my experience was with Dr. Kaul.....

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          • #35
            Hi all.concerning cyprus you can come in contact with doc Demetriou from ipokrateio hospital(he has the only da vinci in the country)I also heard about another doc that does lap surgery with his ex visiting teacher from uk in limassol ygeia clinic.in greece you could check diavalkaniko for mr andreou or larisa for the open procedure(a us visiting doctor helps there).my personal choice was royal marsden uk.from what uve heard you can also check athens metropolitan hospital where the lead urology surgeon perfoms this type of surgeriea.generally though people seem to avoid hqving the surgery andprefer the chemo way to try to fix things
            -02/2015 ct scan clear now on surveillance
            -January 2015 end of chemo
            -01-12-2014 2xBep start
            -biopsy said classic seminoma in 2/22 nodes
            -10-2014 lap rplnd
            -06-2014 lymph node increased to 12 mm
            -01-2014 10mm lymph node in the paraortic left region
            -2 years surveillance clear with ct scans and blood work
            -2 biopsies performed(1st said teratoma, embryonal and seminoma element, 2nd said teratoma and seminoma)
            -12-2011 cancer diagnozed NSGCT left orchiectomy

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            • #36
              Princess Margaret Cancer Center for anyone in Toronto. Even Ontario.

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