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unotesticulo
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Last Activity: Yesterday, 09:32 PM
Joined: 01-04-17
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  • unotesticulo
    replied to Do I have TC ?
    "soft lumpy bits on the bottom" sounds like the epididymis to me. Make sure you know the anatomy of the testicle (just google it to see a picture). TC almost never grows in both balls at exactly the same time/rate, so if they feel the same, you're probably safe as Dave said. Still, if you...
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  • unotesticulo
    replied to TC?
    PS: Remember, there are other things that can cause enlarged lymph nodes other than TC, and some of those can be scary too (lymphoma, for instance). Get those nodes checked if they seem concerning. An ultrasound of the lymph nodes is very easy. And, if you need, they can easily biopsy an inguinal node...
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  • unotesticulo
    replied to TC?
    It is very rare to have TC move to inguinal lymph nodes unless you had some prior surgery in the area (hernia repair, vasectomy, deep pelvic lymphadenopathy, or scrotal incision). Also, bear in mind that the threshold for large lymph nodes in the inguinal region is higher. A 2cm inguinal node might...
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  • Hey all,

    Update: I did the fine needle biopsy. It was really difficult and painful. The doctor doing the needle-work said that my lymph node was "hard" which made it difficult for him to get into it to get a good sample, so he had to prick me many times. Very unpleasant. Now,...
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  • I hear you, Trpnbily. It's psychologically hard when your treatment path doesn't play out right. I took RPLND as a primary treatment. If I also end up having to do chemo (they give it ~10% chance of playing out that way), I'll feel shitty about life and my choices. Bear in mind that lots of guys who...
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  • unotesticulo
    replied to Possible TC
    I agree with Mike that there's still lots to benefit from here. Presumably, most people in the lymphoma groups won't know too much about the experiences (physical and psychological) related to having an orchiectomy or managing hormone levels afterwards, for instance, and we probably won't know too much...
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  • Surveillance hardly sounds like an option to me. After all, if it was serious enough to treat with 3xBEP to begin with, then why wouldn't you still be concerned now? RPLND is not fun, but it is the only option for teratomas. From what I understand, it is not very uncommon to need to do an RPLND after...
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  • unotesticulo
    replied to Possible TC
    Hey Palmtree,

    Sorry to say, R-Chop is not one of the chemo regimens used for TC, so I bet very few guys here have personally experienced R-Chop. Also, from what I understand, different chemos effect you in different ways. It's a good sign that your doctor is convinced your husband is strong...
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  • unotesticulo
    replied to Possible TC
    Hey Palmtree, I'm sorry we won't be able to help as much or give as good of advice going forward, just because I think there's a lot of knowledge here about TC and less about lymphoma. That said, a lot of the guys here have done radiation for seminoma, so radiation of the scrotum and adjacent areas,...
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  • I also wouldn't just think of RPLND as a way to avoid chemo. Remember that even if you're found to be pN2, you still have almost a 3/4 chance of being cured by the RPLND. So, you can choose to do chemo there, (2xEp or 2xBEP), but the RPLND is a reasonable attempt at a cure (even in pN2, and certainly...
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  • unotesticulo
    replied to Possible TC
    Regarding the pathology report, once you get it, I recommend having a second lab look at it. I generally recommend that, just to be sure, but it sounds like this lab is a little unsure, so I'd ask to have another lab run it. Be sure to get one which deals with TC regularly. You can ask one of the docs...
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  • unotesticulo
    replied to Possible TC
    Hi Palmtree,

    Congrats on the clear CT. This probably means that your husband will be considered clinically stage 1 (This means that as far as their testing shows, there is no evidence of any cancer outside the testicle). Since the testicle was removed, that means that as far as we know,...
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  • Inguinal lymph node -- metastasis?

    So, I have this lymph node in the left inguinal region -- right on the line between the leg and groin area. It's hard and I can feel it from the outside. I can barely at all feel the corresponding node on the right. It is also a bit tender when I feel it up. I was concerned, so I asked my onc. about...
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  • unotesticulo
    replied to Tesosterone
    My Dr. had also suggested that one of the ways we could try to bring up the testosterone levels was via giving me HCG. So, I'm sure it's used in some cases. He also said that given that HCG is a tumor marker, we would not want to go with that route.
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  • unotesticulo
    replied to Possible TC
    For what it's worth, my CTs (2 so far) were with contrast. I think that's normal. All the results will be in soon. Being a TC patient involves a lot of waiting to see what happens. It's nerve-racking, I know.
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  • unotesticulo
    replied to Possible TC
    Palmtree, I'm glad to hear your husband got in for the CT today. Especially since you seem to be anxious to know the results soon. They don't take all too long and that should help determine the stage. I understand your anxiety (all too well!), but remember, no matter what stage you're looking at, the...
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  • unotesticulo
    replied to Tesosterone
    If you're on surveillance, you should think twice before starting taking HCG. After all, that's one of the tumor markers they check for. Your oncologist will get the blood tests back and think you have cancer and start you on chemo. I also have low T (262 ng/dl tested a few weeks back). My urologist...
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  • unotesticulo
    replied to Possible TC
    I want to second Dave's comment. The most important thing to know is the result of the CT scan. And remember, there's no huge hurry here. Generally nothing happens for about a month after the orchiectomy. So, don't psychologically torture yourselves. It'll be okay, and you'll find out what you need...
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  • unotesticulo
    replied to Possible TC
    Hey Palmtree, regarding getting the pathology, you should know something: There might still be some decisions to make. In many cases with TC, the experts disagree about the best course of action. The good news is that in those cases, there's no wrong answer. The bad news is that you often have to make...
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  • unotesticulo
    replied to Possible TC
    Hey Palmtree, the anesthesia and the pain-meds can both cause constipation. This is usually not serious, but you should make sure to resolve it. Usually stool softeners like colace do the trick. They don't work super fast, but they make sure nothing turns to a real blockage and it should work itself...
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