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Primo
Registered User
Last Activity: Today, 10:46 AM
Joined: 08-17-19
Location: Slovenia
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  • Primo
    replied to 50/50 What is next?
    False alarm. I forgot what normal balls look and feel like. The doctor said all is normal with my ball(s) and mental distress is allowed. Ups. I guess I went a little crazy.
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  • Primo
    replied to 50/50 What is next?
    Hi. So ... after my surgery and after the hematoma went away about a month ago my other testicle got a little bigger. I was thinking compensating for the loss. Not a big deal. A small increase. Not worth mentioning. Didn't think much of it. It is now all of a sudden kind of in the way and there was...
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  • Hi. I hope you get your insurance for operation in Germany. Will your boyfriend have RPLND only or will he also have any of his organs removed?
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  • Primo
    replied to 50/50 What is next?
    Dave I did find out about RPLND. It was used here for diagnosis, when CT was not an option 20 or more years ago. But now our doctors also do modern laparoscopic surgery and we also have 2 new da Vinci robots one for every million living here. They are in use for all kinds of surgery. Our doctors also...
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  • Primo
    replied to 50/50 What is next?
    This is good info Dave. I think I understand.... with elevated markers the odds are in favor of metastatic cancer but I have to wait until AFP goes north of 25 or a positive CT. I have a blood and CT scan in two weeks . I will talk to my doctor about my markers and about consulting Doc E. I must use...
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  • Primo
    replied to 50/50 What is next?
    9.9.2019 AFP 11,4, LDH 2,24, BHCG 0,2. AFP marker is tiny bit elevated I hope it stays put fot the next 2 weeks when I have my next test. My primary doctor said it is sometimes good to wait and not rush in like a fool. Offered medical psychiatric help. I declined. I am stressed but at the moment I can...
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  • Primo
    replied to 50/50 What is next?
    Went to see my doctors.1x BEP is not on the table. We will wait and I will get a CT in 3 weeks and also bloodwork and when they see the cancer spreading I will get full chemo. I do not think I am 50/50 anymore with my doctor talking metastasis. They do not want to do RPLND I asked twice now. The cancer...
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  • Primo
    replied to 50/50 What is next?
    I was wondering about my slow marker decline. I heard of this effect during chemo, but not after orchidectomy. Is this a normal thing for stage I or a sign of something like stage II?
    Amy do you know of any expert willing to help? I would like another expert to look at the slow marker decline...
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  • Primo
    replied to 50/50 What is next?
    Marker update:
    2.9.2019 AFP 10,9 , HCG < 0.2 , LDH 2,4

    Any thoughts guys?
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  • Primo
    replied to 50/50 What is next?
    A mixed bag Dave....If only I had a Russian roulette .....well I have to take what I am given. If I understand things right, for LVI+ there is a coin flip chance of occult metastasis in the body (blood and lymph), and no better markers on offer. So doctors say RPLND is not advisable as of this moment....
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  • Primo
    started a topic 50/50 What is next?

    50/50 What is next?

    Hi.

    I am browsing this forum for 3 months now. I decided to post a question.This forum is really helpful. My doctors are silent professionals. I guess the road to recovery is different for everybody. So amid the silent professionals it was a real help finding this forum and your stories...
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