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[BrendanF]

So TIP is the recommended treatment and ‘standard of care.’ 4 more cycles of cisplatin would certainly cause further hearing loss among other things.

It looks unlikely that I would qualify for any immunotherapy trial until I’ve undergone TIP first. Iow, I would have to damage my...

[BrendanF]

Thank you Mike, I’m trying to understand this and certainly may be falling short of that. I have an appt with Dr. Feldman this afternoon.

By late relapse I’m referring to the > 6 year span between my initial stage 1 case with 1x adjuvant carboplatin in 2014 and the 1st recurrence...

[BrendanF]

From this 2021 ASCO presentation by Dr Noah Richardson Indiana University School of Medicine, late relapse of seminoma with prior chemo exposure gives a 2 year progression free survival rate of 33%. But this number seems to lump together those treated with resection, chemo and both resection and chemo....

[BrendanF]

The biopsy is positive for seminoma.

Regarding 1st line treatment, my post 1st line treatment PET did show some mild uptake in thoracic nodes. I don’t know whether this technically is categorized as cure or fail. But it seems noteworthy given that is where the recurrence is happening...

[BrendanF]

Thank you Mike, doubtless I couldn’t ask for better than Dr. Feldman.

The pathology report is not back, the biopsy was only this morning, but when I’ve asked about this scenario in the past, the recommended treatment is TIP. One time last year when all of the complications and side...

[BrendanF]

Thank you Ryan’s mom,

When I was first diagnosed last year I emailed Dr. Einhorn who referred me to Dr. Feldman at MSK who is managing my case. From what I’m seeing late recurrences after adjuvant carboplatin are more difficult cases. Seems it’s not used anymore.

[BrendanF]

Hello, my account was one of the ones that was lost. In short:

2014 seminoma, elevated hcg, elevated testosterone, rt orchiectomy, 1x adjuvant carboplatin

Jan-May 2021 recurrent seminoma distant metastasis, hcg not elevated, elevated testosterone, 2x EP, 2x EC

...

[BrendanF]

Thank you for all of your effort and for not giving up Mike!