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[BrendanF]

Hi TampaMatt, sorry for not noticing your post until now and for your recurrence. It is indeed unusual as far as I understand.

BEP was not offered to me because I'm in my early 50s and I believe 40-45 is the generally accepted cutoff age. Dr. Feldman at MSK did mention possible post-chemo...

[BrendanF]

I’m 4 days through the 1st cycle. Days 1 and 2 went well, day 3 ok. I had a rash reaction to the steroids. I think they lowered the dosage. I got home and my stomach was wrenching and I felt more tired. I still ate some soup and had some cereal and broth for breakfast on day 4. I had soup again for...

[BrendanF]

I’m so grateful for this forum and everyone’s contributions over the years. It’s helped to demystify a lot, especially chemotherapy. I’m less fearful and much more informed than I would have been without it.

Still there are some personal things I’m apprehensive about; I have a...

[BrendanF]

I have to agree with Mike. Reading Axel’s story reminded me of past experience of my own and other family members that were not nearly as bad, but where advocacy made a difference that likely prevented much worse outcomes. It’s important too to have others advocating if things get to a point that...

[BrendanF]

Hi Mike, thank you commenting and helping me to register for the forum!

The recommendation from MSK was to start 4xEP and not wait for the CT or MRI of the adrenal and liver. I believe the plan is to have imaging after the first week of EP which starts this coming Monday.

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