Reply With QuoteThanks for sharing Sharon. I can't even begin to think and certainly can't type what I really want to say... particularly since my 9 year old shares the same name.
My 3 kids will certainly be making a card tomorrow for little Noah.
Registered User
Hello to all, long type no type to!! The aftermath has offered yet another interesting avenue to explore. Wandering might be a good word. Russell just finished TM's and all is well. Liver will be evaluated in January. So far defined as cysts. Still don't understand cysts with density, but trying to relax into it as it is so far. Enjoying the return of some balance. For now...this e-mail came to me yesterday (Nov 6, 2009) from my friend (a case manager at the hosptial) and I thought I would share in case anyone is interested in joining the effort. (I added a few dollars to mine...can imagine the stuggle of a young family.) That I think of you everyday is an understatement!! Lovestrong, Sharon
Subject: Noah
Team,
My sister Erin called me this morning and she informed me of a very sad situation that made me cry. She has a friend in Michigan with a five year old son Noah who is in the end stages of Neuroblastoma. It is unlikely that he will make it to Christmas this year so his family is celebrating Christmas next week. He loves Christmas cards and Erin told me that the family would love it if Noah would receive lots of Christmas cards. His name is: Noah Biorkman
His address: 1141 Fountain View Circle
South Lyon , MI 48178
Please help make Noah’s early Christmas as special as can be and drop a Christmas card in the mail for him as soon as you can.
Thanks,
Allie
Click here to support my LIVESTRONG Challenge with Team LOVEstrong.
Administrator
Thanks for sharing Sharon. I can't even begin to think and certainly can't type what I really want to say... particularly since my 9 year old shares the same name.
My 3 kids will certainly be making a card tomorrow for little Noah.
Best,
Zsolt
Friendship is born at that moment when one person says to another; "What! You too? I thought I was the only one." - C.S Lewis
“Experience: that most brutal of teachers. But you learn, my God do you learn.” - C.S. Lewis
Mass found 11/20/08
Left I/O 11/25/08
Pathology: Seminoma, Stage 1
Surveillance: All Clear since
Registered User
We definately be sending a card on Monday. I told my sister and she is as well. I despise that fact that any one has to experience cancer but I hate that children do as well. It breaks my heart a little everytime I hear of one.
Co-warrior
Dx Left I/O 2/08 100% pure seminoma
4-1-08 17fractions XRT 25.5 gy
9-4- 09 RELAPSE 4XBEP
12/09 01/10 3/10 All Clear, Fractured Pelvis
4-29-10 RELAPSE
5-11-10Partial Sacrectomy
5-19-10 1X Carbo, Cytoxan
5-23-10 15 fractions of XRT 25.5
6-14-10 Fractured Sacrum
8-10-10 1st Cycle HDC (clinical trial @ MDA)
10/8/10 REMISSION
11-30-10 2nd Cycle HDC
12/10- 9/12 ALL CLEAR
http://jasonejourney.blogspot.com
Registered User
It was/is the people around me that kept/keep me from falling over. I am constantly reminded of the generosity that people share to others far beyond the boundaries of familiar friends and family. Completly heartwarming!!! Livestrong/Lovestrong, Sharon
Click here to support my LIVESTRONG Challenge with Team LOVEstrong.
Registered User
Hi, Sharon. Thanks for sharing this info. Cards are on the way. I also dedicated my 44 mile ride today to Noah. I always wear my Lovestrong team or Cyclists Combating Cancer jerseys when I honor others like Noah.
How have you been? Happy to hear Russell's tests are "normal", whatever that means, but usually good news is just that: good news.
Keep writing. I love to hear from you. Thank you for caring so much.
Paul
"Statistics are human beings with the tears wiped off" - Paul Brodeur
Diagnosis: 05Sept07 Right I/O: 13Sept07; Pure Seminoma; Surveillance only per NCCN: All Clear February2013 (Chest Xray, Markers); Next check August2013 (CT Scans, Markers)
Registered User
That is so sad...I will try to locate and drop a Christmas card in the mail tomorrow.
Diagnosed Sept 26th 2008 Both AFP and HGC slightly elevated 1.1cm Lump found right testicle with small satellite lesions, CT scan negative.
Right Radical Orcidectomy Oct 2nd 2008
Markers Normalized 1 Week Post Surgery on to surveillance
End of Nov AFP rose to 44.5, CT scan Negative
3xBEP Dec-Feb
March-APF normalized on to surveillance again
May 6th-CT 4.5cm tumor in abdomen, tumor markers normal.
RPLND May 26th 2009 found teratoma
On to surveillance
All Clear as of Sept 2011
Registered User
Card on the way
Diagnosed Sept 26th 2008 Both AFP and HGC slightly elevated 1.1cm Lump found right testicle with small satellite lesions, CT scan negative.
Right Radical Orcidectomy Oct 2nd 2008
Markers Normalized 1 Week Post Surgery on to surveillance
End of Nov AFP rose to 44.5, CT scan Negative
3xBEP Dec-Feb
March-APF normalized on to surveillance again
May 6th-CT 4.5cm tumor in abdomen, tumor markers normal.
RPLND May 26th 2009 found teratoma
On to surveillance
All Clear as of Sept 2011
Administrator
BTW, my Noah (and his sisters) sent little Noah a Lego Star Wars Battle Pack and a card earlier this week. I just really hope it arrives in time. Any update, Sharon, would be great.
Best,
Zsolt
Friendship is born at that moment when one person says to another; "What! You too? I thought I was the only one." - C.S Lewis
“Experience: that most brutal of teachers. But you learn, my God do you learn.” - C.S. Lewis
Mass found 11/20/08
Left I/O 11/25/08
Pathology: Seminoma, Stage 1
Surveillance: All Clear since
Registered User
Hi ..funnily enough i was just on his caregivers page and they have asked for people to stop sending cards and gifts...they seriously have thousands turning up daily!!
Such a tragic story and scary as my baby is 6 yrs old!! and was luckily misdiagnosed with Bone Cancer to really having a hip disease ..i pray for that ..so much that i was blessed from that dreaded C word..
Here is the link if you would like an update...
https://www.carepages.com/carepages/...pdates/2427545
Registered User
Hopefully it atleast makes his Christmas special
Diagnosed Sept 26th 2008 Both AFP and HGC slightly elevated 1.1cm Lump found right testicle with small satellite lesions, CT scan negative.
Right Radical Orcidectomy Oct 2nd 2008
Markers Normalized 1 Week Post Surgery on to surveillance
End of Nov AFP rose to 44.5, CT scan Negative
3xBEP Dec-Feb
March-APF normalized on to surveillance again
May 6th-CT 4.5cm tumor in abdomen, tumor markers normal.
RPLND May 26th 2009 found teratoma
On to surveillance
All Clear as of Sept 2011
Registered User
Any updates on Noah?
Diagnosed Sept 26th 2008 Both AFP and HGC slightly elevated 1.1cm Lump found right testicle with small satellite lesions, CT scan negative.
Right Radical Orcidectomy Oct 2nd 2008
Markers Normalized 1 Week Post Surgery on to surveillance
End of Nov AFP rose to 44.5, CT scan Negative
3xBEP Dec-Feb
March-APF normalized on to surveillance again
May 6th-CT 4.5cm tumor in abdomen, tumor markers normal.
RPLND May 26th 2009 found teratoma
On to surveillance
All Clear as of Sept 2011
Administrator
This link does not seem to work..Originally Posted by vicky2jeff
Best,
Zsolt
Friendship is born at that moment when one person says to another; "What! You too? I thought I was the only one." - C.S Lewis
“Experience: that most brutal of teachers. But you learn, my God do you learn.” - C.S. Lewis
Mass found 11/20/08
Left I/O 11/25/08
Pathology: Seminoma, Stage 1
Surveillance: All Clear since
Administrator
It does work if you register and login. The update says they celebrated Christmas on November 8. The family thanks everyone and asks that no more cards and gifts be mailed. "We need the peace right now."
Scott, scott@tc-cancer.com
right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since
This year, I recognize my 10th cancer anniversary by joining Team LIVESTRONG for RAGBRAI, a weeklong, 406-mile bicycle ride across Iowa.
Your sponsorship donation funds LIVESTRONG Foundation services for people facing cancer today. Please give now!
Registered User
I grew up not far from where Noah lived, and regularly check the Detroit Free Press newspaper website. Saw this story online this morning.
http://freep.com/article/20091124/NE...arly-Christmas
Ally
Husband DJ: Dx 7/16/2008 Right I/O 7/25/2008 90% Embryonal, <5% Yolk sac,<5% Seminoma, <2% Mature teratoma
Began 3xBEP 9/8/2008, changed to 2xBEP + 1xVIP because of changes in oxygen diffusion. Completed 10/24/2008
All Clear Ever Since
Post-Chemo Daughter Born 9/4/11
Registered User
So sorry for this family!! I can't imagine how you go on after such a loss. God bless them and watch over them.
Kathy
Administrator
No words.. just shaking my head...
Best,
Zsolt
Friendship is born at that moment when one person says to another; "What! You too? I thought I was the only one." - C.S Lewis
“Experience: that most brutal of teachers. But you learn, my God do you learn.” - C.S. Lewis
Mass found 11/20/08
Left I/O 11/25/08
Pathology: Seminoma, Stage 1
Surveillance: All Clear since
Registered User
I agree with Aegean...I'm at a lose for words, just so sad
Diagnosed Sept 26th 2008 Both AFP and HGC slightly elevated 1.1cm Lump found right testicle with small satellite lesions, CT scan negative.
Right Radical Orcidectomy Oct 2nd 2008
Markers Normalized 1 Week Post Surgery on to surveillance
End of Nov AFP rose to 44.5, CT scan Negative
3xBEP Dec-Feb
March-APF normalized on to surveillance again
May 6th-CT 4.5cm tumor in abdomen, tumor markers normal.
RPLND May 26th 2009 found teratoma
On to surveillance
All Clear as of Sept 2011
Posting Permissions
Bookmarks