Registered User
Hi,
My brother is due his CT and markers tomorrow morning. Usually I would have anxiety but not this bad. The reason is that he is feeling very tired and lacking in energy for the last two weeks. He was fine up till then. He got a really bad cold with very bad cough.This is the first time he is suffering from anxiety that he is sharing with us.
Could these be the symptoms of a relapse? I was trying to resist posting this but really need some guidance.
Thanks for reading this.
Val
Brother (23 when diagnosed) : Dianosed 14/09/2009, testicle removed, Non sem diagnosed. Tumour markers 36000 before op and dropped to 17000 after operation.. Chemo started end of september 4 x BEP. Tumour markers normal at end of chemo. RPLND 26 Feb 2010 No cancer found.
Latest Appointment May 2013- CT and markers normal
Registered User
Here's hoping everything turns out fine!
Regarding the lack of energy, etc. - sometimes a bad cold will just do that to you. Also, while most guys do ok after an orchiectomy, sometimes the remaining testicle just gives out after a while and can't keep up. If everything comes back clear and the lack of energy and tiredness persist, it wouldn't be a terrible idea to consult an endocrinologist to get his hormone levels checked out.
Registered User
Val, keeping you and your brother in my thoughts and keeping everything crossed for all clear scan and blood results. It's a very anxious wait at a time like this and when you combine that with a bad cold, I think it's natural to be feeling exhausted and worried. *Hugs* to you and the family.
Son (James, age 17):
12/1/10 - TC confirmed
HCG 80, AFP 156
12/3/10 - Left I/O
70% Mature teratoma, 30% EC/yolk sac. 41 x 37mm. Multiple foci of vascular invasion, negative spermatic cord margins.
1/12/11 - HCG 7, AFP 4.6. Surveillance.
2/7/11 - Tumour markers elevated - HCG 18, AFP 14.5
2/15/11 - PET and CT scans show at least 4 lymph nodes affected (abdomen and base of neck).
3xBEP completed April.
Celebrated 18th birthday.
6/30/11 - All Clear!
Registered User
I understand your anxiety absolutely. Waiting for results is terrible expecially with some health issues. But is very probability that his tiredness can be caused by cold only and that is just cold. When he has had his last check-up (CT or markers) done?
You and your brother are in my prayers...keep us posted.
Marketa
Hubby Fany (born 1961):
TC1: 2005, pure seminoma, stage 1, left I/0, radiation
TC2: 2010, seminoma, frozen biopsy, right I/0 2xBEP (finished 25.7.2010), HRT Nebido
HRT Nebido (long term injectable) form 15th of June).
9-10-2010: blood test: clear
10-29-2010: PET CT - clear
11-29-2010: blood test: one marker slightly elevated
02-25-2011: blood test: all clear!!!!!!!!!!!!
05-02-2011: PET CT - clear
07-28-2011 blood test - clear
09-22-2011CT scan - clear
Registered User
Hi,
He had CT and markers done in January and both were fine. He had both done this morning and now the waiting begins. Hopefully it will be fine. We might be able to get his markers tmr.
Thanks for the good wishes and prayers
Val
Brother (23 when diagnosed) : Dianosed 14/09/2009, testicle removed, Non sem diagnosed. Tumour markers 36000 before op and dropped to 17000 after operation.. Chemo started end of september 4 x BEP. Tumour markers normal at end of chemo. RPLND 26 Feb 2010 No cancer found.
Latest Appointment May 2013- CT and markers normal
Registered User
I believe it will be fine...If he was clear 4 months ago it is unlikely that his cough is sign of relapse... I am not a doctor but I think that it would be sign more advance disease but 4 month is too brief period.
Best wishes and good luck for his markers tomorow! HeŽll be (is) fine.
Marketa
Hubby Fany (born 1961):
TC1: 2005, pure seminoma, stage 1, left I/0, radiation
TC2: 2010, seminoma, frozen biopsy, right I/0 2xBEP (finished 25.7.2010), HRT Nebido
HRT Nebido (long term injectable) form 15th of June).
9-10-2010: blood test: clear
10-29-2010: PET CT - clear
11-29-2010: blood test: one marker slightly elevated
02-25-2011: blood test: all clear!!!!!!!!!!!!
05-02-2011: PET CT - clear
07-28-2011 blood test - clear
09-22-2011CT scan - clear
Registered User
A bad cold will make you tired & lacking in energy. If it persists for more than a week or so, report it to his doc, otherwise just assume it's normal.Originally Posted by val
The reason is that he is feeling very tired and lacking in energy for the last two weeks. He was fine up till then. He got a really bad cold with very bad cough.
Could these be the symptoms of a relapse? I was trying to resist posting this but really need some guidance. .
Dave
Jan, 1975: Right I/O, followed by RPLND
Dec, 2009: Left I/O, followed by 3xBEP
Registered User
Hi,
Thanks for the replies. We got provisional CT report back and it is clear and markers are all normal.
He still feeling a little underpower but thrilled with results. He was concerned because he has not felt like that since finishing chemo etc.
Val
Val
Brother (23 when diagnosed) : Dianosed 14/09/2009, testicle removed, Non sem diagnosed. Tumour markers 36000 before op and dropped to 17000 after operation.. Chemo started end of september 4 x BEP. Tumour markers normal at end of chemo. RPLND 26 Feb 2010 No cancer found.
Latest Appointment May 2013- CT and markers normal
Registered User
HOORAY!
I am really pleased for you all!
Kurt
Diagnosed 5th June 2009
Stage III TC with mets in abdomen and lungs
No tumor markers
Righ I/O 17th June 2009
Married Janet 27th June
July 3rd began 3x BEP
September 3rd CT scan....clear!
October 20th: Chest xray clear, no markers
December 21st second CT scan....clear!
June 29th CT scan...clear.
Registered User
Glad to hear everything came back clear.
Son Diagnosed 6/24/10
Right I/O 6/28/10
(65% Teratoma, 10% EC, 10% Yolk Sac, 10% Seminoma, 5% Choriocarcinoma)
3XBEP 8/10-10/10
RPLND 11/2/11 (cyst in right pelvic area was mature teratoma and lymph nodes were clear)
Registered User
That's great news
Supporter of fiance-now husband
Right I/O
Tumour size T2 with Vascular Invasion
Non seminoma (mix of seminoma, carcinoma, teratoma)
CT scan showed 4 small nodules of unknown in lungs
BEPx2
Scan showed no change in lung nodules so not thought to be cancer given the all clear!
6 month scan, still no change in lungs, so pretty sure their not caner, given ALL CLEAR!!!
12 month scan all clear !!!!
Got married
Pregnant naturally
Registered User
Hi,
Thanks to everyone for the posts. He has his official appointment with consultant on Friday so will update my signature then. It was great to get the results early as dont think we would have survived the waiting.
Best Wishes to everyone.
Val
Brother (23 when diagnosed) : Dianosed 14/09/2009, testicle removed, Non sem diagnosed. Tumour markers 36000 before op and dropped to 17000 after operation.. Chemo started end of september 4 x BEP. Tumour markers normal at end of chemo. RPLND 26 Feb 2010 No cancer found.
Latest Appointment May 2013- CT and markers normal
Registered User
Hi Val,
I'm so thrilled that your bro has another ALL CLEAR!!!
I'm not sure the anxiety ever goes away. I still feel it when Josh is getting his results.
~Mary Ann
CaregiverSon Josh 23yr Dx 3/5/08 IIIC NonSeminoma affected lung, kidney liver back & tumor/clots in vena cava & celiac artery 3/7/08 L I/O 3/30/08 PostOp surgery 4XEP (VP16 & Cisplatin) 3/12-5/25 LDH > 5000 & AFP 145 (3/5 pre-op) LDH 563 & AFP 4 (5/26 after 4Xchemo) off blood thinners 3/18/09 Surveillance per Dr E 8/4/08 *1/2012 ALL CLEAR!
Self 1/29/09 dx thyroid cancer metastasized to right lung 2/10 thyroid removd 4/17 rx RA131 5/11/10 &7/16/10. 1/12survellience
Registered User
Great news Val!!! We're coming up on one year and even though Shaun feels fine I'm still nervous, so I don't blame you for worrying. Good luck with the consult on Friday and keep us posted!
Husband Shaun diagnosed March 2010. AFP 4571, HCG 3340.
6cm x 6cm x 8cm retroperitoneal mass + 1cm nodule in right lung.
Stage IIIb, Intermediate Risk.
Left I/O March 9/10: 75% EC, 20% Teratoma, 5% Yolk Sac + Seminoma.
3xBEP + 1xEP March 15 - May 21/10: markers normal.
Bilateral RPLND July 28/10: 9.5 x 7 x 4.5cm mass, teratoma only.
Chylous Ascites Aug/Sep.
November 2012 All Clear
Continuously monitoring 0.9 x 1.7cm omental nodule (possible fat necrosis)
www.teamshaun.wordpress.com
Moderator
Yay! I think my husband gives himself psychosomatic illnesses around the time of his check ups and scans. Of course, that doesn't stop me from having a small stroke every time I hear him cough, no matter what I tell myself.
Here's to hoping that someday our gentlemen can have a cold without us wanting to calling an ambulance. :-)
And congratulations on the superduperclear-ness!
Kat
_______________________________________________
Caregiver
DX 5/15/09
Left orchiectomy 5/22/09
60% embryonal, 40% seminoma, w/ VI, LI, T2 (CS-IB)
CTs clear, X-rays clear, blood markers normal
L-RPLND 7/14/09, San Antonio
3 nodes positive, 100% embryonal, N1 (PS-IIA)
2 rounds BEP August 24, 2009, Austin
Enlarged lymph nodes Oct 09, Dec 09, Jan 10, Apr 10
All clear 10/01/10
Registered User
Hi Jules,
Best of luck with the follow up and hope you will be celebrating. Even though we had provisional results still had butterflies in tummy when he was in for appointment. He came out smiling said all was well and next check up end of September/October as he going on three weeks holidays in September.
Thanks to everyone for the support and good wishes and wishing everyone who is going for follow ups the very best of luck. Will be saying a prayer for you all.
Val
Brother (23 when diagnosed) : Dianosed 14/09/2009, testicle removed, Non sem diagnosed. Tumour markers 36000 before op and dropped to 17000 after operation.. Chemo started end of september 4 x BEP. Tumour markers normal at end of chemo. RPLND 26 Feb 2010 No cancer found.
Latest Appointment May 2013- CT and markers normal
Registered User
Hurray - great news Val!! I hope your bro has a great, well-deserved holiday.
Husband Shaun diagnosed March 2010. AFP 4571, HCG 3340.
6cm x 6cm x 8cm retroperitoneal mass + 1cm nodule in right lung.
Stage IIIb, Intermediate Risk.
Left I/O March 9/10: 75% EC, 20% Teratoma, 5% Yolk Sac + Seminoma.
3xBEP + 1xEP March 15 - May 21/10: markers normal.
Bilateral RPLND July 28/10: 9.5 x 7 x 4.5cm mass, teratoma only.
Chylous Ascites Aug/Sep.
November 2012 All Clear
Continuously monitoring 0.9 x 1.7cm omental nodule (possible fat necrosis)
www.teamshaun.wordpress.com
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