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Thread: Staging

  1. #1
    Join Date
    Apr 2011
    Location
    Bronx,NY
    Posts
    96

    Staging

    I'm new here and trying to learn the lingo. My BF was never given a stage and I don't know what percent/type he has. The only reason I know it is non sem and yolk sac is because I have a copy of the path report. Shouldn't we know this already? We have been bounced around because of his insurance. He has a managed Medicaid and they are horrible. Sloan accepts regular medicaid but it is very difficult to switch. Bosl suggested calling a politician, been there done that! I'm still fighting, well we both are.
    Left Orchiectomy 6/10, pathology MGC with EC/teratoma mostly yolk sac. AFP >700 HCG >500 4 cycles EP July-Oct. AFP and HGC normal. Jan/11 AFP >1000. 4 cycles of TIP planned stopped after 3 for elevated AFP 3000. Stem cells harvested 8/22-8/25/11. AFP over 8000. HDC 10/17/11 -12/20/11. RPLND 1/16/12. Pathology MGC tumor mostly yolk sac. 45 lymph nodes negative.AFP 2.1 4/12/12. AFP22 6/12 new lesions in liver and abdomen. Gem/Ox start 7/2.

  2. #2
    Join Date
    Oct 2010
    Location
    Cary, NC
    Posts
    1,171
    Where were his tumors?Testicle? Abdomen? Chest? Lungs? Brain? I believe the location helps with staging:

    http://www.cancer.gov/cancertopics/p.../Patient/page2
    Heidi

    Husband - age 51
    10/20/10 - Primary mediastinal seminoma - 10 x 9.3 cm; ß-HCG = 33 (<2.6); AFP = 3.5 (<9); LDH = 274 (100-200 )
    11/1/10 4X BEP
    12/7/10 End Cycle 2 - ß-HCG = 2; AFP = 4.6; LDH = 139 ; 4XBEP changed to 3 as tumor now 2.1 x 3.7 cm
    2/15/11 - Post-chemo PET ; residual 8 mm x 2 cm
    6/29/11 - Lung nodules stable or smaller, chest mass continues to shrink & markers all normal
    Surveillance since 6/11

  3. #3
    Join Date
    Apr 2011
    Location
    Bronx,NY
    Posts
    96

    Staging

    The tumors were in the testicle and o e lymph node.I reviewed the path report fro Sloan and it said seminoma/yolk sac main. Mixed with teratoma, chor, emb,etc.
    Left Orchiectomy 6/10, pathology MGC with EC/teratoma mostly yolk sac. AFP >700 HCG >500 4 cycles EP July-Oct. AFP and HGC normal. Jan/11 AFP >1000. 4 cycles of TIP planned stopped after 3 for elevated AFP 3000. Stem cells harvested 8/22-8/25/11. AFP over 8000. HDC 10/17/11 -12/20/11. RPLND 1/16/12. Pathology MGC tumor mostly yolk sac. 45 lymph nodes negative.AFP 2.1 4/12/12. AFP22 6/12 new lesions in liver and abdomen. Gem/Ox start 7/2.

  4. #4
    Join Date
    May 2011
    Location
    Northern Virginia
    Posts
    51
    If the lymph nodes effected are only in the retroperitoneum, then it is Stage II. If it is spread to the mediastinum or elsewhere, it is Stage III.

  5. #5
    Join Date
    Apr 2011
    Location
    Bronx,NY
    Posts
    96

    Staging

    Quote Originally Posted by Tony78 View Post
    If the lymph nodes effected are only in the retroperitoneum, then it is Stage II. If it is spread to the mediastinum or elsewhere, it is Stage III.
    His AFP has spiked so I think, from what I have read it is stageIIIC. I like your idea better! I just have a hard time letting one blood test decide his treatment plan.
    Left Orchiectomy 6/10, pathology MGC with EC/teratoma mostly yolk sac. AFP >700 HCG >500 4 cycles EP July-Oct. AFP and HGC normal. Jan/11 AFP >1000. 4 cycles of TIP planned stopped after 3 for elevated AFP 3000. Stem cells harvested 8/22-8/25/11. AFP over 8000. HDC 10/17/11 -12/20/11. RPLND 1/16/12. Pathology MGC tumor mostly yolk sac. 45 lymph nodes negative.AFP 2.1 4/12/12. AFP22 6/12 new lesions in liver and abdomen. Gem/Ox start 7/2.

  6. #6
    Join Date
    Apr 2011
    Location
    Bronx,NY
    Posts
    96

    Staging

    Quote Originally Posted by Tony78 View Post
    If the lymph nodes effected are only in the retroperitoneum, then it is Stage II. If it is spread to the mediastinum or elsewhere, it is Stage III.
    His AFP has spiked so I think, from what I have read it is stageIIIC. I like your idea better! I just have a hard time letting one blood test decide his treatment plan.
    Left Orchiectomy 6/10, pathology MGC with EC/teratoma mostly yolk sac. AFP >700 HCG >500 4 cycles EP July-Oct. AFP and HGC normal. Jan/11 AFP >1000. 4 cycles of TIP planned stopped after 3 for elevated AFP 3000. Stem cells harvested 8/22-8/25/11. AFP over 8000. HDC 10/17/11 -12/20/11. RPLND 1/16/12. Pathology MGC tumor mostly yolk sac. 45 lymph nodes negative.AFP 2.1 4/12/12. AFP22 6/12 new lesions in liver and abdomen. Gem/Ox start 7/2.

  7. #7
    Join Date
    May 2011
    Location
    Northern Virginia
    Posts
    51
    I don't know when it comes to a relapse how they stage it or the treatment. I guess my staging only goes as far as initial diagnosis. Good luck on finding out what to do.

    Tony

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