Registered User
Just wondering if anyone else going through (or has gone through) B.E.P. gets a HORRIBLE flavor in the back of their mouths?
I get the flavor while on my long weeks (where I get chemo for 5 days in a row). . .the easy weeks where I just go in for the bleo I don't get the flavor.
I've gotten pretty sick through this (after my second round), have vomited, and have gotten extremely exhausted. . .but nothing so far has been as bad to me as the flavor is. It's the thing I dislike most so far (and it destroys my ability to eat or drink anything).
2 things I've found that help are ice cream shakes, and chocolate milk lol, my nurse also told me that they have popsicles at the facility if I'd like to try one of those next week (next week is the start of round 3 for me).
Registered User
I didn't find anything that took the taste away. Probably only time will do that. There were things I didn't enjoy eating of drinking during and soon after chemo - tea and coffee were among them. I ate lots of chicken pies and drank banana milkshakes.
Nick
Embryonal Carcinoma; Seminoma. Marker negative.
August 2001: Right I/O .
August - December 2001: Surveillance .
December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
December 2001 - March 2002: 3xBEP .
Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.
March 2012 - Ten years since finishing chemo.
Survivorship Blog is here
Registered User
Brian gave up coffee as well. He drank tea for a while, apple juice, Gatorade, and today it is grapefruit juice. I think it changes a lot because anything he eats or drinks eventually gets associated with sick feelings, and he can't have it anymore. Today he wanted a fried egg sandwich and Otter Pops
Caregiver to Brian
Newly diagnosed May, 2011
Embryonal and seminoma with vascular invasion
BEPx2 began June 27th
Registered User
At one point, frozen fruit bars helped my husband a lot, to take away that taste. Good luck!
Heidi
Husband - age 51
10/20/10 - Primary mediastinal seminoma - 10 x 9.3 cm; ß-HCG = 33 (<2.6); AFP = 3.5 (<9); LDH = 274 (100-200 )
11/1/10 4X BEP
12/7/10 End Cycle 2 - ß-HCG = 2; AFP = 4.6; LDH = 139 ; 4XBEP changed to 3 as tumor now 2.1 x 3.7 cm
2/15/11 - Post-chemo PET ; residual 8 mm x 2 cm
6/29/11 - Lung nodules stable or smaller, chest mass continues to shrink & markers all normal
Surveillance since 6/11
Moderator
What is an Otter Pop?Originally Posted by love4leon
Today he wanted a fried egg sandwich and Otter Pops
And my husband, too, found fruits - either drinks, or popsicles - to be something he a) could taste and b) helped with the metallic taste, at least a little (he described it as metallic).
Good luck!
Tracy
Tracy
Cancer pharmacologist, caregiver blog here
Wife to Kel, dx 12/30/11 Stage IIIc (poor) embyronal, AFP 13700, 10x11 cm retroperitoneal mass, 1 cm^2 lung met
Left I/O 12/31/10.
4xBEP 1-4/11, AFP=22, 5*7 RP mass, tx failed
1.5 x VeIP 5-6/11; tx failed, AFP/b-hCG rising
Salvage RPLND @Indy 6/29/11, metastatic mixed germ cell tumor with yolk sac, seminoma and teratoma
Remission! AFP steady since 9/2011; 1.5 years ALL CLEAR
Registered User
An otter pop is a popsicle only without the high fructose corn syrup and they come in "bar pouches" http://iwantpizza.files.wordpress.co...pg?w=480&h=360.
In my opinion the taste intensifies the nausea.
1, I FLEW through otter pops to numb my mouth =)
2. Vanilla ice cream whenever I could handle it.
3. peppermint gum.
The otter pops were the most important though... I'd say I ate roughly 350-400 over my 3 cycles (you can buy them in packs of 100) It helps most on days 6, 7, 8, and 9 =)
hope that helps!
P.S. I responded to tangy tastes REALLY well. try that?
2011:
4/26 ~ Left I/O Stage 3A, Good Risk, 100% EC
5/23-7/25 ~ 3xBEP
6/20 ~ AFP 2.9, HCG <2, LDH normal! All levels normalized!
7/25 ~ CT Scan: Largest Abdominal node 1.3 x1.1cm, Largest pulmonary nodule 7mm. Doc consulted Einhorn, rec. follow-up scan.
9/16 ~ AFP 2.0, HCG <5. Moved states and now under Dr. Vaughn's care at UPenn's Abramson Cancer Center.
10/24 ~ CT Scan: ALL CLEAR
12/05 ~ AFP 2.0 HCG <5
2012:
2/06 ~ AFP 1.9 HCG <5
bep-chemo.blogspot.com
Registered User
I had a lot of flavoured soda (probably not a good thing). I also had a frog in my throat that itched and drove me crazy! I also took a lot of soothers/throat lozanges (eucalyptus drowns it out).
For me the worst taste was the steroids, and the mag.
Initial diagnoses: Elevated hCG, Left I/O 17-June-2010. Prosthetic implant.
Pathology: Stage 1b, Seminoma/Teratoma
Treatment: Surveillance. hCG normalised 07/10
Relapse: Elevated hCG. 3xBEP finished 24/01/2011
Registered User
I was a junkie on peppermint tic tacs, then on the last cycle it din't bother me that much, prob got used to it.
Jan 11/2011 - left orchiectomy
Biopsy 100% Embryonal Carcinoma
CT Shows spread to two lynph nodes largest 5.9cm
Jan 19/2011 Tumoral Markers lowered to almost normal levels but still high
Staring BEPx3 on FEB 21/2011
CT scan 5.9cm mass > 1.9cm Markers Normal
RPLND June 30/2011 Pathologhy reports: necrotic tissue
Registered User
There's nothing you can do about the taste, just find foods that you can tolerate.....for me it was salt....lots of Mcdonalds and Burger King when I was on chemo....
19 Nov 09 Dx Metastaic Seminoma
25 Nov 09 Right I/O....Primary tumor burned out
Stage IIB
4 JAN 10 - 2 MAR 10 3XBEP
7 APR 10 All Clear....Surveillance
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